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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1698

Cover image of 'Multi-layer lymphoedema bandaging (MLLB)'

Multi-layer lymphoedema bandaging (MLLB) (March 2016)

Lymphoedema Support Network

Multi-layer lymphoedema bandaging (MLLB) can be used as part of the management of lymphoedema for both arm and leg swelling. This leaflet describes what it is, who will benefit from it, how treatments are arranged, what to expect during and after treatment, and the benefits and possible side-effects.

Cover image of 'Recreational exercise and movement with lymphoedema'

Recreational exercise and movement with lymphoedema (August 2016)

Lymphoedema Support Network

This leaflet describes why exercise is important, what happens during exercise, and how it can help people with lymphoedema. It has advice on exercising with lymphoedema, and what to watch out for, and concludes with information about exercises and activities that people with lymphoedema have found useful, including swimming, golf and racquet sports, cycling, walking, yoga or Tai Chi, and going to the gym.

Cover image of 'Healthy eating for people with lymphoedema'

Healthy eating for people with lymphoedema (November 2016)

Lymphoedema Support Network

This leaflet explains why it is important to follow a healthy eating plan and describes how to make the necessary dietary changes.

Cover image of 'Reducing the risk of upper limb lymphoedema'

Reducing the risk of upper limb lymphoedema (August 2016)

Lymphoedema Support Network

This leaflet describes how the lymphatic system works, the causes of lymphoedema, and the risk factors. It also has advice about how to prevent lymphoedema developing, with particular emphasis on exercise.

Cover image of 'Skin care for people with lymphoedema'

Skin care for people with lymphoedema (May 2016)

Lymphoedema Support Network

This leaflet explains why skin care is important for people with lymphoedema and gives general advice on skin care, including the use of emollients. It also covers special problems that can occur in lymphoedema, such as dermatitis, fungal infections and lymphorrhoea.

Cover image of 'Swollen feet and legs'

Swollen feet and legs (April 2016)

Lymphoedema Support Network

Information on skin hygiene, foot protection, and footwear for people with lymphoedema. Includes details of companies supplying specialist footwear.

Cover image of 'What doesn’t kill you, makes you stronger'

What doesn’t kill you, makes you stronger (2016)

Self-published using CreateSpace Independent Publishing Platform

“You’ve got cancer” – three little words that can change your life. “What Doesn’t Kill You, Makes You Stronger” is the honest, straight-from-the-heart account of one woman’s experience of hearing these three words. Right from the start, it follows every step of this journey – and it IS a journey – the tears and laughter, the ups and downs and everything in between. There is loads of information available that give you the facts about what it’s like to be diagnosed with cancer, what happens next, what the options are for treatment and a how to have a life alongside a cancer diagnosis. Most of these are written by those who have never had cancer. Not many of them share the emotional and psychological effects that being diagnosed have. This book does. It talks about the real side effects of chemo, the strange things you crave or can’t stand, the powerful friendships that develop and the fierce spirit within, which is determined to beat cancer. It’s not a “poor me” story……it’s a frank and honest account that has one purpose – to help other people who find themselves with a cancer diagnosis, to show them that what they are thinking and feeling is “OK”, that they aren’t alone and that it’s ok to have a laugh. “What Doesn’t Kill You, Makes You Stronger” – very frank, very honest and very true. (Publisher)

Cover image of 'The way we die now'

The way we die now (2016)

Head of Zeus

We have lost the ability to deal with death. Most of our friends and beloved relations will die in a busy hospital in the care of strangers, doctors and nurses they have known at best for a couple of weeks. They may not even know they are dying, victims of the kindly lie that there is still hope. They are unlikely to see even their family doctor in their final hours, robbed of their dignity and fed through a tube after a long series of excessive and hopeless medical interventions. This is the starting point of Seamus O'Mahony's thoughtful, moving and unforgettable book on the western way of death. Dying has never been more public, with celebrities writing detailed memoirs of their illness, but in private we have done our best to banish all thought of dying and made a good death increasingly difficult to achieve. (Publisher)

Cover image of 'What does super Jonny do when mum gets sick? [Spanish]'

What does super Jonny do when mum gets sick? [Spanish] (2016)

