The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Children's Cancer and Leukaemia Group
Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.
Children's Cancer and Leukaemia Group
Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.
Children's Cancer and Leukaemia Group
Hair loss is a common side effect of having chemotherapy and of radiotherapy to the head. This book tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.
Children's Cancer and Leukaemia Group
A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.
Children's Cancer and Leukaemia Group
This factsheet is written to help explain what is involved when you undergo a peripheral blood stem cell (PBSC) harvest. It explains what haematopoietic stem cells are; why we need to collect them; and what happens before, during and after the harvest.
Children's Cancer and Leukaemia Group
Children with cancer may experience problems with eating and drinking at some stage. This can be due to the cancer or its treatment. This booklet has ideas on helping children with a poor appetite and other eating problems.
Children's Cancer and Leukaemia Group
This factsheet is written for young people with cancer, or parents of a child with cancer, who are receiving total body irradiation (TBI), as part of their conditioning therapy for a stem cell transplant (SCT). It explains TBI, including where you will have your radiotherapy, how the radiotherapy will be given and the side effects that may happen.
Children's Cancer and Leukaemia Group
Veno-occlusive disease (VOD) is one of the less common but still serious complications which can occur during stem cell transplant (SCT). Veno-occlusive disease is not another illness, but a complication that affects the liver. This factsheet has been produced to help you understand more about VOD. The information given in this factsheet explains what VOD is and why it happens, how it is diagnosed, what the impact of it is, and how it is treated.
Children's Cancer and Leukaemia Group
Graft versus host disease (GvHD) is a complication of donor (allogeneic) stem cell transplantation (SCT), in which the cells from the stem cell donor (graft) react to the cells in the patient (host). This factsheet has been written to help you to understand how GvHD may affect you/your child and what possible treatments there are. The factsheet will complement the information given by the nurses and doctors who make up your stem cell transplant (SCT) team. They will be able to give you information specific to you, and will always be very happy to answer any questions you might have.
Children's Cancer and Leukaemia Group
Guidance on keeping pets when a child has cancer. Covers issues such as general hygiene, pets to avoid, feeding, bedding and litter trays, pet vaccines and veterinary care, and first aid if a child is bitten by a pet.
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