The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Brainstrust
Up 60% of people diagnosed with a brain tumour experience behaviour and personality changes (BPC). This booklet covers: understanding BPC; what we mean by BPC; causes; symptoms; how BPC is manifested; how it is measured; mood journals; strategies to help people cope; and treatment options and self-help strategies. It also has information for carers, details of who can help, and questions to ask.
The Brain Tumour Charity
This leaflet aims to help patients understand why they may have less energy. It explains what cancer-related fatigue is and describes the symptoms and possible causes. It has suggestions for coping with fatigue and answers some commonly asked questions and also offers some practical suggestions for coping with the emotional and physical effects of fatigue.
The Brain Tumour Charity
This leaflet gives an overview of meningiomas in adults and how they are treated and answers some of the questions you may have about this type of tumour.
Macmillan Cancer Support
Diffuse large B-cell lymphoma is a specific type of non-Hodgkin lymphoma. This factsheet describes the signs and symptoms, staging, grading, diagnosis and treatment.
Bloodwise
This booklet explains what chronic myeloid leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.
Pancreatic Cancer UK
This fact sheet is for people with pancreatic cancer who are having a stent or bypass surgery. These treatments help symptoms caused by the cancer blocking the bile duct or duodenum. Family members may also find it helpful. It describes what the treatments involve, possible side effects, how they can affect your diet, and recovering afterwards.
Christie Hospital NHS Trust
Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.
Pancreatic Cancer UK
This booklet is for family members of someone with pancreatic cancer. It includes information on managing symptoms and side effects, and accessing the right care and support.
Lymphoma Action
Peripheral neuropathy may be a side-effect of chemotherapy. This factsheet describes peripheral neuropathy, the chemotherapy drugs that most commonly cause it, the symptoms and diagnosis, reducing the risk and managing the symptoms.
Christie Hospital NHS Trust
Some illnesses or treatments may make swallowing difficult. This booklet has ideas on how to prepare soft or liquidised foods and how to make food more nourishing by enriching it with dairy produce, fats, sugars and fortified milk. Includes meal suggestions.
Lymphoma Action
People with lymphoma sometimes have thrombocytopenia because of the lymphoma itself or as a side effect of treatment. This can put them at a higher risk of bleeding and bruising. This factsheet explains what thrombocytopenia is and why people with lymphoma get thrombocytopenia and describes the symptoms, treatment and how to reduce the risk of bleeding.
Lymphoma Action
Many people with lymphoma are affected by anaemia at some point during their illness, either because of the lymphoma itself or as a side effect of the treatment they are having. This factsheet describes what anaemia is and what causes it, why haemoglobin is important and how much you should have, the symptoms of anaemia, and its treatment.
Lymphoma Action
Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.
Lymphoma Action
This factsheet gives an overview of the risks to fertility associated with common lymphoma treatments. It outlines methods to help preserve fertility before treatment. Topics include: chemotherapy and fertility; radiotherapy and fertility; targeted therapies and fertility; preserving fertility; planning a family after lymphoma treatment; ways to help you conceive if you have fertility difficulties; emotional support; useful resources and organisations
Prostate Cancer UK
This booklet is aimed at anyone who wants to know more about the prostate gland. It describes what the prostate gland is, the changes to look out for, benign prostatic hyperplasia, prostatitis and prostate cancer (what it is, the symptoms, the risk factors and what will happen at the doctors). A summary of this information is also available as a Z-card 'Know your prostate. A quick guide.'
Guts UK
Information about bowel cancer, including causes, symptoms, diagnosis, treatment options, and secondary bowel cancer.
Prostate Cancer UK
This factsheet is for men with advanced prostate cancer that has spread to the bones. It explains what metastatic spinal cord compression is and describes the risk of developing it, the symptoms and the treatment options.
Pancreatic Cancer UK
Easy read information using pictures and simple words to explain how symptoms like diet problems and pain are treated, and how you can get support.
