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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1796

Cover image of 'Hair everywhere'

Hair everywhere (2017)

Istros Books

Hair Everywhere is the story of one family and how they manage to cope when the mother is diagnosed with cancer. It is a delicate tale that balances itself between the generations, revealing their strengths and weaknesses in times of trouble. It is also a story about how roles within a family can change when things become challenging, due to sickness or death, allowing some to grow and others to fade. Ultimately, this is a book about life; full of humour and absurdity as well as sadness, and set against an everyday background where the ordinary takes on new significance and colour. Tea Tulic’s debut novel is a brave glance at the human condition. (Publisher)

Cover image of 'Big tree is sick'

Big tree is sick (2017)

Jessica Kingsley Publishers

Snibbles and Big Tree are best friends! They have always hung out together, and Snibbles loves Big Tree very much. When Big Tree unexpectedly falls ill with woodworm, Snibbles is very upset and angry. The illness is a very bad one and Big Tree does not feel well and doesn't want to play for a long time. Poor Snibbles! He wants Big Tree to get better, but he feels as if there is nothing he can do. What can Snibbles and his friends do to help Big Tree through his treatment and recovery? This beautifully illustrated storybook describes the anger and emotion that many children encounter when a close relative or friend is diagnosed with a long-term illness, such as cancer. The story of Big Tree depicts how things are often out of your control and sets out effective strategies for dealing with these emotions. This story features loveable characters and vivid illustrations, as well as activities for children aged 5+ to complete with their parents or professionals in times of illness and loss. (Publisher)

Cover image of 'Flying home. Helping patients to arrange international travel'

Flying home. Helping patients to arrange international travel (September 2017)

hospice information

This publication was originally written to help with arrangements for ‘final journeys’. However, much of the information also applies to those who would like to take a holiday when seriously ill.

Cover image of 'Naomi's story. Living with leukaemia'

Naomi's story. Living with leukaemia (2017)

Franklin Watts

This picture book uses the first-person testimony of Naomi, a 10-year-old girl with acute lymphoblastic leukaemia. Naomi explains what it was like to find out she had cancer, when she lost all her hair and what it was like spending so much time in hospital. The intimate and direct impact of using Naomi’s real first-person testimony encourages children to empathise with her situation, and to understand how some children’s lives are very different from their own. Naomi talks about school, family, friends and explains the confusion and chaos caused by cancer. This BAFTA award-winning story was originally produced as an animation for the BBC. Aimed at children aged 9 and up. (Publisher)

Cover image of 'Breathlessness. What to do if you get out of breath'

Breathlessness. What to do if you get out of breath (November 2017)

British Lung Foundation

This booklet explains what breathlessness is, the causes of acute and chronic breathlessness, the tests that might be necessary and management of breathlessness. It is not cancer specific.

Cover image of 'Sex and breathlessness'

Sex and breathlessness (March 2017)

British Lung Foundation

This illustrated leaflet has guidance for people with lung disease on how to enjoy a fulfilling sex life.

Cover image of 'My brother or sister has cancer. A children's guide to coping with cancer'

My brother or sister has cancer. A children's guide to coping with cancer (August 2016)

Children's Cancer and Leukaemia Group

This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.

Cover image of 'The cancer whisperer. How to let cancer heal your life'

The cancer whisperer. How to let cancer heal your life (2016)

Coronet (Hodder & Stoughton)

This book does not offer a cure for cancer. It offers a cure for your fear of cancer. Both memoir and self-help book, this is the remarkable chronicle of a passage from 'terminal' diagnosis to exuberant wellness in just a few months. The Cancer Whisperer reverses our traditional adversarial relationship with cancer by teaching us how to listen to it; how to be healed by it as well as seek to cure it; and how to be emotionally free of illness even when physically curtailed. Living on the frontier between her fierce will to live and necessary willingness to die, Sophie - now thriving with cancer - shares her journey with searing honesty, unapologetic vulnerability and intelligent pragmatism. Alongside rare insights into a condition now affecting approximately one in three people, she challenges the mental conditioning we need to overcome to redefine our narratives about cancer. As 'the cancer whisperer', she offers a groundbreaking practical guide that will encourage cancer patients to: Direct their own treatment while preserving their personhood in a system that tends to see them as patients more than people. Engage with fear, anger and grief in healthy and healing ways instead of toughing it out, trying to be positive or collapsing into despair. Radically shift from being a cancer victim to a cancer listener-to seeing cancer less as a disease than as a symptom of other underlying causes, and engaging proactively with whatever changes it calls on them to make. Discover what the author calls 'the whispering, the reaching into a well of darkness and finding your hands painted with light'. Inspired, wise and moving, this book is as unflinching as Lisa Lynch's The C Word, as uplifting as Kris Carr's Crazy, Sexy Cancer, and carries us to a new threshold in our relationship with cancer, strengthening our ability to meet it with courage, creativity, gratitude and grace. (Publisher)