Books For Caring Kids

Jonny is a little superhero with a BIG problem. His Mum is sick. How can he help? Join Super Jonny and Bear, as they go to the hospital to investigate. LEARN who the staff working in the hospital are and what they do. DISCOVER Jonny's secret weapon. Super Jonny is recommended by teachers for teachers. The question page links to the English and New Zealand national curriculums. These questions teach the children how to help the sick. Some people need regular hospital care to manage their disease. These people have their own page entitled: Preparing for a hospital admission: 5 tips for chronically ill moms. This ensures that any mother who is going into hospital, has some supplies when her children visit. This list of simple suggestions could also be filled by any adult wanting to help a Mom who is suddenly sick. With its big bold professionally drawn illustrations, Super Jonny is a valuable resource for your family, school or medical centre. (Publisher).

Cover image of 'Dying. A memoir'

Dying. A memoir (2016)

Canongate Books Ltd

At the age of sixty, Cory Taylor was dying of melanoma-related brain cancer. With her illness no longer treatable, she began at the start of 2016 to write about her experiences and, in an extraordinary creative surge, wrote what would become Dying: A Memoir. This is a brief and clear-eyed account of what dying taught Cory: amid the tangle of her feelings, she reflects on the patterns of her life, and remembers the lives and deaths of her parents. She tells us why she would like to be able to choose the circumstances of her own death. Dying is about the vulnerability and strength, courage and humility, anger and acceptance that it takes to live a good life and say goodbye to it in peace. (Publisher)

Cover image of 'Rise. Surviving and thriving after trauma'

Rise. Surviving and thriving after trauma (2016)

Weidenfeld and Nicholson

Renowned as a much-loved and highly respected journalist and broadcaster with thirty years' experience, Sian Williams has studied the impact of acute stress for many years and is also a trained trauma assessor. In RISE, she explores the science of resilience and growth after trauma, offers advice from the experts, and learns from those who have emerged from horrific experiences, feeling changed yet stronger, with a new perspective on their life, their relationships and their work. She also documents her own path through breast cancer, with candid and unflinching honesty. Her story provides a narrative thread through a book designed to help others deal with all manner of adversity, including physical or mental ill health; loss of a loved one; abuse and post-traumatic stress. RISE is a deeply researched exploration of trauma, grief and illness, and most importantly resilience in the darkest of days. It is an inspiring and powerful piece of work, full of honesty, warmth and wisdom. (Publisher)

Cover image of 'Rising from the ashes of loss: my voyage through grief'

Rising from the ashes of loss: my voyage through grief (2016)

Ayni Books

Death is inevitable and is an existential fear for all human beings. But it is the devastating thought of departing this earth alone and in agony that renders our inevitable transition such a fearful endeavour. For many, it is not so much facing the afterlife, as most religions provide some support in that area, but it is in the way we will end our lives that is the major source of concern. How many of us hope and pray to be blessed with an angel, a loved one that will give us the patient support and attend to our very needs during our last days? Such dedicated souls are few and far apart, and rare are the ones that will undertake that exhausting and onerous task. This book is about one of them though, Pierre, a loving husband who, without hesitation, put his life aside to become the sole caretaker of his wife, Louise, diagnosed with a devastating cancer. (Publisher)

Cover image of 'When breath becomes air'

When breath becomes air (2016)

The Bodley Head

At the age of thirty-six, on the verge of completing a decade’s worth of training as a neurosurgeon, Paul Kalanithi was diagnosed with stage IV lung cancer. One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi’s transformation from a naïve medical student “possessed,” as he wrote, “by the question of what, given that all organisms die, makes a virtuous and meaningful life” into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality. What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir. Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. “I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything,” he wrote. “Seven words from Samuel Beckett began to repeat in my head: ‘I can’t go on. I’ll go on.’” When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both. (Publisher)

Cover image of 'Management of oedema in advanced ill health. Information for patients'

Management of oedema in advanced ill health. Information for patients (February 2016)

Lymphoedema Support Network

Information about oedema in advancing disease. treatment. It describes the causes, symptoms, assessment and investigations and management (skin care, exercise, limb positioning and support, compression, manual lymphatic drainage, kinesio taping and medical treatments).

Cover image of 'The use of compression garments in lymphoedema management'

The use of compression garments in lymphoedema management (November 2016)

Lymphoedema Support Network

The use of compression garments plays an important role in the management of lymphoedema. This leaflet describes the benefits of wearing compression garments, the factors involved in choosing compression garments, the different types available, and fitting. It concludes with general information about how to wear and care for the garments, and the problems that may occur.

