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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1785

Cover image of 'Not that kind of love. A sister, a brother, some tumours and a cat'

Not that kind of love. A sister, a brother, some tumours and a cat (2018)

Quercus

A moving, thought-provoking and surprisingly humorous book which is both a description of a journey to death and a celebration of the act of living. Based on Clare Wise's blog, which she started when she was first diagnosed with cancer in 2013, Not That Kind of Love charts the highs and lows of the last three years of Clare's life. The end result is not a book that fills you with despair and anguish. On the contrary, Not That Kind of Love should be read by everybody for its candour, and for its warmth and spirit. Clare is an astonishingly dynamic, witty and fun personality, and her positivity and energy exude from every page. As she becomes too weak to type, her brother - the actor Greg Wise - takes over, and the book morphs into a beautiful meditation on life, and the necessity of talking about death. With echoes of Atul Gawande's Being Mortal and Cathy Rentzenbrink's The Last Act of Love, it is a very special read that rejoices in the extraordinary and often underestimated sibling bond, and the importance of making the most of the ordinary pleasures life has to offer. As Greg Wise writes in the book: 'Celebrate the small things, the small moments. If you find yourself with matching socks as you leave the house in the morning, that is a cause for celebration. If the rest of the day is spent finding the cure for cancer, or brokering world peace, then that's a bonus.' (Publisher) 

Cover image of 'Going to the doctor'

Going to the doctor (2018)

Books Beyond Words

Going to the doctor can be worrying. For people with a learning disability, there may be the added worry of not being able to explain what’s wrong, as well as not understanding what’s happening. This book shows Jim, Anne and Laura who visit their General Practice for different reasons. The stories look at the ways the doctor and nurse listen to each of them, asking questions, explaining what will happen next and checking their understanding so that they can give informed consent. Many of the scenarios shown in the book form part of the annual health check. They also show how to involve the supporter appropriately. This book can be used to help someone get ready to visit the doctor, as a reasonable adjustment during the consultation, and for wider health promotion work. (Publisher)

Cover image of 'The carer's bible'

The carer's bible (2018)

Souvenir Press

This accessible and detailed guide includes practical tips, checklists for best practice, descriptions of their experience from a wide range of carers that addresses solutions to common problems, and expert advice on how to deliver compassionate and dignified care to older people. Uniquely, Amanda Waring also provides support and guidance for the carer, how to maintain energy and commitment, how to recognize signs of compassion fatigue and where carers can get help if they need it. The Carer's Bible is an invaluable, inspiring guide to how to give your loved one the best possible care while addressing the anxieties that all carers suffer. (Publisher) 

Cover image of 'A new kind of normal [currently being reviewed by our volunteers]'

A new kind of normal [currently being reviewed by our volunteers] (2018)

Self-published

They say there’s a book in all of us, but I doubt I would ever have written one had it not have been for my diagnosis of breast cancer in 2011. ‘A New Kind of Normal' is the story of my life up to and moving on from that moment. Growing up in the 60's, working through the 70's and 80's, juggling a career in TV and radio while bringing up three children and surviving two divorces. From the moment I knew what a bra was, I’d wanted breasts: I even crafted a pair of blue plasticine boobs for myself, as nature made me wait until I was 15 for breasts of my own! Through cancer I lost them both, and with the chemotherapy; all my hair, my fingernails, and more worryingly, a sense of whom I was. My hair grew back, as did my fingernails, but I still struggled with my identity. What I’ve written isn't a diary, nor a self-help guide, and it's not just about cancer. I’ve taken a really good look at the little girl I was and the woman I grew into, and why I went to such lengths to try and claw back some of what cancer had taken from me - it's not everyone's way I appreciate, and it’s been an interesting exercise trying to ascertain why it was mine! I’ve been honest, open, and meticulous when it comes to detail, as I firmly believe that if you take away the mystery, you can take away some of the fear. But there’s a lot to laugh about here too, as luckily I’ve always been able to see the funny side of a situation, preferring that to the occasional overwhelming despair I felt. In this book I've tried to move the disease away from the medical professionals and the hospitals, and to bring it into the day to day, because that's where it sits. Over the last seven years I’ve come to realise that the ripple effect of cancer is far reaching, affecting not just those of us living with it but everyone around us. 'A New Kind of Normal' gives an insight into my relationship with my then partner, now husband; my children and their reaction to my illness, my family and friends, my work colleagues, people who wrote to me, and the professionals who cared for me; everybody reacts differently. Breast cancer assaults your femininity - the treatment is tough and the surgery brutal.  It isn't easy, but it is possible, and I'd like to feel this book may be a source of comfort to anyone who's life is touched by breast cancer; maybe even help them to find their 'New Kind of Normal'. There are many things in life we may have to give up on, but hope is not one of them. (P

