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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1742

Cover image of 'Caring for a person with a stoma and dementia'

Caring for a person with a stoma and dementia (December 2017)

Colostomy UK

Teaching a person with dementia how to care for their stoma is not possible in all cases, but where it is possible, attempts should be made to encourage them. The level of independence achievable will vary. A person with dementia may benefit from extra time and repetition of the tips in this booklet, which were suggested by healthcare professionals who have been actively involved in the care of ostomates with dementia.

Cover image of 'Breast care and self examination'

Breast care and self examination (December 2017)

Women's Health Concern

This factsheet has been designed to help women understand more about their breasts and describes regular self-examination, the breast awareness five point code, breast pain, and nipple changes. It also has brief information on breast lumps, breast cancer, and breast screening.

Cover image of 'Large granular lymphocytic leukaemia'

Large granular lymphocytic leukaemia (July 2017)

Bloodwise

Large granular lymphocytic leukaemia (LGLL) is a type of blood cancer and a rare form of leukaemia. This factsheet describes the causes, risk factors, diagnosis and treatment. 

Cover image of 'CA125 blood test'

CA125 blood test (June 2017)

Target Ovarian Cancer

This factsheet describes the CA125 blood test: what it is; why it is being carried out; what the results mean.

Cover image of 'Monoclonal gammopathy of unknown significance (MGUS)'

Monoclonal gammopathy of unknown significance (MGUS) (July 2017)

Bloodwise

Monoclonal gammopathy of undetermined significance (MGUS) is a condition that occurs when your plasma cells develop in an unusual way in your bone marrow. MGUS itself is generally a harmless blood condition, however a small number of people with MGUS go on to develop blood cancer. 

Cover image of 'Bowel health and screening: carers guide. A booklet for carers of people who use easy read materials [Scotland]'

Bowel health and screening: carers guide. A booklet for carers of people who use easy read materials [Scotland] (November 2017)

Bowel Cancer UK

Carers can play an important role in helping people make the best choices about their health. This booklet will help you talk with the person or people you support, about keeping their bowel healthy and getting their bowel checked. 

Cover image of 'Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis'

Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis (2017)

Johns Hopkins University Press

The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)

Cover image of 'Bowel health and the bowel screening test in Scotland [Easy read]'

Bowel health and the bowel screening test in Scotland [Easy read] (November 2017)

Bowel Cancer UK

An easy read booklet on bowel health and the bowel test kit in Scotland.

Cover image of 'Understanding chronic myeloid leukaemia'

Understanding chronic myeloid leukaemia (July 2017)

Macmillan Cancer Support

This booklet has detailed information about chronic myeloid leukaemia, its symptoms, diagnosis, and treatments. It also covers issues such as fertility and feelings, and includes details of useful organisations, and websites.

Cover image of 'Hug everyone you know: a year of community, courage, and cancer'

Hug everyone you know: a year of community, courage, and cancer (2017)

She Writes Press

Antoinette Martin believed herself to be a healthy and sturdy woman--that is, until she received a Stage 1 breast cancer diagnosis. Cancer is scary enough for the brave, but for a wimp like Martin, it was downright terrifying. Martin had to swallow waves of nausea at the thought of her body being poisoned, and frequently fainted during blood draws and infusions. To add to her terror, cancer suddenly seemed to be all around her. In the months following her diagnosis, a colleague succumbed to cancer, and five of her friends were also diagnosed. Though tempted, Martin knew she could not hide in bed for ten months. She had a devoted husband, daughters, and a tribe of friends and relations. Along with work responsibilities, there were graduations, anniversaries, and roller derby bouts to attend, not to mention a house to sell and a summer of beach-bumming to enjoy. In order to harness support without scaring herself or anyone else, she journaled her experiences and began to e-mail the people who loved her--the people she called My Everyone. She kept them informed and reminded all to 'hug everyone you know' at every opportunity. Reading the responses became her calming strategy. Ultimately, with the help of her community, Martin found the courage within herself to face cancer with perseverance and humor. (Publisher)

Cover image of 'Interferon alpha [Arabic]'

Interferon alpha [Arabic] (March 2017)

Macmillan Cancer Support

Interferon alpha is a biological therapy that may be used to treat kidney cancer, melanoma, carcinoid tumours, and some types of lymphoma and leukaemia. This factsheet describes how it works, how it is given, and some of the possible side-effects. Includes the English-language version.

