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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 370

Cover image of 'Say no to cancer'

Say no to cancer (2010)

Piatkus (Little, Brown Book Group)

Cancer is increasing at an alarming rate and one in three people will develop cancer at some point in their lives. According to the World Cancer Research Fund, up to 39 per cent of the most common cancers - lung, breast, colorectal, skin, mouth/throat and oesophagus, liver, stomach, prostate, cervical ovarian, testicular, endometrial and pancreatic - are preventable through diet, physical activity and weight control alone. "Say no to cancer" was originally published by Piatkus in 1999 and this greatly expanded edition contains new chapters that reflect the very latest information on the connection between diet and lifestyle and the risk of developing cancer. It offers guidance for people who wish to avoid getting cancer, and for those who want to know what they can do nutritionally if they have cancer and/or want to prevent reoccurrence. By improving your diet and taking the right nutritional supplements you really can say no to cancer. (Publisher)

Cover image of 'Staying alive. How to get the best from the NHS'

Staying alive. How to get the best from the NHS (2015)

Quercus

The NHS is our most treasured institution, but even caring doctors have too many patients and too little time, while patients often feel too overwhelmed, embarrassed, intimidated or ill to ask the right questions. Your chances of getting the best care that's right for you are greatly improved if you are able to share in decisions about your treatment. In Staying Alive, Dr Phil Hammond, a GP and campaigner with unrivalled sympathy for patients' needs, helps give you the confidence and the tools to take control of your health care, and shows you in a friendly but authoritative way how to navigate the system. This book will show you how to get your GP to listen to you and take your symptoms seriously, how to get hold of your patient records so you can ensure they're correct, how to get a second opinion and, most importantly, how to get better (and in turn help make the NHS better too). (Publisher)

Cover image of 'Fast facts: Prostate cancer'

Fast facts: Prostate cancer (2017)

Health Press

Prostate cancer is a fast-changing field, and recent advances have significantly improved both the survival and quality of life of many men diagnosed with the disease. As well as providing comprehensive information on the diagnosis, staging and management of the disease, the eighth edition of this ever-popular handbook is an invaluable update on new developments, including: evidence for the debate surrounding PSA screening; a better understanding of molecular and genetic advances; the latest methods of delivering radiotherapy; new drug treatments for castrate-resistant prostate cancer; and survivorship issues. This superbly illustrated handbook is a practical resource for all those who provide support and care for men with prostate cancer - including GPs, nurses and allied health professionals - as well as a refreshingly readable source of information for patients wanting to know more about their condition and its treatment. (Publisher)

Cover image of 'The carer's bible'

The carer's bible (2018)

Souvenir Press

This accessible and detailed guide includes practical tips, checklists for best practice, descriptions of their experience from a wide range of carers that addresses solutions to common problems, and expert advice on how to deliver compassionate and dignified care to older people. Uniquely, Amanda Waring also provides support and guidance for the carer, how to maintain energy and commitment, how to recognize signs of compassion fatigue and where carers can get help if they need it. The Carer's Bible is an invaluable, inspiring guide to how to give your loved one the best possible care while addressing the anxieties that all carers suffer. (Publisher) 

Cover image of 'Before I go. The essential guide to creating a good end of life plan'

Before I go. The essential guide to creating a good end of life plan (2018)

Findhorn Press

A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)

Cover image of 'Planning for the final stages of a long-term lung condition'

Planning for the final stages of a long-term lung condition (March 2018)

British Lung Foundation

This information is for people with a long-term lung condition who are coming to the end of their life. It is also for those who are close to them, including their carers, family and friends.

Cover image of 'Pampering therapy'

Pampering therapy (April 2019)

Look Good...Feel Better

Cover image of 'Cooking for chemo...and after!'