Cover image of 'Being Adam Golightly: one man's bumpy voyage to the other side of grief'

Being Adam Golightly: one man's bumpy voyage to the other side of grief (2018)

Short Books

The cruel early death of his wife Helen tears up the script of Adam Golightly's middle-class, middle-aged existence. Miserably single, outnumbered by his kids and haunted by life's screaming fragility, he recounts his fight back against the hand of fate. This irreverent and frank memoir follows Adam's snakes-and-ladders journey through his grief in the year following his wife's death, as he struggles with small town tongue wagging, the trauma of teenage bra shopping and online dating anarchy.Adam's is the biggest mid-life crisis anyone could face and as he starts to build a new, alternative life for himself and his children, he shows not just how to survive bereavement but how to be transformed by it. (Publisher)

Cover image of 'Before I go. The essential guide to creating a good end of life plan [currently being reviewed by our volunteers]'

Before I go. The essential guide to creating a good end of life plan [currently being reviewed by our volunteers] (2018)

Findhorn Press

A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)

Cover image of 'The pond [currently being reviewed by our volunteers]'

The pond [currently being reviewed by our volunteers] (2018)

Graffeg Limited

The Pond is a touching picture book about a young boy, and his family, overcoming the loss of his father. This colourful, emotional book is filled with natural imagery, and will teach children not only about death and loss, but the importance of the natural world. From Nicola Davies and Cathy Fisher, the duo behind the beautiful children’s book Perfect. (Publisher) 

Cover image of 'Everything happens for a reason and other lies I've loved'

Everything happens for a reason and other lies I've loved (2018)

SPCK Publishing

London-born Kate Bowler, a thirty-five year-old professor at the school of divinity at Duke, had finally had a baby with her childhood sweetheart when she began to feel jabbing pains in her stomach. She lost thirty pounds, guzzled antacid, and visited doctors for three months before she was finally diagnosed with Stage IV colon cancer. As Kate navigates the aftermath of her diagnosis, she pulls the reader into her life and her history - affectionately filled with a colourful retinue of friends, mega-church preachers, parents, and doctors - and shares her irreverent, laser-sharp reflections on faith, friendship, love, and death. She wonders why suffering makes her feel like a loser and explores the burden of positivity. Trying to relish the time she still has with her son and husband, she realizes she must cure her habit of 'skipping to the end' and planning the next move. An historian of the American Prosperity Gospel (the creed of the megachurches that promises believers a cure for tragedy, if they just want it badly enough) Kate finds that she craves these same 'outrageous certainties'. Why is it so hard to surrender when she knows there are no spiritual guarantees? (Publisher)

Cover image of 'Follow the child. Planning and having the best end-of-life care for your child [currently being reviewed by our volunteers]'

Follow the child. Planning and having the best end-of-life care for your child [currently being reviewed by our volunteers] (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)

Cover image of 'Financial support - benefits [Chinese, Traditional]'

Financial support - benefits [Chinese, Traditional] (2018)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'What to expect when someone important to you is dying. A guide for carers, families and friends of dying people'

What to expect when someone important to you is dying. A guide for carers, families and friends of dying people (March 2018)

Hospice UK

This booklet is for people caring for someone who is, or who may soon be, in the last stages of life. It is designed to help them prepare for what to expect in the very last days and hours of a person's life. It explains the physical changes that someone may go through when they are dying and what can be done to make them more comfortable, the kind of care a dying person can expect to receive, and where to turn to for help if there are concerns about the end-of-life care received.