Cover image of 'Breast. Breast cancer risk after childhood cancer treatment'

Breast. Breast cancer risk after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

This factsheet gives an overview of breast cancer risk after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Nourishing your body during pancreatic cancer treatment'

Nourishing your body during pancreatic cancer treatment (2016)

Pancreatic Cancer Action

Created by dietitians and chefs at University College Cork, this recipe book provides advice on how best to combat cancer-induced weight loss and other eating related problems whilst undergoing pancreatic cancer treatment.  It features over 80 quick, easy and energy dense recipes for nourishing meals and snacks that have been created specifically for people who find it hard to maintain a healthy weight. 

Cover image of 'Eating well following treatment and recovery from cancer. A guide for patients and carers'

Eating well following treatment and recovery from cancer. A guide for patients and carers (February 2016)

Christie Hospital NHS Trust

Advice about what to eat and what not to eat following treatment. 

Cover image of 'Prostate cancer. Information for black men'

Prostate cancer. Information for black men (November 2016)

Prostate Cancer UK

This pocket guide provides information about black men's risk of prostate cancer and what they can do about it. 

Cover image of 'Managing family life and cancer. A practical guide for parents of a child with cancer'

Managing family life and cancer. A practical guide for parents of a child with cancer (December 2016)

Children's Cancer and Leukaemia Group

This booklet, witten by parents for parents, aims to help parents manage and enjoy family life when a child has cancer.

Cover image of 'Breast cancer. The key facts'

Breast cancer. The key facts (April 2016)

Breast Cancer Now

This small leaflet briefly explains what breast cancer is, what causes it, routine screening, how it is treated, and how to be breast aware.

Cover image of 'What women need to know about... vulval cancer'

What women need to know about... vulval cancer (February 2016)

The Eve Appeal

Key information about vulval cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer. 

Cover image of 'Genetic testing and hereditary ovarian cancer. A guide for women with ovarian cancer and their families'

Genetic testing and hereditary ovarian cancer. A guide for women with ovarian cancer and their families (July 2016)

Target Ovarian Cancer

Women who have had a diagnosis of ovarian cancer may worry that other family members may be at risk. This guide explains what a family history of ovarian cancer means, whether family members are at risk of developing hereditary cancer, whether to have a genetic test, and the implications for you and your family if you do have hereditary ovarian cancer.

Cover image of 'Fatigue and prostate cancer'

Fatigue and prostate cancer (November 2016)

Prostate Cancer UK

This fact sheet is for people who want to know more about fatigue (extreme tiredness). Fatigue is a feeling of extreme tiredness that doesn’t go away, even after you rest. It's very common in men with prostate cancer. 

Cover image of 'Manversation family and friends guide. Helping you have a conversation about prostate cancer'

Manversation family and friends guide. Helping you have a conversation about prostate cancer (October 2016)

Orchid – Fighting Male Cancer|Tackle Prostate Cancer

The Manversation campaign aims to challenge outdated stereotypes, raise awareness of the symptoms of advanced prostate cancer and encourage men to speak up about potential symptoms as soon as they experience them. This leaflet describes how family and friends can support men with advanced prostate cancer.

Cover image of 'Breast cancer treatments and osteoporosis'

Breast cancer treatments and osteoporosis (January 2016)

National Osteoporosis Society

This factsheet describes what osteoporosis is, and considers the link between breast cancer treatments and the risk of developing osteoporosis.

