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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1770

Cover image of 'Your urgent referral explained [Welsh]'

Your urgent referral explained [Welsh] (March 2017)

Cancer Research UK

This leaflet helps patients who have been urgently referred with suspected cancer to prepare for their appointments and tests. 

Cover image of 'Sorting out your financial affairs'

Sorting out your financial affairs (June 2017)

Macmillan Cancer Support

This booklet will help people affected by cancer to plan for a time when they may not be able to manage their own financial affairs. 

Cover image of 'Coping with hair loss'

Coping with hair loss (August 2017)

Macmillan Cancer Support

This booklet is about hair loss. It is for anyone coping with changes to their hair during and after cancer treatment. It explains how cancer treatment may affect your hair, how to prepare for and cope with hair loss, and what to expect after treatment finishes.

Cover image of 'Understanding donor stem cell (allogeneic) transplants'

Understanding donor stem cell (allogeneic) transplants (February 2017)

Macmillan Cancer Support

This booklet has information about allogeneic (donor) stem cell transplants, which may be used to treat lymphoma, leukaemia, or myeloma. It describes what they are, why they are used, the treatment steps, preparing for treatment, collecting stem cells, the side-effects, and life after treatment. Includes details of other useful organisations and resources.

Cover image of 'What now? A practical guide for parents and carers'

What now? A practical guide for parents and carers (February 2017)

CLIC Sargent

A booklet for parents of children diagnosed with cancer.

Cover image of '#dearcancer: Things to help you through [Kindle]'

#dearcancer: Things to help you through [Kindle] (2017)

Trapeze

When journalist and broadcaster Victoria Derbyshire was diagnosed with breast cancer in 2015, she made the decision to share her experiences in a series of video diaries to help demystify cancer treatment. Overwhelmed by the response, Victoria set up a Facebook page inviting people to share their tories, talk openly about cancer and support one another. The result is this collection of writing from cancer patients and their loved ones. Whether you have recently been diagnosed with cancer, or a friend or relative has, everyone who has contributed to this ebook has been through the same journey, and hopes you will take strength from these 'things to help you through'. From practical tips on managing your treatment and your everyday life with cancer, to advice on understanding and dealing with the emotional rollercoaster that begins with diagnosis, this free resource is packed with hard-won wisdom and insight, at once useful and poignant. This exclusive collection is published ahead of Victoria Derbyshire's book, Dear Cancer, Love Victoria: A Mum's Diary of Hope. (Publisher)

Cover image of 'Understanding high-dose treatment with stem cell support'

Understanding high-dose treatment with stem cell support (April 2017)

Macmillan Cancer Support

This booklet has information about high-dose treatment with stem cell support, which may be used to treat different cancers, including myeloma, lymphoma, and some types of leukaemia. It can also be used as a treatment for other cancers, such as teratoma. It describes what it is, why it is used, the treatment steps, preparing for treatment, collecting stem cells, the side-effects, and life after treatment. Includes details of other useful organisations and resources. 

Cover image of 'Bowel health and screening: carers guide. A booklet for carers of people who use easy read materials [Scotland]'

Bowel health and screening: carers guide. A booklet for carers of people who use easy read materials [Scotland] (November 2017)

Bowel Cancer UK

Carers can play an important role in helping people make the best choices about their health. This booklet will help you talk with the person or people you support, about keeping their bowel healthy and getting their bowel checked. 

Cover image of 'Personal Independence Payment (PIP)'

Personal Independence Payment (PIP) (July 2017)

CLIC Sargent

Guidance on the Personal Independence Payment (PIP) for young people over 16 who have cancer.

Cover image of 'Bone health'

Bone health (May 2017)

Macmillan Cancer Support

This booklet describes why bone health is important, the factors that affect the bones (including cancer treatments) and has guidance on how to maintain bone health (diet, physical activity). It also covers treatments, such as bisphosphonates. It does not cover problems related to primary or secondary bone cancer.