Cover image of 'Early childhood lymphoedema'

Early childhood lymphoedema (February 2016)

Lymphoedema Support Network

Lymphoedema in children may occur in the treatment of cancer following surgery or radiotherapy. This leaflet describes what lymphoedema is, why it has developed, the treatment options and the impact on daily life.

Cover image of 'Upper limb lymphoedema'

Upper limb lymphoedema (November 2016)

Lymphoedema Support Network

Advice on reducing the risk of lymphoedema following mastectomy or lumpectomy and on keeping any swelling under control. Covers temperature, skin hygiene, everyday activities, clothing and massage.

Cover image of 'Lymphoedema of the breast and trunk'

Lymphoedema of the breast and trunk (September 2016)

Lymphoedema Support Network

This leaflet gives information about swelling (oedema) of the breast following breast cancer treatment. It explains why breast oedema develops, how it is recognised, what to do if it occurs, and the treatment options available. It also has information for people with truncal oedema.

Cover image of 'General information about lymphoedema and the LSN'

General information about lymphoedema and the LSN (May 2016)

Lymphoedema Support Network

This leaflet has general information about lymphoedema, including the causes, diagnosis, and management, and precautions to decrease the risk of infection. It also lists the aims and objectives of the Lymphoedema Support Network.

Cover image of 'In gratitude'

In gratitude (2016)

Bloomsbury Publishing

The future flashed before my eyes in all its pre-ordained banality. Embarrassment, at first, to the exclusion of all other feelings. But embarrassment curled at the edges with a weariness. I got a joke in. 'So - we'd better get cooking the meth,' I said to the Poet. In August 2014, Jenny Diski was diagnosed with inoperable lung cancer and given 'two or three years' to live. She didn't know how to react. All responses felt scripted, laden with cliché. Being a writer, she decided to write about it (grappling with the unoriginality even of this), and also to tell a story she has not yet told: that of being taken in, aged fifteen, by the author Doris Lessing, and the subsequent fifty years of their complex relationship. In September 2014 Jenny Diski began writing in the London Review of Books, describing her experience of living with terminal cancer, examining her life and history with Doris Lessing: the fairy-tale rescue from 'the bin' as a teenager, the difficulties of being absorbed into an unfamiliar family and the influence this had on her. Swooping from one memory to the next - alighting on the hysterical battlefield of her parental home, her expulsion from school, stacking shelves in Banbury and the drug-taking twenty-something in and out of psychiatric hospitals, Diski paints a portrait of two extraordinary writers - Lessing and herself. From one of our most original voices comes a book like no other: a cerebral, witty, dazzlingly candid masterpiece about an uneasy relationship; about memory and writing, ingratitude and anger; about living with illness and facing death. (Publisher)

Cover image of 'The use of kinesio tape in lymphoedema management'

The use of kinesio tape in lymphoedema management (August 2016)

Lymphoedema Support Network

Kinesio Tape is a specialised form of adhesive tape that has been used to treat soft tissue and sporting injuries but is now being used to manage lymphoedema. This leaflet describes how it works and who can benefit and addresses concerns such as allergic reaction, water resistance, and how long to wear it.

Cover image of 'What is cellulitis?'

What is cellulitis? (December 2016)

Lymphoedema Support Network

This leaflet describes cellulitis, what causes it, why it occurs in lymphoedema, how to recognise the symptoms, what to do if it develops, what to do after an attack, and how to prevent it.

Cover image of 'Reducing the risk of lower limb lymphoedema'

Reducing the risk of lower limb lymphoedema (August 2016)

Lymphoedema Support Network

This leaflet explains why lymphoedema occurs, who may be at risk, how to recognise the symptoms, how to reduce the risk, what to do if symptoms develop, and what to expect from a lymphoedema clinic.

Cover image of 'Management of cellulitis in lymphoedema'

Management of cellulitis in lymphoedema (December 2016)

Lymphoedema Support Network

A resource for people with lymphoedema to share with their general practitioner or medical team so that cellulitis can be appropriately and promptly treated. It describes what cellulitis is, the features of cellulitis in lymphoedema, the management of cellulitis at home and in hospital, and recurrent cellulitis.