Cooking for chemo...and after! (2015)

Callahan Publishing

'Cooking for Chemo ...and After!' is a how-to-cook cookbook that teaches you how to adjust your cooking for someone going through chemotherapy. This cookbook focuses on teaching you how to adjust the flavor of your favorite foods so you can enjoy eating again. It is filled with 90 pages of culinary theory and over 100 pages of recipes that will teach you how to apply what you have learned. It was written by Chef Ryan Callahan based on his first-hand experience acting as primary caregiver for his mother, while she went through chemotherapy. Anybody who has ever been through chemotherapy, acted as a caregiver, or knows someone who has been through chemo will admit that combating and living with the metallic tastes in your mouth is one of the hardest parts. This book specifically addresses this problem and gives you easy, real-life solutions. These solutions can be employed in conjunction with any diet regimen or dietary restriction. 'Cooking for Chemo …and After!' is not a "new fad-diet" cookbook or a “what to eat, what not to eat” nutritional guide. It is a book that teaches you how to think and cook like a chef. It is a book that teaches you how to adjust flavor. It will change the way you cook and see food. (Publisher)

Cover image of 'The cancer-fighting kitchen. Nourishing, big-flavor recipes for cancer treatment and recovery'

The cancer-fighting kitchen. Nourishing, big-flavor recipes for cancer treatment and recovery (2017)

Ten Speed Press

This new and revised edition of the IACP award-winning cookbook brings the healing power of delicious, nutritious foods to those whose hearts and bodies crave a revitalizing meal, through 150 new and updated recipes. Featuring science-based, nutrient-rich recipes that are easy to prepare and designed to give patients a much-needed boost by stimulating appetite and addressing treatment side effects including fatigue, nausea, dehydration, mouth and throat soreness, taste bud changes, and weight loss. A step-by-step guide helps patients nutritionally prepare for all phases of treatment, and a full nutritional analysis accompanies each recipe. This remarkable resource teaches patients and caregivers how to use readily available powerhouse ingredients to build a symptom- and cancer-fighting culinary toolkit. Blending fantastic taste and meticulous science, these recipes for soups, vegetable dishes, proteins, and sweet and savory snacks are rich in the nutrients, minerals, and phytochemicals that help patients thrive during treatment. This second edition also includes a dozen new recipes--many of which are simpler and less complicated, for cancer patients to prepare on their low days--as well as a list of cancer-fighting foods that can be incorporated into everyday life without stepping behind the stove. Rebecca has also revised the text with the most up-to-date scientific research and includes a section on how friends and family can build a culinary support team. (Publisher) 

Cover image of 'The Royal Marsden cancer cookbook'

The Royal Marsden cancer cookbook (2015)

Kyle Books

The book is divided into three: a detailed section by Clare Shaw about diet and cancer and the problems you may face during treatment (like loss of appetite, nausea, sore mouth, change of taste); recipes to cook during treatment, which are nutritionally beneficial and wholesome enough to keep you strong even if you can’t eat too much; and a section of recipes for after treatment aimed at keeping you healthy. These recipes are designed to serve smaller portions and two people as well as for families, and there are lots of tips about budgeting, leftovers and freezing. Clare and Catherine want to emphasise that you don’t have to cook ‘special’, separate meals for one, the rest of the family can eat in the same way, saving on time and stress as well as encouraging a healthier diet for all. (Publisher)

Cover image of 'Your child's health team (children with a brain tumour)'

Your child's health team (children with a brain tumour) (February 2018)

The Brain Tumour Charity

This factsheet outlines the roles of some of the health care professionals who may be part of a child’s multidisciplinary team.

Cover image of 'Never too young to grieve. Supporting children under 5 after the death of a parent'

Never too young to grieve. Supporting children under 5 after the death of a parent (2018)

Winston's Wish

A child’s early years are a time of development and change which helps shape the rest of their life. From newborn babies needing constant attention and care to curious children seeking new experiences, an immense amount of learning and change happen during this short period of time. A key focus of early childhood is the relationships that children form with the important people in their lives — usually parents, carers and siblings. Most children will form a strong, secure bond with these people, which enables them to feel safe, and encourages the curiosity that helps them to explore their world. Bereavement during a child’s early years interrupts the attachment that they have with that person. In the absence of strong memories of their own, it can be hard for a young child to remember the person who has died and to feel connected to them. This booklet is designed for parents, carers, childcare professionals and other adults supporting children up to the age of 5 who have experienced the death of a parent or carer. It offers information and ideas as well as some activities which we hope will benefit children and their families. (Publisher)