Cover image of 'Holistic needs assessment. Planning your care and support'

Holistic needs assessment. Planning your care and support (May 2017)

Macmillan Cancer Support

This booklet explains what assessment and care planning is and describes what to expect from the appointment, where and when the appointment may take place, and how to prepare for the appointment.

Cover image of 'Bowel health and the bowel screening test in Scotland [Easy read]'

Bowel health and the bowel screening test in Scotland [Easy read] (November 2017)

Bowel Cancer UK

An easy read booklet on bowel health and the bowel test kit in Scotland.

Cover image of 'Ten top tips for a healthy weight'

Ten top tips for a healthy weight (July 2017)

Cancer Research UK

Tips, based on scientific evidence, to help people control their weight by taking in fewer calories and using more energy. 

Cover image of 'The building-up diet'

The building-up diet (August 2017)

Macmillan Cancer Support

Many people find it difficult to eat enough to maintain their weight during and after treatment for cancer. This booklet has suggestions on how to help boost energy and protein levels when appetite is poor. It explains healthy eating and includes sample menus and a suggested shopping list of items to stock up on.

Cover image of 'Universal credit'

Universal credit (July 2017)

CLIC Sargent

Guidance on Universal Credit for young people who have cancer.

Cover image of 'Employment and Support Allowance (ESA)'

Employment and Support Allowance (ESA) (July 2017)

CLIC Sargent

Guidance on claiming Employment Support Allowance for young people over 16 who have cancer.

Cover image of 'Disability Living Allowance (DLA)'

Disability Living Allowance (DLA) (July 2017)

CLIC Sargent

Guidance on claiming Disability Living Allowance for children under 16 who have cancer.

Cover image of 'Lucy has a tumour'

Lucy has a tumour (September 2017)

CLIC Sargent

Lucy is five years old when she is diagnosed with cancer. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Lucy from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'How to do the bowel screening test'

How to do the bowel screening test (January 2017)

Cancer Research UK

A short factsheet containing simple instructions and helpful hints on how to use a bowel screening kit. 

Cover image of 'Central venous access devices. A guide for patients receiving intravenous therapies'

Central venous access devices. A guide for patients receiving intravenous therapies (January 2017)

The Royal Marsden NHS Foundation Trust

This booklet explains what a central venous access device (CVAD) is and describes the advantages and disadvantages of the different types, namely peripherally inserted central catheters (PICCs); skin-tunnelled catheters; and implanted ports.

Cover image of 'Breast implants and breast screening'

Breast implants and breast screening (November 2017)

Public Health England

Guidance for women with breast implants who are having a mammogram.

Cover image of 'Radiotherapy. Your questions answered'

Radiotherapy. Your questions answered (June 2017)

The Royal Marsden NHS Foundation Trust

This booklet describes what radiotherapy is, how it works, the benefits and risks, how treatment is planned, and what happens during treatment. It also discusses the possible side-effects, how people feel during treatment, and what happens after treatment is finished.

Cover image of 'Chemotherapy. Your questions answered'

Chemotherapy. Your questions answered (November 2017)

The Royal Marsden NHS Foundation Trust

This booklet describes what chemotherapy is, how it works, how treatment is planned and carried out, and possible side-effects; for example, anaemia, infection, appetite changes, nausea, skin changes, hair loss, and fertility problems. It also briefly discusses issues such as emotional well-being and fatigue. Includes further sources of information and support.

Cover image of 'Bowel scope screening. An easy guide'

Bowel scope screening. An easy guide (October 2017)

Public Health England

Easy read booklet about bowel scope screening.

Cover image of 'Let's stay safe in the sun'

Let's stay safe in the sun (April 2017)

Cancer Research UK

Information about how to enjoy being in the sun safely and reduce the risk of skin cancer.

Cover image of 'You can be smoke free'

You can be smoke free (April 2017)

Cancer Research UK

Information on smoking, including what it does to the body, what cigarettes contain, and giving up for good.