Cover image of 'Manversation patient guide. Helping you have a conversation about prostate cancer'

Manversation patient guide. Helping you have a conversation about prostate cancer (October 2016)

Orchid – Fighting Male Cancer|Tackle Prostate Cancer

The Manversation campaign aims to challenge outdated stereotypes, raise awareness of the symptoms of advanced prostate cancer and encourage men to speak up about potential symptoms as soon as they experience them. This leaflet describes the impact of advanced prostate cancer and encourages men to talk to family and friends about their feelings and get support.

Cover image of 'Lungs. The health of your lungs after childhood cancer treatment'

Lungs. The health of your lungs after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about the health of your lungs after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Heart. The health of your heart after childhood cancer treatment'

Heart. The health of your heart after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

This factsheet is about the health of your heart after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Kidney. The health of a single kidney after childhood cancer treatment'

Kidney. The health of a single kidney after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about the health of a single kidney after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Bleomycin. Bleomycin treatment for childhood cancer'

Bleomycin. Bleomycin treatment for childhood cancer (January 2016)

Children's Cancer and Leukaemia Group

This factsheet gives an overview of the potential late effects of bleomycin treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'PSA testing and prostate cancer: advice for well men aged 50 and over'

PSA testing and prostate cancer: advice for well men aged 50 and over (2016)

Public Health England

This information sheet aims to give men balanced information so that they can decide whether to have the PSA test.

Cover image of 'Osteoporosis. The health of your bones after childhood cancer treatment'

Osteoporosis. The health of your bones after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about osteoporosis and the health of your bones after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Healthy living. Healthy lifestyle advice for childhood cancer survivors'

Healthy living. Healthy lifestyle advice for childhood cancer survivors (June 2016)

Children's Cancer and Leukaemia Group

Healthy lifestyle advice for childhood cancer survivors. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Osteonecrosis or avascular necrosis. The health of your bones after childhood cancer treatment'

Osteonecrosis or avascular necrosis. The health of your bones after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about osteonecrosis (or avascular necrosis) and the health of your bones after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Understanding the PSA test. A guide for men concerned about prostate cancer'

Understanding the PSA test. A guide for men concerned about prostate cancer (November 2016)

Prostate Cancer UK

A booklet for men who are considering having a PSA test or who want to know more about PSA. It describes the different problems that affect the prostate gland, the risk factors for prostate cancer, the factors that can affect PSA levels, the tests that the GP can do and what the results may show, and what may happen if the GP refers you to a specialist. The final section lists the advantages and disadvantages of having a PSA test and suggests some questions to ask the doctor.

Cover image of 'Helping brothers and sisters. A guide for adults supporting siblings of children with cancer'

Helping brothers and sisters. A guide for adults supporting siblings of children with cancer (February 2016)

Children's Cancer and Leukaemia Group

This illustrated leaflet is designed to help adults who come into contact with the siblings of children with cancer. It explains the problems that siblings may have and how adults can best help them cope.

Cover image of 'Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial'

Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial (April 2016)

Children's Cancer and Leukaemia Group

Information for teenagers and young adults about research and clinical trials.

Cover image of 'Radiotherapy for skin cancer'

Radiotherapy for skin cancer (December 2016)

British Association of Dermatologists

Brief information about radiotherapy for skin cancer. 

Cover image of 'Types of surgery for breast cancer [Portuguese]'

Types of surgery for breast cancer [Portuguese] (August 2016)

Macmillan Cancer Support

This factsheet describes the types of surgery for breast cancer.

Cover image of 'Work and cancer'

Work and cancer (2016)

CHANGE

An easy read booklet about how cancer can affect your job, what your rights are and where to get more support.  

Cover image of 'Prostate cancer. A guide for newly diagnosed men [Audio CD]'

Prostate cancer. A guide for newly diagnosed men [Audio CD] (July 2016)

Prostate Cancer UK

Audio version of the booklet for men who have been recently diagnosed with prostate cancer. It describes the prostate, how prostate cancer is diagnosed, what the test results mean, the treatment options, and the support available. It has space to record contact details and other information that may be useful, such as appointment times and PSA levels.

Cover image of 'MTC. Medullary thyroid cancer'

MTC. Medullary thyroid cancer (February 2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This booklet explains what medullary thyroid cancer is, how it is diagnosed, the tests that may be carried out and the treatment options.