Cover image of 'Making peace with the end of life. A clear and comforting guide to help you live well to the last'

Making peace with the end of life. A clear and comforting guide to help you live well to the last (2017)

Creative Pumpkin Publishing

From GP and hospice doctor Patrick Fitzgerald and bestselling author Sarah Rayner (Making Friends with Anxiety, One Moment, One Morning) comes a warm and wise companion to help support you and those caring for you in the last months, weeks and days of life. From the shock of diagnosis, through treatment options and symptom control to the process of dying itself, Making Peace with the End of Life tackles these sensitive issues with compassion and honesty. Full of practical advice and important contact information, it will also help to demystify how the NHS and Social Services work, so you can access the best support more easily. And, drawing on Patrick’s extensive clinical experience, it also looks at how communicating your wishes to those involved in your care can give a feeling of safety and control over whatever happens in the future. There are tips on self-nurturing using diet, light exercise and alternative therapies, plus guidance on how to care for your own mental health – including advice for carers. And for those who are anxious about what lies ahead, patient stories and quotes from those who’ve been there help to explain what to expect, thereby easing worry and panic so you feel less alone. Offset by Sarah’s joyful illustrations, the result is a clear and compassionate guide that aims to make these complex and distressing issues less confusing and overwhelming, so each individual can live the life they have left with a greater sense of comfort and peace. (Publisher)

Cover image of 'The street-wise patient’s guide to surviving cancer'

The street-wise patient’s guide to surviving cancer (2016)

Edward Everett Root, Publishers

This book tells you how you can do everything possible to survive cancer. The author is one of the world's leading experts on cancer care. This is an insider's guide to taking control of your own life, and care. YOU can survive cancer - although many patients do not know this. It: offers short, sharp practical guidance; shows patients how to can take control of their care; is essential to patients, and their family; shows you how to get the system to work for you; it gives 100 advisory websites, with expert notes; is absolutely up-to-date. (Publisher)

Cover image of 'Continent urinary diversion eg Mitrofanoff'

Continent urinary diversion eg Mitrofanoff (November 2017)

Urostomy Association

This leaflet has information about continent urinary diversion, which avoids the need to wear a urostomy pouch over the stoma to collect urine. It describes pre-operative and post-operative care, and care of the new reservoir.

Cover image of 'What to do after cancer treatment ends: 10 top tips [Welsh]'

What to do after cancer treatment ends: 10 top tips [Welsh] (May 2017)

Macmillan Cancer Support

Suggestions to help people get the best care and support after treatment ends and to live as healthy and active a life as possible.

Cover image of 'The way we die now'

The way we die now (2016)

Head of Zeus

We have lost the ability to deal with death. Most of our friends and beloved relations will die in a busy hospital in the care of strangers, doctors and nurses they have known at best for a couple of weeks. They may not even know they are dying, victims of the kindly lie that there is still hope. They are unlikely to see even their family doctor in their final hours, robbed of their dignity and fed through a tube after a long series of excessive and hopeless medical interventions. This is the starting point of Seamus O'Mahony's thoughtful, moving and unforgettable book on the western way of death. Dying has never been more public, with celebrities writing detailed memoirs of their illness, but in private we have done our best to banish all thought of dying and made a good death increasingly difficult to achieve. (Publisher)

Cover image of 'Pretty sick. The beauty guide for woman with cancer. How to look your best when you feel your worst'

Pretty sick. The beauty guide for woman with cancer. How to look your best when you feel your worst (2017)

Piatkus (Little, Brown Book Group)

