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My Macmillan

Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1796

Cover image of 'Safe handling of chemotherapy medicines. Information for patients, parents and carers'

Safe handling of chemotherapy medicines. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the safe handling and storage of chemotherapy medicines at home and the precautions needed for safe disposal of bodily waste.  

Cover image of 'Taking care of your breasts [English/Hindi]'

Taking care of your breasts [English/Hindi] (September 2016)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Rare tumours'

Rare tumours (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet has brief information about rare tumours of childhood, including details of useful organisations.

Cover image of 'Wilms' tumour'

Wilms' tumour (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Osteosarcoma'

Osteosarcoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what osteosarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Neuroblastoma'

Neuroblastoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a neuroblastoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Ewing sarcoma'

Ewing sarcoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Ewing's sarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Radiotherapy'

Radiotherapy (2016)

CHANGE

An easy read booklet explaining what radiotherapy is and how it is given.  

Cover image of 'Chemotherapy'

Chemotherapy (2016)

CHANGE

An easy read booklet explaining what chemotherapy is and how it is given. 

Cover image of 'Starting a family. Your choices'

Starting a family. Your choices (2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This booklet aims to provide an introduction to the different conception options available for people with MEN, and some of the practical, physical and emotional aspects of each of these. It provides details of sources of additional information, support and advice to help you explore your choices further, and to look after your emotional well-being. 

Cover image of 'Adrenal gland surgery'

Adrenal gland surgery (2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Information for anyone who may be about to have surgery to remove an adrenal gland. This leaflet explains what an adrenal gland is, why an operation may be needed, and who should care for you during your treatment.

Cover image of 'Information about radiotherapy. An easy read guide'

Information about radiotherapy. An easy read guide (2016)

Guy's and St Thomas' NHS Foundation Trust

Easy read information about radiotherapy. Includes information specific to St Thomas' Hospital and Guy's Hospital.

Cover image of 'Retinoblastoma'

Retinoblastoma (October 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what retinoblastoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Rhabdomyosarcoma'

Rhabdomyosarcoma (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what rhabdomyosarcoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Hodgkin lymphoma is, and briefly describes the signs, symptoms, tests and treatment options.

Cover image of 'Having surgery'

Having surgery (2016)

CHANGE

An easy read booklet explaining minor surgery and major surgery. The booklet talks about what happens before and during an operation. There is also information about recovery after surgery and possible side effects. 

Cover image of 'Recovery run. When cancer, cocktails and compression gear collide'

Recovery run. When cancer, cocktails and compression gear collide (2016)

Self-published using CreateSpace Independent Publishing Platform

Recovery Run will make you laugh out loud. It's the story of the girl who, along with her partner in crime, Marc and daughter Cleo, totally bitch slapped cancer to oblivion! A hilarious and heart-warming recollection of how, against the odds, her love affair with running saw her through her darkest days and gave her the fighting spirit to conquer 3 London Marathons and umpteen Half Marathons. Imagine Bridget Jones takes up running and hallucinogenic drugs and you're on the right track, except this Bridget is real, has already found her Mr Darcy and there's a happy ending! Some people talk out of their arse....... she talks about her arse.... a lot! This is a Triumphant, no-holds barred story of courage, strength, hope, stupidity, love and stubbornness beyond belief told by Nicky in all her magnificent, hairy glory... Recovery Run is not the story of my life, I’m not done writing that yet. But it does tell the story of what happened when I was diagnosed with cancer then inexplicably decided to take up running (please someone explain that to me because I’m still clueless!) It opens on 1st January this year with my ludicrous thoughts about fitness resolutions and half baked plans for the year. Each entry thereafter reflects on either a run I've done that day or a particularly noteworthy one from the past six years including three London Marathons through chemo, five Great North Runs and a ton of other escapades. I share the challenges and difficulties I've had to face during my treatment whilst simultaneously talking about runs that I have attempted with colossal hangovers or the many insanely misjudged situations I've found myself in. It's also a story of my love of two cities, Liverpool and Newcastle and of my life with my sidekicks Marc and Cleo along with some of the brilliant characters we’ve met over the last couple of years. If you’re looking for a technical running book that’s going to talk to you about the finer points of hill sprints, negative splits and nutrition then you’re going to be seriously disappointed. I’m just a girl who got cancer and had to do something to teach me how to survive. But if you want to read about the absolute love of running, the days you think you’ll never run again and the moments you feel completely invincible then this is the book for you. After all, you may not realise it now but if you’re anything like me, running might just be the thing that saves your life. (Author)

Cover image of 'Germ cell tumours'

Germ cell tumours (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a germ cell tumour is and describes the signs, symptoms, tests and treatment options.