Cover image of 'A moment of grace. A story of love and loss [currently being reviewed by our volunteers]'

A moment of grace. A story of love and loss [currently being reviewed by our volunteers] (2018)

Ebury Press (Penguin Random House)

Patrick Dillon and Nicola Thorold were together for twenty-eight years. Patrick was an award-winning architect and writer and Nicola a leading figure in theatre, awarded an OBE for her contribution to the arts at London’s Roundhouse. Their two children were almost grown-up. Life was good. And then, in May 2015, Nicola was diagnosed with leukaemia. After several rounds of treatment, a bone marrow transplant and many waves of recovery and decline, she died thirteen months after her diagnosis. Six months later, at Christmas, Patrick started to write. A Moment of Grace is the searing, tender account of Patrick’s life with Nicola and her illness, and his life after her loss. But it is more than a story of illness and unbearable grief: it is a book of memory, of home, of family. It is a tale of the transfiguring power of love. Heartbreaking, life-affirming and truly unforgettable, A Moment of Grace is one man’s journey to find life after his wife’s death. (Publisher)

Cover image of 'The magical wood [currently being reviewed by our volunteers]'

The magical wood [currently being reviewed by our volunteers] (2018)

Lemon Drop Books

This is a story about loss, friendship and hope. The Magical Wood is set in a beautiful wood with a river wandering through. One cold and stormy day, the wind blew a terrible gale. The next day the tree family woke to find that Strongest Tree had fallen to the woodland floor and had sadly died. How would the tree family survive the seasons without the strength of Strongest Tree? Throughout each season the tree family are visited by a new animal, offering advice and support to the trees. (Publisher)

Cover image of 'Gone in the morning. A writer’s journey of bereavement'

Gone in the morning. A writer’s journey of bereavement (2018)

Jessica Kingsley Publishers

An exploration of death, bereavement and grief. This first hand account gives Geoff Mead's experience of responding to the loss of his wife from a brain tumour. Giving insight into the grieving process and how Geoff learned to manage his grief, this book will offer hope to anyone experiencing something similar. After coming to the realisation that mourning is a conscious process, to which we can apply creativity, passion and intelligence, Geoff explored the unknown territory of bereavement through his writing. The book shows how artful practice, such as writing, can help to make sense of our experience and navigate the wreckage of grief. (Publishers)

Cover image of 'A smear test could save your life. Don't ignore your invitation [Somali]'

A smear test could save your life. Don't ignore your invitation [Somali] (2018)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'Managing the late effects of pelvic radiotherapy in men'

Managing the late effects of pelvic radiotherapy in men (April 2018)

Macmillan Cancer Support

A booklet for men who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.

Cover image of 'Understanding lymphoedema'

Understanding lymphoedema (August 2018)

Macmillan Cancer Support

This booklet is about lymphoedema. It is for anyone who has lymphoedema, or is at risk of developing it. It may also be helpful for family members, friends or carers. The booklet explains the signs and symptoms of lymphoedema and how you may be able to reduce your risk of it developing. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Understanding cervical screening results and CIN'

Understanding cervical screening results and CIN (March 2018)

Macmillan Cancer Support

This booklet is about cervical screening. It is for anyone who wants information about how screening is used to find and treat abnormal cells to prevent cervical cancer. It explains what cervical screening involves and what your test results mean. It has information about the most common abnormal result, called cervical intra-epithelial neoplasia (CIN).

Cover image of 'Managing the late effects of pelvic radiotherapy in women'

Managing the late effects of pelvic radiotherapy in women (April 2018)

Macmillan Cancer Support

A booklet for women who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; early menopause; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.

Cover image of 'Understanding breast reconstruction'

Understanding breast reconstruction (October 2018)

Macmillan Cancer Support

This booklet is aimed at women who have undergone, or who are about to undergo, a mastectomy, and who might be considering breast reconstruction. It explains what breast reconstruction is and the possible benefits and problems that might be expected from this type of surgery. Includes photographs, and details of useful organisations.

Cover image of 'MRI scan'

MRI scan (July 2018)

The Royal Marsden NHS Foundation Trust

This leaflet explains what an MRI scan is, who can have one, and what happens before, during and after the scan.

Cover image of 'Understanding chemotherapy'

Understanding chemotherapy (September 2018)

Macmillan Cancer Support

This booklet is about chemotherapy. It is for anyone who is having chemotherapy treatment for cancer. There is also information for carers, family members and friends. It explains how chemotherapy works and how it is given. There is also information about common side effects, how they can be treated and what you can do to manage them.

Cover image of 'Coping with fatigue (tiredness)'

Coping with fatigue (tiredness) (September 2018)

Macmillan Cancer Support

Fatigue is very common during cancer and its treatment. This booklet discusses the causes and effects and suggests how to manage fatigue. It also has advice on planning your life around fatigue, talking to your doctor or nurse, caring for someone who has fatigue, and other sources of help.