The ultimate resource to looking your best during and after cancer treatment, from a veteran beauty industry insider. Like many women who receive the shattering diagnosis of cancer, Caitlin Kiernan was concerned about her health and her future, but also about how the treatment would affect how she felt and looked - would she lose her hair? Would she lose her nails? How would she look after a double mastectomy? But unlike other women who battle cancer, Kiernan has spent her entire career as a beauty editor, beauty director (most recently for Life & Style Weekly), and now beauty producer. As someone who works in the public eye and in the fashion industry, Kiernan had to quickly learn how to look her best even when she was feeling her worst. So she called on her list of extensive contacts and beauty insiders - from hair professionals to top medical doctors (at institutions like Memorial Sloan Kettering and Mt Sinai Hospital) to style mavens and even celebrities (including Wendy Williams and Hoda Kotb) - to gather the best and most useful beauty tips for cancer treatment. The result is Pretty Sick: the ultimate guide to beauty during (and after) cancer treatment, covering skin care, hair care (and wig shopping), nail care, makeup, an explanation of breast cancer surgical options, style advice for life post mastectomy, and much, much more. Illustrated with charming line drawings and peppered with advice from celebrities and cancer survivors, Pretty Sick will be a welcome and trusted resource during treatment, helping women to look their best even when they don't feel their best. (Publisher)

Cover image of 'Chemo cookery club'

Chemo cookery club (2013)

John Blake Publishing

Chemo Cookery Club is packed with delicious recipes to help make everyday food a positive part of life for cancer sufferers and their carers. With tempting treats and healthy food ideas, the emphasis is on the nutritional values that can make a difference, but most importantly this is a book that lifts the spirits - especially when food and diet can become a bit tricky. If you or someone you love are going through treatment, this book will help you create delicious meals and snacks that tantalise the tastebuds no matter how experienced - or otherwise - you are in the kitchen. Penny Ericson, experienced cook and carer, celebrates everyday meals and how they contribute to wellness, both physically and emotionally. If you're struggling with loss of appetite, wondering how to get more iron into your diet, wanting to relieve 'metal mouth' or dismayed that the foods you used to love now seem boring and tasteless as a result of treatment, Penny can help. Nutritional information and recipe analysis has been contributed by leading cancer research dietician Barbara Parry MSc PD, and the book has been enthusiastically endorsed by major cancer charities. (Publisher)

Cover image of 'Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis'

Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis (2017)

Johns Hopkins University Press

The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)

Cover image of 'Fast facts: Chronic and cancer pain'

Fast facts: Chronic and cancer pain (2017)

Health Press

All health professionals, regardless of specialty, will care for patients with pain that has persisted for more than 6 months. This fully updated fourth edition of Fast Facts: Chronic and Cancer Pain, written by two internationally renowned experts in the field, is designed to bring busy health professionals up to speed with the latest information in this area, including: easy-to-read overviews of pain mechanisms; a practical approach to pain assessment; developments in stepped care and multimodal management; the latest thinking on opioids. With health services around the world responding to calls to improve the management of painful long-term conditions, develop preventive and cost-effective solutions, and respond to patient choice and voice, this easy-to-read fact-packed book is essential reading for all GPs, nurses, junior hospital doctors, physical therapists, clinical psychologists, occupational therapists, pharmacists, medical specialists and medical students wanting – and needing – to know more. (Publisher)

Cover image of 'Johns Hopkins patients' guide to colon and rectal cancer'

Johns Hopkins patients' guide to colon and rectal cancer (2014)

Jones and Bartlett Publishers

Johns Hopkins Patient Guide to Colon and Rectal Cancer is a concise patient guide on treating and coping with colorectal cancer. Learning that you or someone you love has cancer is devastating, and feeling lost and powerless is a common immediate response. The Johns Hopkins Patients’ Guides are designed to alleviate your anxiety, empower you with information, and enable you to fully understand your treatment options. Each book in this series is dedicated to a specific type of cancer. The information is there to help lighten your burden and to assist you in becoming an active participant in your care. Cancer rarely allows us to take a diversion from life, and offering guidance on how to continue to live life while working hard on getting well is part of the outcome we hope to help you achieve. (Publisher)

Cover image of 'Your step by step guide to making a will [in press]'

Your step by step guide to making a will [in press] (November 2019)

Macmillan Cancer Support

This leaflet is a guide to making or updating your will. It is for anyone affected by cancer. It also explains how inheritance tax works, and who to contact for more information and support. 