Cover image of 'Holidays and travel for people with lymphoedema'

Holidays and travel for people with lymphoedema (August 2016)

Lymphoedema Support Network

A leaflet with advice on travelling with lymphoedema.

Cover image of 'Manual lymphatic drainage for people with lymphoedema'

Manual lymphatic drainage for people with lymphoedema (October 2016)

Lymphoedema Support Network

This leaflet explains what manual lymphatic drainage is, who can benefit, and how to arrange treatment.

Cover image of 'Lung cancer'

Lung cancer (April 2015)

Cancer Focus Northern Ireland

Lists the risk factors for and the signs and symptoms of lung cancer and describes what to expect when visiting the GP. Also has information about how the Cancer Focus Northern Ireland can help.

Cover image of 'Diet and nutrition for pancreatic cancer'

Diet and nutrition for pancreatic cancer (June 2015)

Pancreatic Cancer Action

This booklet for patients and carers contains information about how pancreatic cancer can affect diet and nutrition. It covers managing dietary symptoms such as poor appetite, weight loss and diarrhoea, dietary supplements and diabetes and diet. Contains dietary advice for patients undergoing surgery and for patients undergoing treatments such as chemotherapy.

Cover image of 'A guide to prostate cancer clinical trials'

A guide to prostate cancer clinical trials (November 2015)

Prostate Cancer UK

This factsheet describes the different types of clinical trials and what taking part involves.

Cover image of 'Managing lung cancer symptoms'

Managing lung cancer symptoms (March 2015)

Roy Castle Lung Cancer Foundation

This booklet describes the possible symptoms that may experienced when living with lung cancer and how to cope with them.

Cover image of '1 in 3 women who get breast cancer are over 70, so don’t assume you’re past it'

1 in 3 women who get breast cancer are over 70, so don’t assume you’re past it (2015)

Department of Health

Leaflet aimed at encouraging women over 70 to check their breasts regularly and to go to the doctor as soon as they notice any change.

Cover image of 'Breast cancer: risk factors'

Breast cancer: risk factors (December 2015)

Women's Health Concern

This factsheet describes the factors that have been associated with an increased risk of breast cancer, including age; family history, endogenous and exogenous hormones, smoking, diet, reproductive history, and body weight and physical activity.

Cover image of 'Is myeloma an inherited cancer?'

Is myeloma an inherited cancer? (May 2015)

Myeloma UK

This factsheet briefly explains the risk of inherited myeloma, the results of research, and the possibility of screening.

Cover image of 'Aftercure. A guide for teenage and young adult survivors of cancer'

Aftercure. A guide for teenage and young adult survivors of cancer (March 2015)

Children's Cancer and Leukaemia Group

This illustrated booklet has been written for young adults (16+) who have survived cancer. Please note: this booklet was reviewed in March 2017 but no changes were made so versions dated 2015 are still current.

Cover image of 'How to check your skin for skin cancer'

How to check your skin for skin cancer (November 2015)

Wessex Cancer Trust

This illustrated leaflet has been designed to help people who have had a basal cell carcinoma, squamous cell carcinoma or melanoma to check their skin for changes.

Cover image of 'Radiotherapy. A guide for teenagers and young people who are undergoing radiotherapy treatment for cancer'

Radiotherapy. A guide for teenagers and young people who are undergoing radiotherapy treatment for cancer (September 2015)

Children's Cancer and Leukaemia Group

This leaflet explains what radiotherapy is, why it is being used, how it works, the possible side effects, and what happens during the planning appointment and during treatment. Includes a glossary of medical terms.

Cover image of 'Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer'

Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer (April 2015)

Children's Cancer and Leukaemia Group

Illustrated booklet for teachers with a child or young person in their class who has been diagnosed with cancer. It provides background information about cancer, the common cancers that affect children and young people, and the type of treatments used. It also contains information on useful organisations and reading materials.

Cover image of 'Living with lung cancer'

Living with lung cancer (March 2015)

Roy Castle Lung Cancer Foundation

This booklet has been written for people who have just been diagnosed with lung cancer to help answer the questions they may have.

Cover image of 'Treating metastases. Advanced bowel cancer'

Treating metastases. Advanced bowel cancer (November 2015)

Beating Bowel Cancer

This booklet provides information for people whose bowel cancer has spread. 

