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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1822

Cover image of 'Metastatic spinal cord compression (MSCC)'

Metastatic spinal cord compression (MSCC) (February 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer that has spread to the bones. It explains what metastatic spinal cord compression is and describes the risk of developing it, the symptoms and the treatment options.

Cover image of 'Partial penectomy'

Partial penectomy (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the aftercare, including catheters, and possible complications of a partial penectomy 

Cover image of 'Protect yourself against bowel cancer'

Protect yourself against bowel cancer (2019)

World Cancer Research Fund

This leaflet explains who is at risk, how colorectal cancer is detected and diagnosed, and how to help reduce cancer risk. It also describes the symptoms to look out for and the national screening programme.

Cover image of 'Relaxation techniques. Evidence-based information to help you self-manage your cancer experience'

Relaxation techniques. Evidence-based information to help you self-manage your cancer experience (2019)

Penny Brohn UK

This evidence-based information sheet aims to provide clearly sourced and reliable information to help you make informed choices about the range of relaxation techniques on offer to support people with cancer. 

Cover image of 'Financial support - benefits [Chinese, Traditional]'

Financial support - benefits [Chinese, Traditional] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Acute lymphoblastic leukaemia (ALL) in adults'

Acute lymphoblastic leukaemia (ALL) in adults (February 2019)

Bloodwise

This booklet explains what acute lymphoblastic leukaemia is and describes the causes and symptoms, and how it is diagnosed and treated.

Cover image of 'Myelodysplastic syndromes (MDS)'

Myelodysplastic syndromes (MDS) (March 2019)

Bloodwise

This booklet has been written to help you understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It will also provide information on coping with the emotional impact of an MDS diagnosis.

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Glans resurfacing and split skin graft/Glansectomy'

Glans resurfacing and split skin graft/Glansectomy (March 2019)

Orchid – Fighting Male Cancer

This information sheet describes glans resurfacing and glansectomy,  how surgery is carried out, aftercare, and possible complications.

Cover image of 'Colonoscopy through the stoma - a patient's perspective'

Colonoscopy through the stoma - a patient's perspective (June 2019)

Colostomy UK

This leaflet describes how a colonoscopy through the stoma is carried out, the preparation beforehand (bowel cleansing), what happens afterwards and the possible risks. It also explains what polyps are.

Cover image of 'When you're close to someone with prostate cancer. A guide for partners and family'

When you're close to someone with prostate cancer. A guide for partners and family (July 2019)

Prostate Cancer UK

A booklet for anyone close to a man affected by prostate cancer, whether partner, family member or friend. It discusses ways to support a man with prostate cancer, where to get further information and how to look after yourself.

Cover image of 'The bowel screening test. What you need to know [Urdu]'

The bowel screening test. What you need to know [Urdu] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'The bowel screening test. What you need to know [Polish]'

The bowel screening test. What you need to know [Polish] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'The bowel screening test. What you need to know [Arabic]'

The bowel screening test. What you need to know [Arabic] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Looking after someone. Information and support for carers in Northern Ireland'

Looking after someone. Information and support for carers in Northern Ireland (November 2019)

Carers Northern Ireland

Guidance and advice for carers in Northern Ireland. This guide is designed to outline the support available and your rights as a carer. 

Cover image of 'The bowel screening test. What you need to know'

The bowel screening test. What you need to know (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'I have finished my treatment. What happens next'

I have finished my treatment. What happens next (November 2019)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'Clinical trials'

Clinical trials (January 2019)

Kidney Cancer UK

Factsheet with information about clinical trials. It describes the different phases of trials, who conducts trials and where they take place and has advice about deciding whether to participate.

Cover image of 'Planning ahead. Thinking about your care and wishes ahead of time'

Planning ahead. Thinking about your care and wishes ahead of time (July 2019)

Marie Curie

You may not feel like planning when you’re ill, but thinking about the future now and making your wishes known will help you feel more in control. It can also help those close to you handle your affairs if you aren’t able to. This booklet has information about some of the things you might want to think about, like deciding where and how you want to be cared for, or making a Will. 

Cover image of 'Lymph node dissection'

Lymph node dissection (March 2019)

Orchid – Fighting Male Cancer

This factsheet describes inguinal and pelvic lymph node dissection and possible complications such as infection and lymphoedema.

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'Clinical diagnosis'

Clinical diagnosis (November 2019)

Orchid – Fighting Male Cancer

This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.

Cover image of 'Looking after someone. Information and support for carers in Wales'

Looking after someone. Information and support for carers in Wales (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Recipes for when food is a problem'

Recipes for when food is a problem (September 2019)

The Oesophageal Patients Association

Recipes and tips for people with oesophageal cancer who are having problems eating.

Cover image of 'Your smear test results [Arabic]'

Your smear test results [Arabic] (2019)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Eating well during cancer treatment. Support your health during cancer treatment'

Eating well during cancer treatment. Support your health during cancer treatment (April 2019)

Penny Brohn UK

General advice to help you eat well during chemotherapy and radiotherapy; the challenges can be similar but where the information is specific to chemotherapy or radiotherapy, this will be stated. There’s no one way of eating that’s right for everyone so the general advice in this booklet will need to be adapted to you and your situation. It’s not intended to replace any advice given to you by a member of your healthcare team.