Cover image of 'Breast cancer'

Breast cancer (2018)

Oxford University Press

Breast Cancer: The Facts provides essential, easy to follow information on all aspects of the diagnosis and management of breast cancer. It provides essential background information on the disease, from the ways breast problems are investigated, through treatment options and new therapies, to follow-up processes after remission. Fully updated to cover new and emerging therapies in breast cancer, this second edition also features new chapters on treating special or unusual types of breast cancer; surviving and thriving post-treatment; and coping and support strategies for the partners, families, friends, and colleagues of the person diagnosed with breast cancer. Each chapter is enriched with resources such as websites, links to videos, and care plans so the reader can explore relevant topics in greater detail. Written by specialists in breast cancer, the focus is on the whole patient, their family, and social networks, to make this book a holistic guide to better health at and after diagnosis with the disease, equipping patients affected by breast cancer and their families to be able to ask their health care team the questions they need to have answered to make informed decisions about their treatment. (Publisher)

Cover image of 'The essential guide to breast cancer'

The essential guide to breast cancer (2017)

Need2Know

Breast cancer is the most common cancer in women in the UK; there are approximately 45,000 new cases every year. A new diagnosis can be very frightening and many people will have no prior knowledge of the disease. This book is for women and their families who are looking for a comprehensive but plain language guide to breast cancer and its treatments. Many people find that doctors, although highly qualified and well meaning, can forget how little the layperson knows about medical procedures and terminology. Starting with the basics, this guide will look at what breast cancer is and how it’s diagnosed, right through to support options, the treatment available and how to care for your carers. The emotional after-effects of being a survivor are also covered in detail. Written by a survivor of breast cancer and peer reviewed by a breast cancer specialist, this book will provide everything women need to know about breast care, being diagnosed with breast cancer and the road to recovery. (Publisher)

Cover image of 'Tommy v cancer. One man’s battle against the Big C. (Again).'

Tommy v cancer. One man’s battle against the Big C. (Again). (2019)

Independently published

In March 2016, cancer attacked me for the first time. I was diagnosed with inoperable, stage four throat cancer and underwent intensive courses of both chemotherapy and radiotherapy which left me extremely weak and vulnerable to infection. As a result, I contracted double pneumonia and sepsis and was rushed into intensive care where my family was told that, unless I began responding to treatment, I had approximately two hours left to live. Thankfully, I pulled through and set off upon the long road to recovery. It was the hardest thing I've ever faced but - eventually, in the summer of 2017 - I was declared cancer free.For a few months, at least. In January 2018, a routine scan found the cancer had returned - and had now spread to my lungs. Bugger. "Tommy v cancer: Round Two" continues the story of my fight to survive the 'Big C', salvage what remained of my career, and support my terrified family through yet another battle of life and death. (Publisher)

Cover image of 'Tommy v cancer.  One man's battle against the big C'

Tommy v cancer. One man's battle against the big C (2017)

Independently published

On Thursday, 10th of March 2016, I returned home from a hospital appointment and broke the news to my wife and children. I had throat cancer. Stage four. Inoperable. Desperately needing some way to make sense of my situation, I set up a blog to chart my battle against the disease. I hoped it would allow me to understand more about this thing inside me, and what I would have to go through in terms of treatment to try to eradicate it. I also thought it might help other people who found themselves in similar circumstances. I made a promise to my readers to be open and honest all the way. I wouldn't hold anything back, no matter how unpleasant. Now, over a year later, I have adapted that blog into this book. It details my journey from when I first realised that something was wrong, through the intense courses of chemotherapy and radiotherapy, to where I am today. To say that journey was difficult is a vast understatement. The side effects of my treatment utterly kicked my arse, causing me to lose over half my bodyweight and fall seriously ill with double pneumonia and sepsis. Totally unresponsive, I was rushed into intensive care where the doctors told my family that, if they couldn't stabilise me, I had approximately two hours left to live. One option was to put me into a medically induced coma, although the chances were high that I would never emerge from it. Imagine someone telling you that about your loved one as they lie there, unconscious and struggling to breathe. Cancer is an invader that affects more than just the patient. Everyone suffers - spouses, siblings, children, extended family, friends. Even, as I was to discover, strangers from all over the world. I was overwhelmed with the love and kindness of almost everyone who contacted me, but I also suffered terrible abuse at the hands of online trolls. I should warn you that parts of this book do not make for easy reading. I kept my promise to be honest, and wrote many of the blog entries when I was depressed and scared, certain I wouldn't live to see another dawn. I convinced myself that I would quickly perish, leaving my wife and two sons - then aged 9 and 17 - alone, and with no-one to protect them or provide for them. I wouldn't get to see them grow up, develop into young men, and eventually have children of their own. The prospect terrified me. For those of you who followed my blog and read the posts as I uploaded them, you haven't seen everything. This book c

