The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Bantam Press (imprint of Transworld Publications)
All we think, feel and dream, how we move, if we move, everything that makes us who we are, comes from the brain. We are the brain. So what happens when the brain fails? What happens when we lose our mind? In January 2015, renowned neuroscientist Barbara Lipska's melanoma spread to her brain. It was, in effect, a death sentence. She had surgery, radiation treatments and entered an immunotherapy clinical trial. And then her brain started to play tricks on her. The expert on mental illness - who had spent a career trying to work out how the brain operates and what happens when it fails - experienced what it is like to go mad. She began to exhibit paranoia and schizophrenia-like symptoms. She became disinhibited, completely unaware of her inappropriate behaviour. She got lost driving home from work, a journey she did every day. She couldn't remember things that had just happened to her. Small details like what she was having for breakfast became an obsession, but she ignored the fact that she was about to die. And she remembers every moment with absolute clarity. Weaving the science of the mind and the biology of the brain into her deeply personal story, this is the dramatic account of Dr Lipska's own brilliant brain gone awry. (Publisher)
Atria Books (Simon and Schuster)
In this evocative and gorgeously wrought memoir reminiscent of Rob Sheffield’s Love Is a Mixtape and George Hodgman’s Bettyville, Michael Ausiello—a respected TV columnist and founder and editor-in-chief of TVLine.com—remembers his late husband, and the lessons, love, and laughter that they shared throughout their fourteen years together. For the past decade, TV fans of all stripes have counted upon Michael Ausiello’s insider knowledge to get the scoop on their favorite shows and stars. From his time at Soaps in Depth to his influential stints at TV Guide and Entertainment Weekly to his current role as founder and editor-in-chief of the wildly popular website TVLine.com, Michael has established himself as the go-to expert when it comes to our most popular form of entertainment. What many of his fans don’t know, however, is that while his professional life was in full swing, Michael had to endure the greatest of personal tragedies: his husband, Kit Cowan, was diagnosed with a rare and very aggressive form of neuroendocrine cancer. Over the course of eleven months, Kit and Michael did their best to combat the deadly disease, but Kit succumbed to his illness in February 2015. In this heartbreaking and darkly hilarious memoir, Michael tells the story of his harrowing and challenging last year with Kit while revisiting the thirteen years that preceded it, and how the undeniably powerful bond between him and Kit carried them through all manner of difficulty—always with laughter front and center in their relationship. Instead of a tale of sadness and loss, Spoiler Alert: The Hero Dies is an unforgettable, inspiring, and beautiful testament to the resilience and strength of true love. (Publisher)
Stronger than before is the book Alison Porter went looking for when she first learned she had breast cancer. It's a practical handbook to guide you - and your friends and family - through every stage of the illness, from early diagnosis to treatment choices, and ultimately to a life beyond cancer. In this book, you'll discover: the different types of breast cancer, what to ask your doctor and how to make the choices that are right for you; self-help techniques on every level - physical, emotional, mental and spiritual - to support you through treatment and recovery; how to view your illness as a catalyst for post-traumatic growth, and move on with your life with greater meaning and purpose; your options for reconstruction and how to maintain a cancer-preventative lifestyle; advice for friends and family, so they can be truly helpful in how they offer you support. Written by a breast cancer survivor and thriver, Stronger than before contains invaluable information, guidance and tips, as well as tools and techniques to help you emerge from this life-changing experience healthier, more purposeful and stronger than before. (Publisher)
A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)
Children's Cancer and Leukaemia Group
This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.
Children's Cancer and Leukaemia Group
Illustrated, colour booklet for children following the story of Will, who has radiotherapy to his brain, and Sophie, who has radiotherapy to her stomach.
Children's Cancer and Leukaemia Group
An illustrated, colour booklet for children who are having a stem cell transplant. It describes the bone marrow, the stem cell nurses, the harvest machine, and what happens on the day that the cells are harvested and on the day that they are returned.
Lucy is five years old when she is diagnosed with cancer. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Lucy from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.
Joe is diagnosed with leukaemia in his first year at school. This illustrated, colour storybook describes what happens when Joe has to go into hospital for tests. The story follows Joe from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.
Mary is five years old when she is diagnosed with a brain tumour. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Mary from first feeling ill, through diagnosis and treatment, to recovery and return to normal life.