Cover image of 'Ovarian cancer and stomas'

Ovarian cancer and stomas (June 2019)

Target Ovarian Cancer|Colostomy UK

Our expert mini guide is for you if you have a stoma or may get one after ovarian cancer surgery. Based on the latest evidence and full of insights from people who understand what you're going through, this guide explores what a stoma is and does and offers practical tips for overcoming common concerns. 

Cover image of 'Colostomy irrigation. An introduction'

Colostomy irrigation. An introduction (July 2019)

Colostomy Association

This leaflet explains the advantages and disadvantages of colostomy irrigation as an alternative to a stoma pouch. It describes who can and cannot irrigate, when irrigation can start, how it is taught, the equipment and supplies required, and how to irrigate.

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2019)

Bloodwise

Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support. 

Cover image of 'Myeloma. An introduction'

Myeloma. An introduction (February 2019)

Myeloma UK

This booklet provides a brief overview of myeloma, the causes, symptoms, diagnosis, and treatment and management.

Cover image of 'Getting care and support. A guide for people living with a terminal illness, and their family and friends'

Getting care and support. A guide for people living with a terminal illness, and their family and friends (April 2019)

Marie Curie

This guide is for people living with a terminal illness and their friends and family. It aims to helps you explore your care options. It explains what care may be available, what you can expect from it, and who to ask for help.

Cover image of 'Donating stem cells'

Donating stem cells (July 2019)

Bloodwise

This fact sheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells. 

Cover image of 'Targeted therapies for lung cancer'

Targeted therapies for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Financial support - help with costs'

Financial support - help with costs (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. 

Cover image of 'Looking after someone. Information and support for carers in Scotland'

Looking after someone. Information and support for carers in Scotland (November 2019)

Carers Scotland

Guidance and advice for carers in Scotland. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Bortezomib (Velcade®)'

Bortezomib (Velcade®) (January 2019)

Myeloma UK

Bortezomib, also known as Velcade®, is a proteasome inhibitor drug used in the treatment of myeloma. This factsheet describes what it is, how it works, how it is given, and possible side-effects.

Cover image of 'Clinical trials'

Clinical trials (November 2019)

Orchid – Fighting Male Cancer

Brief information about clinical trials, including the four phases, and the pros and cons of taking part..

Cover image of 'The bowel screening test. What you need to know [Large print]'

The bowel screening test. What you need to know [Large print] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Sex and fertility'

Sex and fertility (November 2019)

Orchid – Fighting Male Cancer

This leaflet describes sperm banking and how different treatment options for testicular cancer may affect a man’s fertility.

Cover image of 'Difficulty swallowing'

Difficulty swallowing (February 2019)

Marie Curie

Having difficulty swallowing is a common problem for people living with a terminal illness. It can affect your ability to eat, drink and take medication, and this may be worrying for you and your family and friends. This booklet has information about how your healthcare team can help you, and what you can do to help yourself.

Cover image of 'When someone dies. Practical and emotional help at a difficult time'

When someone dies. Practical and emotional help at a difficult time (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Looking after yourself. A guide for partners and family members'

Looking after yourself. A guide for partners and family members (2019)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Guidance for those caring for, or close to, someone living with an endocrine tumour.

Cover image of 'Financial support - help with costs [Portuguese]'

Financial support - help with costs [Portuguese] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Follow-up after prostate cancer treatment. What happens next?'

Follow-up after prostate cancer treatment. What happens next? (July 2019)

Prostate Cancer UK

This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.

Cover image of 'Applying for a blue badge. Exemption from Prescription Charges'

Applying for a blue badge. Exemption from Prescription Charges (November 2019)

Mesothelioma UK

This leaflet describes how to apply for a blue badge. It also explains that prescription charges were abolished for cancer patients in 2009.

Cover image of 'Fatigue'

Fatigue (November 2019)

Lymphoma Action

Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.

Cover image of 'A simple guide to the prostate'

A simple guide to the prostate (October 2019)

Prostate Scotland

This leaflet describes the prostate, the most common symptoms or signs and what they might mean (benign prostatic hyperplasia, prostatis, prostate cancer).

Cover image of 'Chemotherapy for pancreatic cancer'

Chemotherapy for pancreatic cancer (August 2019)

Pancreatic Cancer UK

This fact sheet is for anyone who wants to know more about treating pancreatic cancer with chemotherapy. It explains how chemotherapy is given, and the different drugs that may be used. It also explains the main side effects of chemotherapy and how these can be managed and how to look after yourself and get support during chemotherapy.. 

Cover image of 'Is myeloma an inherited cancer?'

Is myeloma an inherited cancer? (January 2019)

Myeloma UK

This Infosheet explains that myeloma is not an ‘inherited’ cancer in the sense that most people understand the term, but that inherited genetic variations can affect a person’s risk of developing myeloma. 

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2019)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

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