Cover image of 'Understanding the PSA test'

Understanding the PSA test (May 2018)

Macmillan Cancer Support

This booklet has been written to help men decide whether to have the PSA blood test. It describes the prostate gland, the causes and symptoms of prostate cancer, and explains the PSA test in detail, including the advantages and disadvantages. Treatment options for prostate cancer are briefly explained. Includes details of useful organisations and other resources, such as websites.

Cover image of 'After someone dies - coping with bereavement'

After someone dies - coping with bereavement (March 2018)

Macmillan Cancer Support

Coping with the death of someone close to you involves dealing with difficult feelings and emotions, as well as practical tasks that have to be done. This booklet is for the relatives and friends of anyone who has died from cancer. It gives you some practical information about what to do and what to expect when someone dies. It also looks at some of the emotions you may have, and the support that can help. 

Cover image of 'Have you seen blood in your pee, even once? Then it is time to tell your doctor [Easy read]'

Have you seen blood in your pee, even once? Then it is time to tell your doctor [Easy read] (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'If you notice blood in your pee, even if it's 'just the once', tell your doctor [Large print]'

If you notice blood in your pee, even if it's 'just the once', tell your doctor [Large print] (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'Preparing a child for loss'

Preparing a child for loss (April 2018)

Macmillan Cancer Support|Winston's Wish

This booklet is written with the childhood bereavement charity, Winston’s Wish. It’s for parents or guardians who are near the end of life and aims to help you prepare and talk to a child or children about your death. Partners, grandparents and close family members may find it useful, too. It may also help you talk to children who are already dealing with the death of a family member. 

Cover image of 'NHS bowel scope screening: using the enema [Urdu]'

NHS bowel scope screening: using the enema [Urdu] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Hindi]'

NHS bowel scope screening: using the enema [Hindi] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Farsi]'

NHS bowel scope screening: using the enema [Farsi] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'Bowel scope screening'

Bowel scope screening (May 2018)

Public Health England

Information to help people decide if they want to take up an invitation for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Punjabi]'

NHS bowel scope screening: using the enema [Punjabi] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Polish]'

NHS bowel scope screening: using the enema [Polish] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Gujarati]'

NHS bowel scope screening: using the enema [Gujarati] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [French]'

NHS bowel scope screening: using the enema [French] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Bengali]'

NHS bowel scope screening: using the enema [Bengali] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Arabic]'

NHS bowel scope screening: using the enema [Arabic] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Nepali]'

NHS bowel scope screening: using the enema [Nepali] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Chinese, Traditional]'

NHS bowel scope screening: using the enema [Chinese, Traditional] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Chinese, Simplified]'

NHS bowel scope screening: using the enema [Chinese, Simplified] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema'

NHS bowel scope screening: using the enema (May 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'Your health information, your confidentiality'

Your health information, your confidentiality (July 2018)

The Royal Marsden NHS Foundation Trust

Cover image of 'If you notice blood in your pee, even if it's 'just the once', tell your doctor'

If you notice blood in your pee, even if it's 'just the once', tell your doctor (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'Cervical cancer. The facts'

Cervical cancer. The facts (March 2017)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about cervical cancer, including incidence, the symptoms to look out for, how to reduce the risk, and cervical screening.

Cover image of 'Telling your child you have cancer'

Telling your child you have cancer (January 2017)

University College London Hospital Cancer Collaborative|Fruit Fly Collective

A short film produced with the Fruit Fly Collective to support parents when they decide to tell their children about their cancer diagnosis. It provides guidance about how and when to tell them, and looks at different age groups and how they may feel and behave when they have been told. 

Cover image of 'Cervical cancer'

Cervical cancer (March 2017)

Jo's Cervical Cancer Trust

This booklet describes what cervical cancer is, the symptoms, causes, the different types and (briefly) the treatment options.

Cover image of 'Your guide to cervical cancer'

Your guide to cervical cancer (March 2017)

Jo's Cervical Cancer Trust

A guide for women who have recently been diagnosed with cervical cancer, and those who care about them.  

Cover image of 'Radiotherapy for pancreatic cancer'

Radiotherapy for pancreatic cancer (July 2017)

Pancreatic Cancer UK

A factsheet for anyone who would like to find out more about how radiotherapy can be used to treat pancreatic cancer. It has information on how radiotherapy is given, the side effects of treatment and looking after yourself during radiotherapy.

Cover image of 'Bowel cancer [Urdu]'

Bowel cancer [Urdu] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Sorry, no publications found.
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