Cover image of 'Information for trans people. NHS Screening Programmes'

Information for trans people. NHS Screening Programmes (July 2017)

Public Health England

This leaflet is for trans (transgender) and non-binary people in England. It tells you about the adult NHS screening programmes that are available in England and explains who we invite for screening.

Cover image of 'Urinary infections in people with urinary diversions'

Urinary infections in people with urinary diversions (November 2017)

Urostomy Association

This leaflet explains why a urinary infection might occur following a urostomy, how to prevent an infection, and how to obtain a urine sample. It also briefly describes the symptoms and treatment and what happens in the case of recurrent infections.

Cover image of 'Active living'

Active living (November 2017)

Urostomy Association

Guidance on diet and physical activity (including swimming) following a urostomy.

Cover image of 'What is a urostomy?'

What is a urostomy? (November 2017)

Urostomy Association

Leaflet explaining what a urostomy is and why it is necessary. Includes information on the different pouches available.

Cover image of 'Travel information'

Travel information (November 2017)

Urostomy Association

This leaflet has information about travelling with a urostomy. It covers travel by car, train or by air, travel insurance, RADAR keys, 'No waiting' cards, and medical identification bracelets.

Cover image of 'How to handle later life'

How to handle later life (2017)

Amaranth Books

As the baby-boomers get their bus passes, old age is rising up the public agenda. Yet the media concentrate either on the spectacular achievements of nonagenarians or the horrors of elder abuse in rogue care homes. Most people would rather know what ageing will mean for them. While bookshops carry plenty of guides on childcare, no book explains comprehensively what ageing means and how to cope with its challenges. To fill this gap Marion Shoard has written a 1,160-page guide. The book is based partly on experience with her own parents and help she has given other older people, but primarily on extensive research into all aspects of the subject all over the UK. (Publishers)

Cover image of 'Mummy’s got a poorly'

Mummy’s got a poorly (2017)

Sarah West

Mummy’s Got a Poorly is an engaging, thought-provoking story, told through the eyes of a five-year-old girl whose mummy is unwell. It is aimed at the young children of parents with a serious illness to support them through a difficult time. Whilst not mentioning the ‘C’ word it does cover the effects that medicine such as chemotherapy can have and also provides lots of opportunities for children to ask questions and discuss their feelings about their own parent’s illness. (Publisher) 

Cover image of 'The bright hour. A memoir of living and dying'

The bright hour. A memoir of living and dying (2017)

The Text Publishing Company (UK) Ltd

In January 2015 Nina was diagnosed with breast cancer, and it metastasised later that year. She was thirty-eight years old; her mother had died only a few months earlier from multiple myeloma. Nina Riggs grew up in a contemplative family: her great-great-great-grandfather was Ralph Waldo Emerson, and she was raised to turn to his essays for 'guidance, inspiration, and something to push against'. THE BRIGHT HOUR is Nina's intimate, unflinching account of 'living with death in the room'. She tells her story in a series of absurd, poignant and often hilarious vignettes drawn from a life that has 'no real future or arc left to it, yet still goes on as if it does'. This unforgettable memoir leads the reader into the innermost chambers of the writer's life: into the mind and heart, the work and home and family, of a young woman alternately seeking to make peace with and raging against the reality of her approaching death. (Publisher)

Cover image of 'Well. A doctor's journey through fear to freedom'

Well. A doctor's journey through fear to freedom (2017)

Saraband

When Dr Mary Gunn was diagnosed with cancer, her first reaction was fear, and to fight the disease aggressively for the sake of not only herself but her young children and husband. But when it came back – and turned out to be incurable – she knew that she couldn’t live the rest of her life in fear. Mary embraced a new approach to life: to accept all the joy and sorrow, safety and danger, certainty and unpredictability… in essence, to live freely. In our uncertain times, when it’s difficult not to feel the fear, Dr Mary Gunn’s remarkable memoir offers mindfulness tools for resilience, and shows how we can all use acceptance, compassion and love to live courageously, magnificently. Backed up by many years of experience as both a doctor and a patient, her story will inspire you to let go of fear, love life and live well. (Publisher)

