The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Pancreatic Cancer UK
Easy read information using pictures and simple words to explain how symptoms like diet problems and pain are treated, and how you can get support.
Bloodwise
This booklet explains what chronic myeloid leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.
Pancreatic Cancer UK
This fact sheet is for people with pancreatic cancer who are having a stent or bypass surgery. These treatments help symptoms caused by the cancer blocking the bile duct or duodenum. Family members may also find it helpful. It describes what the treatments involve, possible side effects, how they can affect your diet, and recovering afterwards.
Lymphoma Action
Many people with lymphoma are affected by anaemia at some point during their illness, either because of the lymphoma itself or as a side effect of the treatment they are having. This factsheet describes what anaemia is and what causes it, why haemoglobin is important and how much you should have, the symptoms of anaemia, and its treatment.
Lymphoma Action
People with lymphoma sometimes have thrombocytopenia because of the lymphoma itself or as a side effect of treatment. This can put them at a higher risk of bleeding and bruising. This factsheet explains what thrombocytopenia is and why people with lymphoma get thrombocytopenia and describes the symptoms, treatment and how to reduce the risk of bleeding.
Lymphoma Action
Peripheral neuropathy may be a side-effect of chemotherapy. This factsheet describes peripheral neuropathy, the chemotherapy drugs that most commonly cause it, the symptoms and diagnosis, reducing the risk and managing the symptoms.
Lymphoma Action
Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.
Lymphoma Action
This factsheet gives an overview of the risks to fertility associated with common lymphoma treatments. It outlines methods to help preserve fertility before treatment. Topics include: chemotherapy and fertility; radiotherapy and fertility; targeted therapies and fertility; preserving fertility; planning a family after lymphoma treatment; ways to help you conceive if you have fertility difficulties; emotional support; useful resources and organisations
Pancreatic Cancer UK
This booklet is for family members of someone with pancreatic cancer. It includes information on managing symptoms and side effects, and accessing the right care and support.
Lymphoma Action
Many people experience problems with their mouth following chemotherapy or radiotherapy. This factsheet has tips on oral hygiene and diet.
Bloodwise
This booklet explains what acute lymphoblastic leukaemia is and describes the causes and symptoms, and how it is diagnosed and treated.
Lymphoma Action
This factsheet has information for people with lymphoma who have had their spleen removed. It describes the function of the spleen, what happens when it is removed and how to reduce the risk of infection.
Brainstrust
This factsheet explains the difference between Cannabidiol (CBD) and cannabis oil, the evidence to date, and the current legal status.
Breast Cancer Care
This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.
Breast Cancer Care
This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).
Bowel Cancer UK
A5 leaflet outlining what bowel cancer is, who's at risk and what symptoms to look out for.
World Cancer Research Fund
Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, alcohol, and physical activity. Includes brief information on the most common symptoms of prostate, bowel, lung, mouth and throat, oesophageal and testicular cancer and information on screening tests where applicable.
Lymphoma Action
Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheeet is about a rare type of skin lymphoma called B-cell skin lymphoma (also known as cutaneous B-cell lymphoma or CBCL). It covers the folloiwing topics: What is B-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of B-cell skin lymphoma; Low-grade B-cell skin lymphoma; High-grade B-cell skin lymphoma; Outlook; Follow-up; Research and clinical trials.
Lymphoma Action
Living with lymphoma can cause a great deal of stress, whether you have been diagnosed or someone close to you has. This factsheet outlines common signs of stress and offers practical tips to help you manage it. Contents: What is stress?; What circumstances bring stress?; Can stress make my lymphoma worse?; Managing stress; Living with and beyond lymphoma.
Lymphoma Action
Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheet is about the most common group of skin lymphomas, T-cell skin lymphomas and covers: What is T-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of T-cell skin lymphoma including mycosis fungoides and Sézary syndrome; Outlook; Follow-up; Research and clinical trials.
World Cancer Research Fund
This leaflet explains who is at risk, how colorectal cancer is detected and diagnosed, and how to help reduce cancer risk. It also describes the symptoms to look out for and the national screening programme.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
Information on phaeochromocytomas, including the symptoms, diagnostic tests, and treatment options.
Lymphoma Action
This factsheet gives an overview of human immunodeficiency virus (HIV) and lymphoma. It is for people who have HIV and want to know more about their risk of developing lymphoma, or who have been diagnosed with lymphoma and want more information about what happens next and where to go for more information and support. It covers the following topics: About HIV and lymphoma; Being diagnosed with lymphoma and HIV; Types of lymphoma; Symptoms; Treatment; Outlook; Relapse; Looking after yourself; After treatment for lymphoma; Further information and support.
Lymphoma Action
This factsheet is about adult T-cell leukaemia/lymphoma (ATL), a rare type of T-cell lymphoma associated with the HTLV-1 virus. It covers: What is ATL?; Who gets it?; Symptoms; Treatment; Relapsed and refractory ATL; Research and targeted treatments.
Lymphoma Action
ALCL can be cutaneous (found only in the skin) or systemic (affecting the whole body). This information sheet is about systemic ALCL.
Lymphoma Action
Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL) are thought to develop from the same type of cell and are treated in the same way. This factsheet describes what they are, who gets them, the symptoms, treatment, relapsed and refractory AITL and FTCL, and research and targeted treatments
Lymphoma Action
Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) are different forms of the same disease and are treated in the same way. CLL is used to refer to both forms of disease, except where there are important differences. This factsheet descrives what CLL is, who gets it, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapse, research and targeted treatments, transformation, and living with CLL
Lymphoma Action
Lymphoplasmacytic lymphoma (LPL) is a rare type of non-Hodgkin lymphoma. Waldenström’s macroglobulinaemia (WM) is the most common type of LPL. This page covers the following topics: What are lymphoplasmacytic lymphoma and Waldenström’s macroglobulinaemia?; Who might get Waldenström’s macroglobulinaemia?; Symptoms; Diagnosis; Treatment; Outlook; Relapse; Follow-up; Research and clinical trials.