Cover image of 'Fast facts: Multiple myeloma and plasma cell dyscrasias'

Fast facts: Multiple myeloma and plasma cell dyscrasias (2015)

Health Press

Multiple myeloma accounts for approximately 0.8% of cancers worldwide, with about 114 000 new cases each year. Rapid progress is being made in the development of new treatments and, although myeloma is incurable at present, survival has almost tripled over the past 10 years and it is now projected that a third of patients will survive more than 10 years after diagnosis. Fast Facts: Multiple Myeloma and Plasma Cell Dyscrasias emphasizes the importance of early diagnosis for a favourable outcome, covers the ever-increasing role of genetics in diagnosis and treatment, and discusses new and gold-standard treatments. A chapter on supportive care also features and briefs the reader on long-term outcomes and quality of life issues. Although primarily intended for health care professionals, this highly readable resource may be of interest to patients wanting to know more about multiple myeloma and plasma cell dyscrasias. Written for doctors, read by patients too. (Publisher)

Cover image of 'I am here. Stories from a cancer ward'

I am here. Stories from a cancer ward (2016)

Scribe Publications

Looking for more meaning in his work, Johannes Klabbers gave up a tenured academic position to spend his days caring for the sick and dying. He trained as a secular pastoral carer in a cancer hospital, and from the patients there he learned how simply talking and listening can provide comfort: from chatting about the football to discussing life’s meaning and how one prepares for death. I Am Here is a frank, moving, and sometimes funny record of his encounters. It gives an unforgettable insight into the variety of ways people cope with suffering, and suggests how we can support them — through caring, through conversation, and by acknowledging that although we may not be able to answer all of life’s questions, we can face them together. From one of the saddest places comes this powerful affirmation of our capacity for humane care. (Publisher)

Cover image of 'Supporting bereaved children: a guide for parents and carers'

Supporting bereaved children: a guide for parents and carers (2011)

Cruse Bereavement Care

A booklet for adults caring for a bereaved child, whether a parent, family member or professional carer. This short booklet describes and seeks to explain some of the ways in which bereavement can affect children's behaviours, and the support they may find most helpful. (Publisher)

Cover image of 'Myeloma. Cancer of the immune system. Fast facts: For patients and their supporters'

Myeloma. Cancer of the immune system. Fast facts: For patients and their supporters (2016)

Health Press

This short workbook is designed to help patients equip themselves with the best information about myeloma. Starting with a simple overview of the biology of the disease, it will help patients to understand the type of myeloma that they have, the remitting-relapsing nature of the disease, and the signs and symptoms they are likely to experience. It takes patients through the initial treatment options and their side effects, what to expect if they have stem cell transplantation, and how they will be treated when their symptoms return. The final sections will help patients understand the supportive care options available, and provide an insight into the latest myeloma research, which is progressing on many fronts. (Publishers)

Cover image of 'Finding your way. Caring for yourself while caring for someone else'

Finding your way. Caring for yourself while caring for someone else (2019)

Rippling Print

If you are caring for someone, this book is for you. It contains everything that helped Verran to find his way as he cared for his wife Karen, from her initial diagnosis to her death 8½ years later. “This is so beautiful, so helpful right now.” Rachel, caring for her mother. Whenever he discovered a new way to do something, or a new way of thinking, or being that worked for him, he wrote it down in a notebook. Page by page, that notebook became this book - a collection of reminders that helped him time and time again, and especially when he was struggling. “This book connects to the human in all of us, a hand to hold, and a guiding light.” Lee, caring for his wife. The thoughts within this book still help Verran today, and he now offers it to you in the hope that it will help you too. He invites you to try whatever catches your eye, whatever makes sense to you in your heart. Also to notice whenever you find a new way that works for you, and to add your own reminders. It is Verran’s hope that these thoughts will help you to adapt, and to grow, and to find your way. Your way to truly be with those that you care for, to nurture your own peace of mind, and to create the space you need for you. (Publisher)