Cover image of 'Ladies...What is it that only men have but can cause problems or worry... The Prostate! A simple guide [Large print]'

Ladies...What is it that only men have but can cause problems or worry... The Prostate! A simple guide [Large print] (July 2016)

Prostate Scotland

This leaflet for women has information about prostate cancer with tips to help them encourage men to see a doctor, change their lifestyle and talk about the issues.

Cover image of 'Taking care of your breasts [English/French]'

Taking care of your breasts [English/French] (2016)

Breast Cancer Care

An illustrated mini-guide to being breast aware, in French and English. It shows what breast changes to look and feel for.  

Cover image of 'How will I feel after radiotherapy. An easy read guide'

How will I feel after radiotherapy. An easy read guide (2016)

Guy's and St Thomas' NHS Foundation Trust

Easy read information about the possible side-effects of radiotherapy. Includes information specific to St Thomas' Hospital and Guy's Hospital.

Cover image of 'Seeing the doctor'

Seeing the doctor (2016)

CHANGE

An easy read booklet about going to see your GP. It talks about things you can do to prepare and things the doctor might ask you.  

Cover image of '10 top tips [Welsh]'

10 top tips [Welsh] (February 2016)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

Cover image of 'Non-Hodgkin lymphoma (NHL)'

Non-Hodgkin lymphoma (NHL) (December 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what non-Hodgkin lymphoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'The end of life'

The end of life (2016)

CHANGE

An easy read booklet about what happens to your body and how you might feel during the last few days of life. 

Cover image of 'An ABC of prostate cancer today. My journey over 4 continents to find the best cure'

An ABC of prostate cancer today. My journey over 4 continents to find the best cure (2016)

Self-published using CreateSpace Independent Publishing Platform

“An ABC of prostate cancer today – 2nd Edition replaces its best-selling predecessor, “An ABC of prostate cancer in 2015”. The new edition provides the reader with comprehensive information on the very latest diagnosis tests that are available and now becoming routinely used in leading clinics, hospitals and specialist practice around the world. A leading urological surgeon who reviewed the book said: “All my registrars (interns) should get a copy of this book and fully digest its contents.” Another specialist said: “Every general practitioner (physician) in the country should read the book to bring them up-to- date on prostate cancer.” Not with standing these comments, the easy-to-read book, is targeted at the layman, and is written in easily understood language. The book provides the reader with more than 100 questions that prostate cancer sufferers should consider asking their doctors. It also details “My Journey over Four Continents to find the Best Cure”. The book (99,500 words over 344 pages) is presented in three parts: In Part 1, the book looks at what prostate cancer is and examines, in detail, PSA testing and its derivatives such as PSA density, PSA doubling time, free PSA, etc. It also looks in depth at the biopsy process and explains the increasing use of multiparametric MRI as a diagnostic tool. The staging and grading of prostate cancers are explained. Part 2 focusses on the 10 top treatments available to treat prostate cancer. Some of these treatments are broken down into multiple sub-sets. One such treatment is radiation, which is broken down into nine different forms of radiation, each of which is fully presented. Some of these, like proton beam therapy, might offer better alternative outcomes to some sufferers than more ‘popular’ treatments. Whilst the book focusses mainly on the treatment of patients with low and intermediate risk prostate cancer that is localised, the treatment of metastatic prostate cancer is also considered. The book considers diet and nutrition issues in detail and also has chapters on alternative treatments and a comprehensive cancer-fighting plan. This part of the book concludes with a chapter on the all-important prostate cancer support groups. Part 3 of the book details my consideration of various treatment options, my visits to three urologists and a radiation oncologist, my treatment selection process and my subsequent proton beam therapy treatment at the National Cancer Centre in Sout

Cover image of 'Giving your consent'

Giving your consent (2016)

CHANGE

An easy read booklet about what giving consent to treatment means.  

Cover image of 'Coughing for three weeks? Get out of breath easily? Do you have either of these symptoms? Tell your doctor'

Coughing for three weeks? Get out of breath easily? Do you have either of these symptoms? Tell your doctor (2016)

Department of Health

Leaflet aimed at alerting general public to symptoms of lung cancer and encouraging people to go to the doctor if they have a cough that last more than three weeks or get out of breath easily.

Cover image of 'Complementary therapies'

Complementary therapies (2016)

CHANGE

An easy read booklet about the different complementary therapies that are available. 

Cover image of 'Getting ready to die'

Getting ready to die (2016)

CHANGE

An easy read booklet about things you might want to think if you will not get better from cancer. For example, things you want to do before you die, people you want to see and things you want to remember and think about.  