Cover image of 'Tommy v cancer.  One man's battle against the big C'

Tommy v cancer. One man's battle against the big C (2017)

Independently published

On Thursday, 10th of March 2016, I returned home from a hospital appointment and broke the news to my wife and children. I had throat cancer. Stage four. Inoperable. Desperately needing some way to make sense of my situation, I set up a blog to chart my battle against the disease. I hoped it would allow me to understand more about this thing inside me, and what I would have to go through in terms of treatment to try to eradicate it. I also thought it might help other people who found themselves in similar circumstances. I made a promise to my readers to be open and honest all the way. I wouldn't hold anything back, no matter how unpleasant. Now, over a year later, I have adapted that blog into this book. It details my journey from when I first realised that something was wrong, through the intense courses of chemotherapy and radiotherapy, to where I am today. To say that journey was difficult is a vast understatement. The side effects of my treatment utterly kicked my arse, causing me to lose over half my bodyweight and fall seriously ill with double pneumonia and sepsis. Totally unresponsive, I was rushed into intensive care where the doctors told my family that, if they couldn't stabilise me, I had approximately two hours left to live. One option was to put me into a medically induced coma, although the chances were high that I would never emerge from it. Imagine someone telling you that about your loved one as they lie there, unconscious and struggling to breathe. Cancer is an invader that affects more than just the patient. Everyone suffers - spouses, siblings, children, extended family, friends. Even, as I was to discover, strangers from all over the world. I was overwhelmed with the love and kindness of almost everyone who contacted me, but I also suffered terrible abuse at the hands of online trolls. I should warn you that parts of this book do not make for easy reading. I kept my promise to be honest, and wrote many of the blog entries when I was depressed and scared, certain I wouldn't live to see another dawn. I convinced myself that I would quickly perish, leaving my wife and two sons - then aged 9 and 17 - alone, and with no-one to protect them or provide for them. I wouldn't get to see them grow up, develop into young men, and eventually have children of their own. The prospect terrified me. For those of you who followed my blog and read the posts as I uploaded them, you haven't seen everything. This book c

Cover image of 'Capecitabine (Xeloda®) [Polish]'

Capecitabine (Xeloda®) [Polish] (June 2017)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and describes some of the possible side-effects.

Cover image of 'Capecitabine (Xeloda®) [Turkish]'

Capecitabine (Xeloda®) [Turkish] (June 2017)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and describes some of the possible side-effects.

Cover image of 'Paclitaxel [French]'

Paclitaxel [French] (October 2017)

Macmillan Cancer Support

Paclitaxel is most commonly used to treat breast, ovarian and non-small-cell lung cancer. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Capecitabine (Xeloda®) [Urdu]'

Capecitabine (Xeloda®) [Urdu] (June 2017)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and describes some of the possible side-effects.

Cover image of 'Paclitaxel [Arabic]'

Paclitaxel [Arabic] (October 2017)

Macmillan Cancer Support

Paclitaxel is most commonly used to treat breast, ovarian and non-small-cell lung cancer. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Denosumab (Xgeva ®, Prolia ®) [Polish]'

Denosumab (Xgeva ®, Prolia ®) [Polish] (July 2017)

Macmillan Cancer Support

Denosumab is a targeted therapy used to treat secondary bone cancer. It is also given to people with certain cancers (breast cancer, prostate cancer) to strengthen their bones. This factsheet describes what denosumab is, how it works, how it is given, and the possible side effects.

Cover image of 'Capecitabine (Xeloda®) [Russian]'

Capecitabine (Xeloda®) [Russian] (June 2017)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and describes some of the possible side-effects.

Cover image of 'Cisplatin [Russian]'

Cisplatin [Russian] (October 2017)

Macmillan Cancer Support

Cisplatin is a chemotherapy drug used to treat testicular, ovarian, bladder, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects. 

Cover image of 'BEAM chemotherapy [Punjabi]'

BEAM chemotherapy [Punjabi] (November 2017)

Macmillan Cancer Support

This information from the Macmillan Cancer Support website has been translated into Punjabi. BEAM is a combination chemotherapy treatment used to treat Hodgkin lymphoma and non-Hodgkin lymphoma. It is given before a stem cell transplant. It may also be used to treat other cancers. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'Temozolomide (Temodal®) [Thai]'

Temozolomide (Temodal®) [Thai] (October 2017)

Macmillan Cancer Support

Information from the Macmillan Cancer Support website translated into Thai. Temozolomide is a chemotherapy drug used to treat gliomas. It can also be used to treat anaplastic astrocytoma in young people. It describes temozolomide, how it is given and the possible side effects.

Cover image of 'Rituximab [Bulgarian]'

Rituximab [Bulgarian] (June 2017)

Macmillan Cancer Support

This information from the Macmillan Cancer Support website has been translated into Bulgarian. Rituximab is a targeted therapy drug used to treat non-Hodgkin lymphoma (NHL) and chronic lymphocytic leukaemia (CLL). This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'Vinorelbine and cisplatin chemotherapy [Traditional Chinese]'

Vinorelbine and cisplatin chemotherapy [Traditional Chinese] (November 2017)

Macmillan Cancer Support

Vinorelbine and cisplatin may be used to treat non-small-cell lung cancer. This factsheet describes what it is, how the drugs are given and the possible side-effects.