Cover image of 'Flying home. Helping patients to arrange international travel'

Flying home. Helping patients to arrange international travel (September 2017)

hospice information

This publication was originally written to help with arrangements for ‘final journeys’. However, much of the information also applies to those who would like to take a holiday when seriously ill.

Cover image of 'Understanding primary brain tumours [in press]'

Understanding primary brain tumours [in press] (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'After the death of someone very close'

After the death of someone very close (2000)

Cruse Bereavement Care

Cruse's best-selling guide to the emotions commonly experienced during the grief of bereavement. A basic, helpful introduction to bereavement, whatever the circumstances.

Cover image of 'A guide to survivorship for women who have ovarian cancer'

A guide to survivorship for women who have ovarian cancer (2015)

Johns Hopkins University Press

This updated and expanded second edition offers a wealth of information to ease the physical and emotional suffering of women who have ovarian cancer. The expert authors include highly respected and experienced oncologists, gynecologic oncology nurse specialists, researchers, and ovarian cancer survivors. Throughout the book they emphasize the concepts of survivorship, or living life well in the face of daunting uncertainties, and self-determination: the right of each patient to be informed, involved, and in control of her care. Detailed information on diagnosis and treatment, including surgery, chemotherapy, radiation, pain management, and integrative medicine, constitutes a key feature of the book. Also covered in depth are image recovery, nutrition, pain control, and genetic testing. Women who have ovarian cancer share advice on coping with the life-changing disease and its treatments. Offering candor, compassion, and hope, this remarkable book explains how to add quality to your life and take care of medical and social needs while living with ovarian cancer. (Publisher)

Cover image of 'My advance decision to refuse treatment document'

My advance decision to refuse treatment document (2008)

National End of Life Care Programme

This form is for you to write down in advance any specific treatments you don't want to have in the future. Please note: This form is for people in England and Wales only. We suggest you read it alongside our booklet Your life and your choices plan ahead. 

Cover image of 'The carer's guide to safer moving and handling of people'

The carer's guide to safer moving and handling of people (2016)

BackCare

A guide for people caring for someone with restricted mobility. It aims to help reduce the risk of injury by providing information and advice on safe and unsafe practice. It offers basic instruction on how to promote independence and on safer ways of providing moving and handling assistance. It also includes tips on making the home safer and some equipment and adaptations that can promote independence.

Cover image of 'Management of oedema in advanced ill health. Information for patients'

Management of oedema in advanced ill health. Information for patients (February 2016)

Lymphoedema Support Network

Information about oedema in advancing disease. treatment. It describes the causes, symptoms, assessment and investigations and management (skin care, exercise, limb positioning and support, compression, manual lymphatic drainage, kinesio taping and medical treatments).

Cover image of 'Fast facts: Ovarian cancer'

Fast facts: Ovarian cancer (2017)

Health Press

In the last few years there has been a revolutionary increase in our knowledge of ovarian cancer management, from detection and genetics to surgery and novel targeted treatment approaches. This means that when it comes to detecting, diagnosing and treating women who have, or are suspected of having, ovarian cancer, there are significant opportunities for the well-informed healthcare professional to intervene in a meaningful way. This resource offers a comprehensive overview of all levels of care, summarizing the most recent advances and putting them in a clinically meaningful context. It answers important questions such as when to operate and when to treat with various modalities, both conventional and novel. We have striven to capture the key knowledge that a busy healthcare professional caring for patients with ovarian cancer needs, in a refreshingly readable concise format. (Publisher)

Cover image of 'The cancer roller coaster. How to manage the emotional and mental impact'

The cancer roller coaster. How to manage the emotional and mental impact (2019)

Librotas

Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer

Cover image of 'How to handle later life'

How to handle later life (2017)