Christie Hospital NHS Trust
Some illnesses or treatments may make swallowing difficult. This booklet has ideas on how to prepare soft or liquidised foods and how to make food more nourishing by enriching it with dairy produce, fats, sugars and fortified milk. Includes meal suggestions.
Lymphoma Action
Skin problems can be a symptom of lymphoma. They can also be a side effect of some treatments. This factsheet has suggestions to help you manage dry, sore and itchy skin. Contents: Skin problems as a symptom of lymphoma; Skin problems as a side effect of treatment; Managing sore, dry and itchy skin.
Lymphoma Action
Post-transplant lymphoproliferative disorders (PTLD) are lymphomas that can develop in people who are taking treatment to dampen their immune system after a transplant. This factsheet covers: What is PTLD?; What causes PTLD?; Who might get PTLD?; Symptoms of PTLD; Treatment for PTLD; Risks associated with PTLD.
Bowel Cancer UK
This booklet has information about how food can affect your symptoms during and after bowel cancer treatment. After treatment, you may find you can’t eat the same foods as you did before. These changes may be temporary or they may be longer-lasting.
Lymphoma Action
Some lymphoma treatments can cause your hair to thin or fall out. Knowing what to expect and what you can do about it may help you cope with losing your hair. This factsheet has advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the options you may wish to consider until your hair grows back.
Lymphoma Action
Diffuse large B-cell lymphoma (DLBCL) is a high-grade non-Hodgkin lymphoma. This factsheet describes what it is, who gets it, the symptoms, diagnosis and staging, the types of DLBCL, the outlook, treatment, follow-up, relapsed or refractory DLBCL, and research and targeted treatments
Lymphoma Action
Intestinal T-cell lymphomas are rare types of T-cell lymphoma that develop in the small bowel; they include enteropathy-associated T-cell lymphoma (EATL) and monomorphic epitheliotropic intestinal T-cell lymphoma (MEITL). This factsheet explains what intestinal T-cell lymphoma is and who gets it, and describes the symptoms, treatment, relapsed or refractory intestinal T-cell lymphoma, research, and targeted treatments.
Christie Hospital NHS Trust
Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.
Lymphoma Action
This factsheet is about what someone in the final stages of life might experience and gives suggestions to help you get the practical, social and emotional support you need. It covers the following topics: How do I know when to stop active treatment?; How does lymphoma lead to the end of life?; What symptoms might I have towards the end of life?; How can my medical team help?; Your emotions towards the end of your life; Emotional support; Frequently asked questions about lymphoma and the end of life.
Lymphoma Action
This factsheet is about extranodal NK/T-cell lymphoma, nasal type – a rare lymphoma associated with Epstein-Barr virus (EBV) infection, which usually develops in the nose. It covers: What is extranodal NK/T-cell lymphoma? Who gets it? Symptoms; Treatment; Relapsed or refractory extranodal NK/T-cell lymphoma; Research and targeted treatments.
Lymphoma Action
This factsheet has advice and support to help you manage symptoms and to live well with skin (cutaneous) lymphoma. It overs the following topics: Alleviating itching and dryness; Minimising skin irritation; Treating an infection; Controlling your temperature; Managing pain; Improving the appearance of your skin; Day-to-day life.
Lymphoma Action
Hepatosplenic T-cell lymphoma is a rare type of lymphoma that affects the liver and spleen. This factsheet covers the following topics: What is hepatosplenic T-cell lymphoma?; Who gets it?; Symptoms; Treatment; Relapsed or refractory hepatosplenic T-cell lymphoma; Research and targeted treatments.
Lymphoma Action
An overview of T-cell lymphomas – non-Hodgkin lymphomas that develop from a type of white blood cell called a T lymphocyte or T cell. Contents: What are T-cell lymphomas?; Who gets T-cell lymphomas?; Symptoms; Diagnosis and staging; Types of T-cell lymphoma; Outlook; Treatment; Follow-up.
Lymphoma Action
Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).
Lymphoma Action
This factsheet is about follicular lymphoma, the most common type of low-grade non-Hodgkin lymphoma (NHL). Contents include: Quick overview; What is follicular lymphoma?; Who gets follicular lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Paediatric follicular lymphoma; Follow-up; Transformation; Relapse; Research and targeted treatments.
Guts UK
Information about bowel cancer, including causes, symptoms, diagnosis, treatment options, and secondary bowel cancer.
Breast Cancer Care
This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.
Lymphoma Action
When a T-cell lymphoma doesn’t fit into any particular category of T-cell lymphoma, it is called peripheral T-cell lymphoma not otherwise specified (PTCL-NOS). This factsheet covers: What is PTCL-NOS?; Who gets it?; Symptoms; Treatment; Relapsed or refractory PTCL-NOS; Research and targeted treatments.
Macmillan Cancer Support
This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help.
Macmillan Cancer Support
This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.
Macmillan Cancer Support
This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.
Prostate Cancer UK
This booklet is aimed at anyone who wants to know more about the prostate gland. It describes what the prostate gland is, the changes to look out for, benign prostatic hyperplasia, prostatitis and prostate cancer (what it is, the symptoms, the risk factors and what will happen at the doctors). A summary of this information is also available as a Z-card 'Know your prostate. A quick guide.'
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