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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 64

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'I have finished my treatment. What happens next'

I have finished my treatment. What happens next (November 2019)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer'

When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer (November 2019)

Children's Cancer and Leukaemia Group

Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.

Cover image of 'Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment'

Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment (October 2018)

Children's Cancer and Leukaemia Group

Hair loss is a common side effect of having chemotherapy and of radiotherapy to the head. This book tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.

Cover image of 'Peripheral blood stem cell (PBSC) harvesting. Information for young people with cancer, and parents of a child or young person with cancer, having a stem cell transplant, and for stem cell donors'

Peripheral blood stem cell (PBSC) harvesting. Information for young people with cancer, and parents of a child or young person with cancer, having a stem cell transplant, and for stem cell donors (November 2018)

Children's Cancer and Leukaemia Group

This factsheet is written to help explain what is involved when you undergo a peripheral blood stem cell (PBSC) harvest. It explains what haematopoietic stem cells are; why we need to collect them; and what happens before, during and after the harvest.

Cover image of 'Jess's bone marrow donation. A children's guide to bone marrow donation'

Jess's bone marrow donation. A children's guide to bone marrow donation (January 2018)

Children's Cancer and Leukaemia Group

A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.

Cover image of 'Searching for information and support online. Help and advice for parents and families of children, teenagers and young adults with cancer'

Searching for information and support online. Help and advice for parents and families of children, teenagers and young adults with cancer (December 2018)

Children's Cancer and Leukaemia Group

The huge amount of information online can be overwhelming, and sometimes conflicting, causing even more worry and stress. It is important that parents make sure that health information is filtered and gathered from reliable, easy to understand sources. As a parent or carer of a newly-diagnosed child, you may not feel confident when searching through cancer information. This leaflet offers advice and tips on where to start and what to look for.

Cover image of 'Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer'

Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer (October 2018)

Children's Cancer and Leukaemia Group

Children with cancer may experience problems with eating and drinking at some stage. This can be due to the cancer or its treatment. This booklet has ideas on helping children with a poor appetite and other eating problems.

Cover image of 'Langerhan's cell histiocytosis (LCH)'

Langerhan's cell histiocytosis (LCH) (August 2017)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Langerhan's cell histiocytosis is, and briefly describes the signs, symptoms, tests and treatment.

Cover image of 'Total body irradiation (TBI)'

Total body irradiation (TBI) (August 2017)

Children's Cancer and Leukaemia Group

This factsheet is written for young people with cancer, or parents of a child with cancer, who are receiving total body irradiation (TBI), as part of their conditioning therapy for a stem cell transplant (SCT). It explains TBI, including where you will have your radiotherapy, how the radiotherapy will be given and the side effects that may happen. 

Cover image of 'Veno-occlusive disease (VOD)'

Veno-occlusive disease (VOD) (August 2017)

Children's Cancer and Leukaemia Group

Veno-occlusive disease (VOD) is one of the less common but serious complications that can occur during stem cell transplant (SCT). VOD is a complication that affects the liver. This factsheet has been produced to help you understand more about VOD. It explains what VOD is and why it happens, how it is diagnosed, its impact, and how it is treated.

Cover image of 'Liver tumours'

Liver tumours (July 2017)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what liver tumours are, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer'

Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer (September 2017)

Children's Cancer and Leukaemia Group

Guidance on keeping pets when a child has cancer. Covers issues such as general hygiene, pets to avoid, feeding, bedding and litter trays, pet vaccines and veterinary care, and first aid if a child is bitten by a pet.

Cover image of 'Graft versus host disease (GvHD)'

Graft versus host disease (GvHD) (August 2017)

Children's Cancer and Leukaemia Group

Graft versus host disease (GvHD) is a complication of donor (allogeneic) stem cell transplantation (SCT), in which the cells from the stem cell donor (graft) react to the cells in the patient (host). This factsheet has been written to help you to understand how GvHD may affect you/your child and what possible treatments there are. The factsheet will complement the information given by the nurses and doctors who make up your stem cell transplant (SCT) team. They will be able to give you information specific to you, and will always be very happy to answer any questions you might have.

Cover image of 'Will and Sophie have radiotherapy. A children's guide to radiotherapy'

Will and Sophie have radiotherapy. A children's guide to radiotherapy (March 2017)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children following the story of Will, who has radiotherapy to his brain, and Sophie, who has radiotherapy to her stomach.

Cover image of 'Complementary and natural therapies for your child. Information for parents and families of a child or young person with cancer'

Complementary and natural therapies for your child. Information for parents and families of a child or young person with cancer (September 2017)

Children's Cancer and Leukaemia Group

This leaflet is for parents who are interested in finding out more about how complementary and natural therapies can help their child to cope with the side-effects of cancer and its treatment.

Cover image of 'Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant'

Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant (June 2017)

Children's Cancer and Leukaemia Group

This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.

Cover image of 'Brain tumours'

Brain tumours (June 2017)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a brain tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Keeping active during and after treatment. A parent’s guide to physical activity, sport and exercise for children and young people with cancer'

Keeping active during and after treatment. A parent’s guide to physical activity, sport and exercise for children and young people with cancer (October 2017)

Children's Cancer and Leukaemia Group

This booklet is for parents of children and young people with cancer. It gives practical advice that may help when thinking about activity levels both during and after treatment.

Cover image of 'Ruby's stem cell harvest and transplant. A children's guide to stem cell harvesting and transplant using their own stem cells (autologous transplant)'

Ruby's stem cell harvest and transplant. A children's guide to stem cell harvesting and transplant using their own stem cells (autologous transplant) (October 2017)

Children's Cancer and Leukaemia Group

An illustrated, colour booklet for children who are having a stem cell transplant. It describes the bone marrow, the stem cell nurses, the harvest machine, and what happens on the day that the cells are harvested and on the day that they are returned.