Cover image of 'Dolly daydreamer'

Dolly daydreamer (2017)

Austin Macauley

Rachel and Simon have been married for a long time. They are both parents and grandparents. They love Portugal, but life isn’t as perfect as it appears on the surface. Rachel had breast cancer and as time goes on, family circumstances threaten the very fabric of the family. Is their family unit strong enough to survive what the future has in store for Rachel, Simon and the rest of their family? (Publisher)

Cover image of 'Going on the turn. A memoir'

Going on the turn. A memoir (2017)

Weidenfeld and Nicholson

Danny Baker's third volume of memoirs barrels along at the same cracking pace as its predecessors, the bestselling Going to Sea in a Sieve (the inspiration for the major TV series Cradle to Grave and subsequent nationwide tour) and Going off Alarming. With his trademark exuberance, he recalls the years which included six years' involvement in the massive TV hit TFI Friday ('piling it up with hellzapoppin' ideas') - during which time he stalked John Cleese in New York, entertained David Bowie and Paul McCartney, bizarrely reunites with Sir Michael Caine, gets befriended by Peter O'Toole and becomes a member of Led Zeppelin for 35 minutes. However, the tales are not reliant on celebrity alone, and the book comes packed with the usual quota of Baker family jewels, including Spud's attitude to doctors, Danny's trip to Amsterdam to get stoned for the first time (he fails), getting caught up in football rioting, and the now infamous 'kaboom' of an outburst following his despatch from BBC London. And then there's the cancer. Spoiler alert: this is the one in which he almost dies. Further spoiler alert: he doesn't. (Publisher)

Cover image of 'The breast reconstruction guidebook'

The breast reconstruction guidebook (2017)

The Johns Hopkins University Press

For a decade The Breast Reconstruction Guidebook has been the best resource on this topic for women who have had a mastectomy. Equal parts science and support, it is filled with stories that illustrate the emotional and physical components of breast reconstruction. Readers will find advice about choosing a doctor and a procedure, insurance and payment issues, how to prepare for surgery, and what to expect during recovery. Expert commentary by physicians and insights from patients inform this book, as does the exhaustive research by the author, a two-time breast cancer survivor who has twice had reconstructive surgery. New in this edition are discussions of: the pros and cons of saline and silicone implants; solutions for post-lumpectomy cosmetic problems; new immediate-delayed reconstruction when post-mastectomy radiation may be required; the benefits and limitations of nipple-sparing mastectomy; considerations for direct-to-implant reconstruction; newly developed tissue flap procedures; who can best apply nipple and areola tattoos and why tattoos may not last; enriching fat with stem cells so it stays in the breast; patient-controlled tissue expansion; how insurance and health care reform affect reconstruction. (Publisher)

Cover image of 'The finch in my brain'

The finch in my brain (2017)

Hodder & Stoughton

When film producer Martino Sclavi began experiencing intense headaches, he attributed them to his frenetic lifestyle. As it turned out, he had grade 4 brain cancer and was given 18 months to live. After undergoing brain surgery - while awake - Martino found he had lost the ability to recognise words. His response was to close his eyes and begin to move his fingers across the keyboard to write this, an account of life before diagnosis and since. Defying all predictions Martino is still very much alive, words read out to him by the monotone of a computerised voice he calls Alex. But he must now live in a new way. This book - that he has written but cannot read - charts the effects of his experience: on his relationship with his young son, his marriage, his work and with himself. In the wake of his illness, everything must be reconfigured and Martino is made to question the habits, dreams and beliefs of his old life and confront the present. What he finds is strange and beautiful. Searching for the words between life and death, Sclavi shows that with determination and a subtle, persistent sense of humour, it is possible to change the story of our lives. (Publisher)

Cover image of 'The facts about HPV'

The facts about HPV (2017)

Jo's Cervical Cancer Trust

A short film about HPV to dispel some of the myths surrounding the virus. It is hoped that it will help more people understand what the virus is, who can get it, how it can affect them, and what they can do to best protect themselves from cervical cancer. 