Cover image of 'Chemotherapy, cakes and cancer. An A-Z survival guide for living with childhood cancer'

Chemotherapy, cakes and cancer. An A-Z survival guide for living with childhood cancer (February 2015)

CLIC Sargent

The author was diagnosed with osteosarcoma when she was 12. She wrote this booklet two years later when she had finished treatment because there was nothing for people her age about what it was like to be in hospital and how to handle it. There are tips for surviving long stays in hospital and keeping positive, and explanations of medical terms.

Cover image of 'Active surveillance as a management for early prostate cancer'

Active surveillance as a management for early prostate cancer (August 2015)

Prostate Scotland

A leaflet to help men decide if active surveillance is right for them.

Cover image of 'Ovarian cancer. How to spot the symptoms and reduce your risk'

Ovarian cancer. How to spot the symptoms and reduce your risk (October 2015)

Cancer Research UK

This leaflet has information about the symptoms of ovarian cancer and who is most at risk of developing it.

Cover image of 'Oesophageal (food pipe or gullet) cancer. How to spot the symptoms and reduce your risk'

Oesophageal (food pipe or gullet) cancer. How to spot the symptoms and reduce your risk (October 2015)

Cancer Research UK

This leaflet has information about how to reduce the risk of cancer of the gullet and the symptoms to look out for.

Cover image of 'Diagnosing ovarian cancer. What you need to know'

Diagnosing ovarian cancer. What you need to know (March 2015)

Ovarian Cancer Action

This leaflet describes how ovarian cancer is diagnosed.

Cover image of 'Your guide to cervical screening (smear test)'

Your guide to cervical screening (smear test) (June 2015)

Jo's Cervical Cancer Trust

Every day eight women are diagnosed with cervical cancer and three die from the disease. Yet cervical cancer is largely preventable thanks to the NHS cervical screening programme and HPV vaccination programme. In the UK 22% of UK women do not attend their cervical screening (smear test) invitation. This short film aims to give you more information about smear tests: what the test is for and what will happen during the test. It also has information on Human Papillomavirus (HPV), a virus which is the main cause of cervical cancer and cervical abnormalities. The DVD (£5.00) includes versions in Arabic, Bengali Standard, Bengali Sylheti, Chinese, Hindi, Polish, Tamil, and Urdu. You can also watch all versions online.

Cover image of 'End of life: a guide. A booklet for people in the final stages of life, and their carers [Audio CD]'

End of life: a guide. A booklet for people in the final stages of life, and their carers [Audio CD] (2015)

Macmillan Cancer Support

This audiobook explains what happens at the end of life and how to plan for it. It gives information about issues such as choosing where to be looked after, sorting out unfinished business, getting financial help, who can help if you’re being cared for at home and what to expect in the last few days of life. It also includes information for your relatives and close friends who may be involved in your care. 

Cover image of 'Treating ovarian cancer. What you need to know'

Treating ovarian cancer. What you need to know (March 2015)

Ovarian Cancer Action

This leaflet focuses on the treatment options for ovarian cancer.

Cover image of 'Ovarian cancer. What do you need to know'

Ovarian cancer. What do you need to know (March 2015)

Ovarian Cancer Action

Information about ovarian cancer as follows: Your body and your ovaries; What is ovarian cancer?; Not one disease, but many; The stages of ovarian cancer; How quickly does ovarian cancer spread?; What's my risk of developing ovarian cancer?; Symptoms to look out for; Could my symptoms be caused by anything else?; What should I do if I'm worried about my symptoms?; How to talk to your GO about your concerns; Where to find more information.

Cover image of 'Nutritional products. Availability of nutritional drinks, powders and puddings'

Nutritional products. Availability of nutritional drinks, powders and puddings (November 2015)

Christie Hospital NHS Trust

Designed by dieticians for people with eating difficulties, this booklet describes the supplements available, those that are most suitable, and how each product can be used. Indicates those that are approved for kosher or halal diets.

Cover image of 'Understanding bone sarcoma'

Understanding bone sarcoma (August 2015)

Sarcoma UK

This booklet is aimed at anyone who has been diagnosed with a bone sarcoma. It explains what bone sarcoma is, how it is diagnosed and the treatment options available. It also has information on where to go for support. There is space to keep diagnosis information, details of hospital appointments and contact details of health professionals.

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