Cover image of 'Surgery for breast cancer [Arabic]'

Surgery for breast cancer [Arabic] (2016)

Macmillan Cancer Support

This factsheet explains why surgery might be used to treat breast cancer, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications.

Cover image of 'Your feelings and cancer'

Your feelings and cancer (2016)

CHANGE

An easy read booklet that talks about the different emotions you might have if you are diagnosed with cancer. 

Cover image of 'After treatment for cancer'

After treatment for cancer (2016)

CHANGE

An easy read booklet about what happens after cancer treatment finishes and where to get support. 

Cover image of 'Your sex life and cancer'

Your sex life and cancer (2016)

CHANGE

An easy read booklet about how cancer can affect your sex life and things that can help.  

Cover image of 'How to help someone with cancer. 70 ways to help cancer patients and their families during cancer treatment'

How to help someone with cancer. 70 ways to help cancer patients and their families during cancer treatment (2016)

Rebel Redd Books

A loved one was recently diagnosed with cancer and you aren't sure the best way to help. Surely there’s something you can do besides bringing a frozen dinner? This book will be your guide to practical ways you can help a cancer patient as they are progressing through treatment. You may feel you don’t have the time, energy or resources to be of much help, but these 70 recommendations will provide affordable and manageable suggestions to help form your action plan. Topics include: -Advice on how to help patients traveling for treatment -Suggestions for both adult and pediatric patients -How to help families and caregivers -What you can do if you live in a different town or state You have the power to make a difference in a cancer patient’s life. These simple suggestions will allow you to help relieve the patient’s worry and frustration, freeing them to focus on rest, gaining strength, and healing during this difficult time. “Alone we can do so little; together we can do so much.” Helen Keller (Publisher)

Cover image of 'Starting treatment for cancer'

Starting treatment for cancer (2016)

CHANGE

An easy read booklet that explains why cancer treatment is given and what your doctor will talk to you about.  

Cover image of 'Finding out you have cancer'

Finding out you have cancer (2016)

CHANGE

An easy read booklet explaining what will happen if you are diagnosed with cancer and where to get more support. 

Cover image of 'Your social life and cancer'

Your social life and cancer (2016)

CHANGE

An easy read booklet that talks about how cancer can affect your life and gives ideas for things you can still enjoy if you are having treatment. 

Cover image of 'What happens next? A guide for women with a recent diagnosis of ovarian cancer'

What happens next? A guide for women with a recent diagnosis of ovarian cancer (November 2016)

Target Ovarian Cancer

This guide is for women with a recent diagnosis of ovarian cancer. It focuses on the practical and emotional needs in the months following diagnosis and offers advice on where to find support.

Cover image of 'If you are dying from cancer'

If you are dying from cancer (2016)

CHANGE

An easy read booklet about how you might feel if you find out your cancer cannot be cured. The booklet talks about things that might help and people who can support you.  

Cover image of 'Skin cancer: how to reduce the risk of getting a second one'

Skin cancer: how to reduce the risk of getting a second one (December 2016)

British Association of Dermatologists

This factsheet aims to help you understand how to reduce the risk of developing a skin cancer if you are at increased risk, for example if you have been previously diagnosed with a skin cancer, have significant sun damage to their skin or are taking immunosuppressive drugs, particularly after an organ transplant. It describes the main types of precancerous and cancerous skin growths, explains the importance of detecting and treating them early, and has advice on how to reduce the risk of another skin cancer. 

Cover image of 'People who can help when you have cancer'

People who can help when you have cancer (2016)

CHANGE

An easy read booklet explaining all the people and organisations who can help you if you have cancer and what they can do.  

Cover image of 'Pancreatic cysts and cystic tumours'

Pancreatic cysts and cystic tumours (May 2016)

Pancreatic Cancer Action

A booklet for patients and carers describing the types of pancreatic cyst, their symptoms and risks. It gives detailed information on the diagnostic tests used, the different types of treatment given for cancerous and non-cancerous cysts. It includes a glossary to explain many of the terms used. 

Cover image of 'Spotting the signs of cancer (z-card)'

Spotting the signs of cancer (z-card) (September 2016)

Cancer Research UK

This wallet sized fold-out card covers cancer screening and the importance of early diagnosis for men and women. 

Sorry, no publications found.
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