Cover image of 'Hair everywhere'

Hair everywhere (2017)

Istros Books

Hair Everywhere is the story of one family and how they manage to cope when the mother is diagnosed with cancer. It is a delicate tale that balances itself between the generations, revealing their strengths and weaknesses in times of trouble. It is also a story about how roles within a family can change when things become challenging, due to sickness or death, allowing some to grow and others to fade. Ultimately, this is a book about life; full of humour and absurdity as well as sadness, and set against an everyday background where the ordinary takes on new significance and colour. Tea Tulic’s debut novel is a brave glance at the human condition. (Publisher)

Cover image of 'Having a bad hair day'

Having a bad hair day (2017)

Clare C Davison

“Tomorrow, you will feel a little bit better.” From a loving childhood, belonging to a large family with no history of breast cancer, Clare was alarmed at age 42 to accidentally discover she had the disease. As a self-employed single mum, Clare documents her memoirs of personal experience and knowledge of the cruel decisions made for the aggressive treatments and hair loss ahead. With an inner strength of humour, Clare’s first book includes her lunch arrangements with Peter Andre, a cake nationally released in her honour, an experience of public speaking, media attention and continued fundraising with a moving excerpt from her son. (Publisher)

Cover image of 'Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting'

Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with an ileal conduit (urostomy) in the event of problems such as urinary tract infections, bleeding, discharge, a hernia or sore skin.

Cover image of 'Expectations of care for patients with a continent urinary diversion (eg Mitrofanoff) in the primary care setting'

Expectations of care for patients with a continent urinary diversion (eg Mitrofanoff) in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a continent urinary diversion (Mitrofanoff) in the event of problems with pouch function, urinary tract infections, bleeding or discharge.

Cover image of 'Know your prostate. A quick guide'

Know your prostate. A quick guide (February 2017)

Prostate Cancer UK

Z-card with information from the booklet 'Know your prostate. A guide to common prostate problems'. It describes the prostate gland, the changes to look out for, benign prostatic hyperplasia, prostatitis and prostate cancer (what it is, the symptoms and the risk factors).

Cover image of 'Orthotopic/Neo-bladder/bladder reconstruction. An alternative to a urostomy'

Orthotopic/Neo-bladder/bladder reconstruction. An alternative to a urostomy (November 2017)

Urostomy Association

This leaflet describes bladder reconstruction as an alternative to a urostomy. It explains how the new bladder is made and how it works, and gives advice on preparing for surgery and life afterwards.

Cover image of 'Male sexual matters'

Male sexual matters (November 2017)

Urostomy Association

Advice and support for men who have concerns about sex and fertility following surgery for a urostomy.

Cover image of 'Female sexual matters and pregnancy'

Female sexual matters and pregnancy (November 2017)

Urostomy Association

After an operation to form a urostomy stoma, some women may have difficulties with their sexuality and sexual function. This leaflet covers topics such as sexual function, sexual relations, contraception, pregnancy, and childbirth.

Cover image of 'Understanding issues that may arise with a urostomy'

Understanding issues that may arise with a urostomy (November 2017)

Urostomy Association

This leaflet gives advice on the following problems: leaks, infection, mucus in the urine, hernias, stones, bleeding from the stoma and bleeding from the urethra. It also has tips on taking a urine sample, diet, night drainage systems, and travelling.

Cover image of 'Flying home. Helping patients to arrange international travel'

Flying home. Helping patients to arrange international travel (September 2017)

hospice information

This publication was originally written to help with arrangements for ‘final journeys’. However, much of the information also applies to those who would like to take a holiday when seriously ill.

Sorry, no publications found.
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