Cover image of 'Choosing where to die'

Choosing where to die (2016)

CHANGE

An easy read booklet about the different places you can be looked after in the last few months, weeks or days of your life.  

Cover image of 'Getting your test results'

Getting your test results (2016)

CHANGE

An easy read booklet about waiting for test results and what happens when you get them.  

Cover image of 'Your life and your choices: plan ahead (Northern Ireland)'

Your life and your choices: plan ahead (Northern Ireland) (May 2016)

Macmillan Cancer Support and the Public Health Agency

This spiral-bound booklet is about some of the ways that people with cancer in Northern Ireland can plan ahead and make choices about their future care. It is divided into the following sections: Planning ahead; Making a will; Advance care plans; Enduring power of attorney; Advance decisions to refuse treatment; Organ and tissue donation; Your plans for after you die; Managing your care if you haven't planned ahead; Mental capacity; Further information and support.

Cover image of 'Thinking about your funeral'

Thinking about your funeral (2016)

CHANGE

An easy read booklet about what a funeral is and things you might want to plan for your funeral, such as the music or who should come. 

Cover image of 'Screening for life. Information about free NHS screening in Wales [Welsh]'

Screening for life. Information about free NHS screening in Wales [Welsh] (May 2016)

Breast Test Wales

Information about the free NHS screening tests offered by Public Health Wales, including breast screening, cervical screening and bowel screening. 

Cover image of 'Side effects from radiotherapy'

Side effects from radiotherapy (2016)

CHANGE

An easy read booklet about the possible side effects of radiotherapy and where to get support. 

Cover image of 'Side effects from chemotherapy'

Side effects from chemotherapy (2016)

CHANGE

An easy read booklet about the possible side effects of chemotherapy and ways of coping with each one. 

Cover image of 'Screening for life. Information about free NHS screening in Wales'

Screening for life. Information about free NHS screening in Wales (May 2016)

Breast Test Wales

Information about the free NHS screening tests offered by Public Health Wales, including breast screening, cervical screening and bowel screening. 

Cover image of 'Grief and loss when someone dies'

Grief and loss when someone dies (2016)

CHANGE

An easy read booklet explaining what dying is, how you might feel if someone you love dies and where you can get support.  

Cover image of 'Who can help if you are dying'

Who can help if you are dying (2016)

CHANGE

An easy read booklet about the different people who can support you if you are dying and what they can help with.  

Cover image of 'Bowel screening information card'

Bowel screening information card (January 2016)

Cancer Research UK

Pack of 100 cards with information on the bowel cancer screening programme in England, including the age range when people are eligible to take part, and the contact number to request a new kit. 

Cover image of 'How you may feel when someone dies'

How you may feel when someone dies (2016)

CHANGE

An easy read booklet that explains grief and talks about the different emotions or changes you might experience if someone you love dies. There is also information about where to get support. 

Cover image of 'Going to a funeral when someone dies'

Going to a funeral when someone dies (2016)

CHANGE

An easy read booklet about what a funeral is, what might happen and other ways of remembering someone who has died.  

Cover image of 'How to check your balls (testicles)'

How to check your balls (testicles) (2016)

CHANGE

An easy read booklet about testicular cancer and how to check your testicles for changes.  

Cover image of 'Spirituality and religion at the end of life'

Spirituality and religion at the end of life (2016)

CHANGE

An easy read booklet that talks about the role religion and faith may play at the end of life and other things that might help you feel spiritual. 

Cover image of 'Changes that can happen at the end of life'

Changes that can happen at the end of life (2016)

CHANGE

An easy read booklet about symptoms you might have with advanced cancer and things that can help. 

Cover image of 'What can help you feel better when someone dies'

What can help you feel better when someone dies (2016)

CHANGE

An easy read booklet about coping with grief and things that can help you. 

Cover image of 'Making decisions about the future if you are dying'

Making decisions about the future if you are dying (2016)

CHANGE

An easy read booklet about how to plan for your future, including making an Advance Care Plan.  

Cover image of 'Cervical screening and human papillomavirus (HPV) testing'

Cervical screening and human papillomavirus (HPV) testing (2016)

Public Health England

This leaflet tells you about HPV testing. This is a test carried out on the sample of cells taken during cervical screening. It makes no difference to what happens at your screening appointment. 

Cover image of 'Your support and follow-up care.'

Your support and follow-up care. (October 2016)

Macmillan Cancer Support

This leaflet is about how you can take an active role in your care. It describes types of support that your healthcare team may call the Recovery Package. This leaflet looks at: some of the support you can ask for after a cancer diagnosis; what options may be available to you for your follow-up care, and what information you need; ways you can look after yourself.

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