Cover image of 'Interferon alpha (IntronA®, Roferon-A®) [French]'

Interferon alpha (IntronA®, Roferon-A®) [French] (February 2017)

Macmillan Cancer Support

Interferon alpha is a biological therapy that may be used to treat kidney cancer, melanoma, carcinoid tumours, and some types of lymphoma and leukaemia. This factsheet describes how it works, how it is given, and some of the possible side-effects.

Cover image of 'Pazopanib (Votrient®) [Slovak]'

Pazopanib (Votrient®) [Slovak] (June 2017)

Macmillan Cancer Support

Pazopanib is a targeted therapy drug used to treat a type of kidney cancer called renal cell carcinoma. It can also treat some soft tissue sarcomas. This factsheet describes how it works, how it is given, and the possible side-effects.

Cover image of 'Trastuzumab (Herceptin®) [Portuguese]'

Trastuzumab (Herceptin®) [Portuguese] (May 2017)

Macmillan Cancer Support

Trastuzumab (Herceptin®) may be used to treat breast cancer and stomach cancer. It may also be used to treat other cancers as part of a research trial. This factsheet explains how it works, how it is given, and possible side-effects.

Cover image of 'Paclitaxel [Portuguese]'

Paclitaxel [Portuguese] (October 2017)

Macmillan Cancer Support

Paclitaxel is most commonly used to treat breast, ovarian and non-small-cell lung cancer. This factsheet describes how it is given and the possible side-effects.

Cover image of 'FEC chemotherapy [Portuguese]'

FEC chemotherapy [Portuguese] (September 2017)

Macmillan Cancer Support

FEC is a combination chemotherapy treatment for breast cancer. This factsheet describes the drugs, how they are given and some of the possible side-effects.

Cover image of 'Ipilimumab [Bulgarian]'

Ipilimumab [Bulgarian] (March 2017)

Macmillan Cancer Support

Ipilimumab is a targeted therapy drug used to treat advanced melanoma. This describes how it works, how it is given, and some of the possible side-effects.

Cover image of 'Imatinib [Czech]'

Imatinib [Czech] (2017)

Macmillan Cancer Support

Imatinib is a cancer growth inhibitor. This factsheet describes how it works, how it is given, and possible side-effects.

Cover image of 'FEC-T chemotherapy [Romanian]'

FEC-T chemotherapy [Romanian] (September 2017)

Macmillan Cancer Support

This information describes the FEC-T chemotherapy regimen, which is used to treat breast cancer. It describes the drugs used, how treatment is given, and some of the possible side-effects.

Cover image of 'Understanding Hodgkin lymphoma [Polish]'

Understanding Hodgkin lymphoma [Polish] (2017)

Macmillan Cancer Support

A translation of the pages on chemotherapy from the Macmillan Cancer Support booklet “Understanding Hodgkin lymphoma”.

Cover image of 'Gemcitabine (Gemzar®) [Bulgarian]'

Gemcitabine (Gemzar®) [Bulgarian] (September 2017)

Macmillan Cancer Support

Gemcitabine is most commonly used to treat non-small-cell lung cancer, pancreatic, bladder and breast cancer. This factsheet describes how it is given and the possible side-effects.

Cover image of 'FEC-T chemotherapy [Polish]'

FEC-T chemotherapy [Polish] (2017)

Macmillan Cancer Support

This information describes the FEC-T chemotherapy regimen, which is used to treat breast cancer. It describes the drugs used, how treatment is given, and some of the possible side-effects.

Cover image of 'FEC chemotherapy [Arabic]'

FEC chemotherapy [Arabic] (2017)

Macmillan Cancer Support

FEC is a combination chemotherapy treatment for breast cancer. This factsheet describes the drugs, how they are given and some of the possible side-effects.

Cover image of 'Sorafenib (Nexavar®) [Arabic]'

Sorafenib (Nexavar®) [Arabic] (March 2017)

Macmillan Cancer Support

Sorafenib is a multi-targeted kinase inhibitor that is used to treat people with kidney, liver, or differentiated thyroid cancer. This factsheet describes how it works, how it is given, and the possible side-effects. Includes the English-language version.

Cover image of 'Paclitaxel and carboplatin (Taxol/Carbo) chemotherapy [Polish]'

Paclitaxel and carboplatin (Taxol/Carbo) chemotherapy [Polish] (2017)

Macmillan Cancer Support

Paclitaxel (Taxol®) and carboplatin is a combination chemotherapy regime used to treat cancer of the ovary and cancer of the lung. This factsheet describes the drugs, how they are given and the possible side-effects.