Lymphoma Action
Many people experience problems with their mouth following chemotherapy or radiotherapy. This factsheet has tips on oral hygiene and diet.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
Information on phaeochromocytomas, including the symptoms, diagnostic tests, and treatment options.
Lymphoma Action
Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheeet is about a rare type of skin lymphoma called B-cell skin lymphoma (also known as cutaneous B-cell lymphoma or CBCL). It covers the folloiwing topics: What is B-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of B-cell skin lymphoma; Low-grade B-cell skin lymphoma; High-grade B-cell skin lymphoma; Outlook; Follow-up; Research and clinical trials.
Lymphoma Action
Living with lymphoma can cause a great deal of stress, whether you have been diagnosed or someone close to you has. This factsheet outlines common signs of stress and offers practical tips to help you manage it. Contents: What is stress?; What circumstances bring stress?; Can stress make my lymphoma worse?; Managing stress; Living with and beyond lymphoma.
Pelvic Radiation Disease Association
Credit-card leaflet, with general information about the symptoms of pelvic radiation disease.
Roy Castle Lung Cancer Foundation
This booklet was written with the help of lung cancer experts, people affected by lung cancer, and others who support people with lung cancer to help you make the most of your health and wellbeing.
Lymphoma Action
Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheet is about the most common group of skin lymphomas, T-cell skin lymphomas and covers: What is T-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of T-cell skin lymphoma including mycosis fungoides and Sézary syndrome; Outlook; Follow-up; Research and clinical trials.
Lymphoma Action
Lymphoplasmacytic lymphoma (LPL) is a rare type of non-Hodgkin lymphoma. Waldenström’s macroglobulinaemia (WM) is the most common type of LPL. This page covers the following topics: What are lymphoplasmacytic lymphoma and Waldenström’s macroglobulinaemia?; Who might get Waldenström’s macroglobulinaemia?; Symptoms; Diagnosis; Treatment; Outlook; Relapse; Follow-up; Research and clinical trials.
Lymphoma Action
This factsheet is about adult T-cell leukaemia/lymphoma (ATL), a rare type of T-cell lymphoma associated with the HTLV-1 virus. It covers: What is ATL?; Who gets it?; Symptoms; Treatment; Relapsed and refractory ATL; Research and targeted treatments.
Myeloma UK
This Infoguide has information about vertebral compression fractures (VCFs), how and why they occur in myeloma, and how they are treated. It also includes information on two surgical procedures used in the treatment of VCFs: percutaneous vertebroplasty and balloon kyphoplasty.
Myeloma UK
People with myeloma can develop sore (mucositis) or dry mouths. This factsheet explains the reasons why this may occur and describes the symptoms of mucositis and oral thrush, prevention and treatment. Includes tips for self-management.
Lymphoma Action
This factsheet gives an overview of human immunodeficiency virus (HIV) and lymphoma. It is for people who have HIV and want to know more about their risk of developing lymphoma, or who have been diagnosed with lymphoma and want more information about what happens next and where to go for more information and support. It covers the following topics: About HIV and lymphoma; Being diagnosed with lymphoma and HIV; Types of lymphoma; Symptoms; Treatment; Outlook; Relapse; Looking after yourself; After treatment for lymphoma; Further information and support.
Brainstrust
This factsheet explains the difference between Cannabidiol (CBD) and cannabis oil, the evidence to date, and the current legal status.
Myeloma UK
This Infoguide will help you understand the causes of myeloma-related fatigue, provide you with information about the different ways of treating and managing myeloma-related fatigue and help you and your family cope with the effects.
Lymphoma Action
Intestinal T-cell lymphomas are rare types of T-cell lymphoma that develop in the small bowel; they include enteropathy-associated T-cell lymphoma (EATL) and monomorphic epitheliotropic intestinal T-cell lymphoma (MEITL). This factsheet explains what intestinal T-cell lymphoma is and who gets it, and describes the symptoms, treatment, relapsed or refractory intestinal T-cell lymphoma, research, and targeted treatments.