Cover image of 'When your child’s cancer comes back or does not respond to initial treatment. Information for parents and families of a child or young person with relapsed or refractory cancer'

When your child’s cancer comes back or does not respond to initial treatment. Information for parents and families of a child or young person with relapsed or refractory cancer (October 2017)

Children's Cancer and Leukaemia Group

Being told your child’s cancer has come back or hasn’t gone away can come as a huge shock, bringing back many emotions from your child’s first diagnosis. This booklet acknowledges these feelings and gives information to help you cope with the experience once again. 

Cover image of 'Taking part in clinical trials. Information for parents and carers of a child or young person with cancer'

Taking part in clinical trials. Information for parents and carers of a child or young person with cancer (August 2017)

Children's Cancer and Leukaemia Group

Many children and young people with cancer are treated on clinical trials. This booklet, designed for parents and carers of children and young people with cancer, aims to help you to understand more about clinical trials and answer some of the questions you may have.

Cover image of 'My child has a brain or spinal tumour. A guide for parents and carers'

My child has a brain or spinal tumour. A guide for parents and carers (January 2017)

Children's Cancer and Leukaemia Group

This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.

Cover image of 'My child has finished treatment. What happens next? A guide to follow-up and adjusting to normal life for
parents and carers whose child or teenager has finished treatment for cancer'

My child has finished treatment. What happens next? A guide to follow-up and adjusting to normal life for parents and carers whose child or teenager has finished treatment for cancer (July 2017)

Children's Cancer and Leukaemia Group

This booklet for the parents and carers of children with cancer aims to help answer some of the many questions that arise when treatment finishes. It discusses feelings and emotions, practical issues, school, and moving on.

Cover image of 'My brother or sister has cancer. A children's guide to coping with cancer'

My brother or sister has cancer. A children's guide to coping with cancer (August 2016)

Children's Cancer and Leukaemia Group

This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.

Cover image of 'My child's Wilms' tumour has come back'

My child's Wilms' tumour has come back (August 2016)

Children's Cancer and Leukaemia Group

This factsheet is for parents of a child whose Wilms' tumour has come back (relapsed). It discusses the different treatment options that may be available.

Cover image of 'Posterior fossa syndrome'

Posterior fossa syndrome (May 2016)

Children's Cancer and Leukaemia Group

This factsheet has been written to help parents understand posterior fossa syndrome (PFS), the name given to a collection of symptoms that may occur together following surgery to the back of the brain. PFS is also sometimes known as cerebellar mutism syndrome. 

Cover image of 'Bleomycin. Bleomycin treatment for childhood cancer'

Bleomycin. Bleomycin treatment for childhood cancer (January 2016)

Children's Cancer and Leukaemia Group

This factsheet gives an overview of the potential late effects of bleomycin treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Lungs. The health of your lungs after childhood cancer treatment'

Lungs. The health of your lungs after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about the health of your lungs after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Breast. Breast cancer risk after childhood cancer treatment'

Breast. Breast cancer risk after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

This factsheet gives an overview of breast cancer risk after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Heart. The health of your heart after childhood cancer treatment'

Heart. The health of your heart after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

This factsheet is about the health of your heart after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Kidney. The health of a single kidney after childhood cancer treatment'

Kidney. The health of a single kidney after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about the health of a single kidney after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Safe handling of chemotherapy medicines. Information for patients, parents and carers'

Safe handling of chemotherapy medicines. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the safe handling and storage of chemotherapy medicines at home and the precautions needed for safe disposal of bodily waste.  

Cover image of 'Dexamethasone. Information for patients, parents and carers'

Dexamethasone. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet has information on the use of dexamethasone in children and young people with cancer. It also offers help to parents in managing the behaviour of children with cancer that requires regular steroids. 

Cover image of 'Osteoporosis. The health of your bones after childhood cancer treatment'

Osteoporosis. The health of your bones after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about osteoporosis and the health of your bones after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Healthy living. Healthy lifestyle advice for childhood cancer survivors'

Healthy living. Healthy lifestyle advice for childhood cancer survivors (June 2016)

Children's Cancer and Leukaemia Group

Healthy lifestyle advice for childhood cancer survivors. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Osteonecrosis or avascular necrosis. The health of your bones after childhood cancer treatment'

Osteonecrosis or avascular necrosis. The health of your bones after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about osteonecrosis (or avascular necrosis) and the health of your bones after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Osteoradionecrosis. The health of your bones after radiotherapy'

Osteoradionecrosis. The health of your bones after radiotherapy (January 2016)

Children's Cancer and Leukaemia Group

Information about osteoradionecrosis and the health of your bones after radiotherapy treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Helping brothers and sisters. A guide for adults supporting siblings of children with cancer'

Helping brothers and sisters. A guide for adults supporting siblings of children with cancer (February 2016)

Children's Cancer and Leukaemia Group

This illustrated leaflet is designed to help adults who come into contact with the siblings of children with cancer. It explains the problems that siblings may have and how adults can best help them cope.

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'Neuroblastoma'

Neuroblastoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a neuroblastoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Osteosarcoma'

Osteosarcoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what osteosarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Retinoblastoma'

Retinoblastoma (October 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what retinoblastoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial'

Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial (April 2016)

Children's Cancer and Leukaemia Group

Information for teenagers and young adults about research and clinical trials.

Cover image of 'Rare tumours'

Rare tumours (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet has brief information about rare tumours of childhood, including details of useful organisations.

Cover image of 'Acute myeloid leukaemia (AML)'

Acute myeloid leukaemia (AML) (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute myeloid leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Ewing sarcoma'

Ewing sarcoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Ewing's sarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Wilms' tumour'

Wilms' tumour (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

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