Cover image of 'The building-up diet [Russian]'

The building-up diet [Russian] (August 2017)

Macmillan Cancer Support

A translation of selected pages from Macmillan Cancer Support’s booklet “The building up diet”.

Cover image of 'How to check your lymph nodes'

How to check your lymph nodes (November 2017)

British Association of Dermatologists

This factsheet aims to help you to understand more about checking your lymph nodes yourself. It explains what lymph nodes are, why you should check them, how often you should perform a check, and how to check them.

Cover image of 'Lucy has a tumour [Welsh]'

Lucy has a tumour [Welsh] (March 2017)

CLIC Sargent

Lucy is five years old when she is diagnosed with cancer. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Lucy from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'Coping with hair loss'

Coping with hair loss (August 2017)

Macmillan Cancer Support

This booklet is about hair loss. It is for anyone coping with changes to their hair during and after cancer treatment. It explains how cancer treatment may affect your hair, how to prepare for and cope with hair loss, and what to expect after treatment finishes.

Cover image of 'Understanding donor stem cell (allogeneic) transplants'

Understanding donor stem cell (allogeneic) transplants (February 2017)

Macmillan Cancer Support

This booklet has information about allogeneic (donor) stem cell transplants, which may be used to treat lymphoma, leukaemia, or myeloma. It describes what they are, why they are used, the treatment steps, preparing for treatment, collecting stem cells, the side-effects, and life after treatment. Includes details of other useful organisations and resources.

Cover image of 'Answering your questions about your friend's illness. Factsheet for children and young people'

Answering your questions about your friend's illness. Factsheet for children and young people (November 2017)

CLIC Sargent

This factsheet for children and young people aged 13 and over who have a friend with cancer addresses common concerns about cancer and its treatment. Now included in the "Cancer and school life" pack and can be downloaded as part of the pack.

Cover image of '#dearcancer: Things to help you through [Kindle]'

#dearcancer: Things to help you through [Kindle] (2017)

Trapeze (Orion)

When journalist and broadcaster Victoria Derbyshire was diagnosed with breast cancer in 2015, she made the decision to share her experiences in a series of video diaries to help demystify cancer treatment. Overwhelmed by the response, Victoria set up a Facebook page inviting people to share their tories, talk openly about cancer and support one another. The result is this collection of writing from cancer patients and their loved ones. Whether you have recently been diagnosed with cancer, or a friend or relative has, everyone who has contributed to this ebook has been through the same journey, and hopes you will take strength from these 'things to help you through'. From practical tips on managing your treatment and your everyday life with cancer, to advice on understanding and dealing with the emotional rollercoaster that begins with diagnosis, this free resource is packed with hard-won wisdom and insight, at once useful and poignant. This exclusive collection is published ahead of Victoria Derbyshire's book, Dear Cancer, Love Victoria: A Mum's Diary of Hope. (Publisher)

Cover image of 'Understanding high-dose treatment with stem cell support'

Understanding high-dose treatment with stem cell support (April 2017)

Macmillan Cancer Support

This booklet has information about high-dose treatment with stem cell support, which may be used to treat different cancers, including myeloma, lymphoma, and some types of leukaemia. It can also be used as a treatment for other cancers, such as teratoma. It describes what it is, why it is used, the treatment steps, preparing for treatment, collecting stem cells, the side-effects, and life after treatment. Includes details of other useful organisations and resources. 

Cover image of 'Bone health'

Bone health (May 2017)

Macmillan Cancer Support

This booklet describes why bone health is important, the factors that affect the bones (including cancer treatments) and has guidance on how to maintain bone health (diet, physical activity). It also covers treatments, such as bisphosphonates. It does not cover problems related to primary or secondary bone cancer.

Cover image of 'Understanding Hodgkin lymphoma'

Understanding Hodgkin lymphoma (December 2017)

Macmillan Cancer Support

This booklet explains what Hodgkin lymphoma is, and provides information on symptoms, diagnosis, the stages, and treatment options. It also covers issues such as fertility, feelings, and practical and financial support. 

Cover image of 'Holistic needs assessment. Planning your care and support'

Holistic needs assessment. Planning your care and support (May 2017)

Macmillan Cancer Support

This booklet explains what assessment and care planning is and describes what to expect from the appointment, where and when the appointment may take place, and how to prepare for the appointment.

Cover image of 'Ten top tips for a healthy weight'

Ten top tips for a healthy weight (July 2017)

Cancer Research UK

Tips, based on scientific evidence, to help people control their weight by taking in fewer calories and using more energy. 

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