Macmillan Cancer Support
Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.
Breast Cancer Care
This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).
Lymphoma Action
This factsheet has information for people with lymphoma who have had their spleen removed. It describes the function of the spleen, what happens when it is removed and how to reduce the risk of infection.
Lymphoma Action
This factsheet is about follicular lymphoma, the most common type of low-grade non-Hodgkin lymphoma (NHL). Contents include: Quick overview; What is follicular lymphoma?; Who gets follicular lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Paediatric follicular lymphoma; Follow-up; Transformation; Relapse; Research and targeted treatments.
Lymphoma Action
This factsheet has advice and support to help you manage symptoms and to live well with skin (cutaneous) lymphoma. It overs the following topics: Alleviating itching and dryness; Minimising skin irritation; Treating an infection; Controlling your temperature; Managing pain; Improving the appearance of your skin; Day-to-day life.
Myeloma UK
This infosheet explains what a solitary plasmacytoma is, what causes it, what the signs and symptoms are, what diagnosis involves and how it is treated.
Breast Cancer Care
This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.
Lymphoma Action
Some lymphoma treatments can cause your hair to thin or fall out. Knowing what to expect and what you can do about it may help you cope with losing your hair. This factsheet has advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the options you may wish to consider until your hair grows back.
Lymphoma Action
An overview of T-cell lymphomas – non-Hodgkin lymphomas that develop from a type of white blood cell called a T lymphocyte or T cell. Contents: What are T-cell lymphomas?; Who gets T-cell lymphomas?; Symptoms; Diagnosis and staging; Types of T-cell lymphoma; Outlook; Treatment; Follow-up.
Lymphoma Action
Post-transplant lymphoproliferative disorders (PTLD) are lymphomas that can develop in people who are taking treatment to dampen their immune system after a transplant. This factsheet covers: What is PTLD?; What causes PTLD?; Who might get PTLD?; Symptoms of PTLD; Treatment for PTLD; Risks associated with PTLD.
Lymphoma Action
ALCL can be cutaneous (found only in the skin) or systemic (affecting the whole body). This information sheet is about systemic ALCL.
Lymphoma Action
Diffuse large B-cell lymphoma (DLBCL) is a high-grade non-Hodgkin lymphoma. This factsheet describes what it is, who gets it, the symptoms, diagnosis and staging, the types of DLBCL, the outlook, treatment, follow-up, relapsed or refractory DLBCL, and research and targeted treatments
Lymphoma Action
Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL) are thought to develop from the same type of cell and are treated in the same way. This factsheet describes what they are, who gets them, the symptoms, treatment, relapsed and refractory AITL and FTCL, and research and targeted treatments
Lymphoma Action
Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) are different forms of the same disease and are treated in the same way. CLL is used to refer to both forms of disease, except where there are important differences. This factsheet descrives what CLL is, who gets it, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapse, research and targeted treatments, transformation, and living with CLL
Lymphoma Action
Skin problems can be a symptom of lymphoma. They can also be a side effect of some treatments. This factsheet has suggestions to help you manage dry, sore and itchy skin. Contents: Skin problems as a symptom of lymphoma; Skin problems as a side effect of treatment; Managing sore, dry and itchy skin.
Lymphoma Action
This factsheet is about extranodal NK/T-cell lymphoma, nasal type – a rare lymphoma associated with Epstein-Barr virus (EBV) infection, which usually develops in the nose. It covers: What is extranodal NK/T-cell lymphoma? Who gets it? Symptoms; Treatment; Relapsed or refractory extranodal NK/T-cell lymphoma; Research and targeted treatments.
Bowel Cancer UK
A5 leaflet outlining what bowel cancer is, who's at risk and what symptoms to look out for.
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