Amaranth Books

As the baby-boomers get their bus passes, old age is rising up the public agenda. Yet the media concentrate either on the spectacular achievements of nonagenarians or the horrors of elder abuse in rogue care homes. Most people would rather know what ageing will mean for them. While bookshops carry plenty of guides on childcare, no book explains comprehensively what ageing means and how to cope with its challenges. To fill this gap Marion Shoard has written a 1,160-page guide. The book is based partly on experience with her own parents and help she has given other older people, but primarily on extensive research into all aspects of the subject all over the UK. (Publishers)

Cover image of 'The use of compression garments in lymphoedema management'

The use of compression garments in lymphoedema management (November 2016)

Lymphoedema Support Network

The use of compression garments plays an important role in the management of lymphoedema. This leaflet describes the benefits of wearing compression garments, the factors involved in choosing compression garments, the different types available, and fitting. It concludes with general information about how to wear and care for the garments, and the problems that may occur.

Cover image of 'The shock factor. Sarah's story – beating breast cancer one day at a time'

The shock factor. Sarah's story – beating breast cancer one day at a time (2016)

Self-published using CreateSpace Independent Publishing Platform

The door handle started to turn and I knew this was the moment that could change my life forever. Mr Mahadev appeared with another staff member. He introduced himself and then introduced Sally, a breast care nurse, and sat down beside me. He started to go through my notes: family history, the results of the mammogram and the biopsy. Then he delivered the devastating news... I’m really sorry but the mammogram has shown two tumours in the left breast. Sarah Pickles was a normal 32-year-old married woman with a young daughter. On 22nd September 2014 her life changed as she was given the devastating news that she had a triple-negative breast cancer. Read about how Sarah dealt with her diagnosis and how she survived cancer as she shares all the high, lows, tears, and laughter of her journey. This honest and raw account of Sarah’s cancer journey also includes lots of information and top tips on diet, exercise, health, and beauty. (Publisher)

Cover image of 'Genital lymphoedema'

Genital lymphoedema (September 2015)

Lymphoedema Support Network

Information on the causes of primary and secondary genital lymphoedema, its symptoms, and management options, which include skin care, compression garments, exercise, manual lymphatic drainage and surgery.

Cover image of 'What does super Jonny do when mum gets sick? [Spanish]'

What does super Jonny do when mum gets sick? [Spanish] (2016)

Books For Caring Kids

Jonny is a little superhero with a BIG problem. His Mum is sick. How can he help? Join Super Jonny and Bear, as they go to the hospital to investigate. LEARN who the staff working in the hospital are and what they do. DISCOVER Jonny's secret weapon. Super Jonny is recommended by teachers for teachers. The question page links to the English and New Zealand national curriculums. These questions teach the children how to help the sick. Some people need regular hospital care to manage their disease. These people have their own page entitled: Preparing for a hospital admission: 5 tips for chronically ill moms. This ensures that any mother who is going into hospital, has some supplies when her children visit. This list of simple suggestions could also be filled by any adult wanting to help a Mom who is suddenly sick. With its big bold professionally drawn illustrations, Super Jonny is a valuable resource for your family, school or medical centre. (Publisher).

Cover image of 'There is no good card for this: what to say and do when life is scary, awful, and unfair to people you love'

There is no good card for this: what to say and do when life is scary, awful, and unfair to people you love (2017)

HarperOne

The creator of the viral hit "Empathy Cards" teams up with a compassion expert to produce a visually stunning and groundbreaking illustrated guide to help you increase your emotional intelligence and learn how to offer comfort and support when someone you know is in pain. When someone you know is hurting, you want to let her know that you care. But many people don’t know what words to use—or are afraid of saying or doing the wrong thing. This thoughtful, instructive guide, from empathy expert Dr. Kelsey Crowe and greeting card maverick Emily McDowell, blends well-researched, actionable advice with the no-nonsense humor and the signature illustration style of McDowell's immensely popular Empathy Cards, to help you feel confident in connecting with anyone experiencing grief, loss, illness, or any other difficult situation. Written in a how-to, relatable, we’ve-all-been-that-deer-in-the-headlights kind of way, There Is No Good Card for This isn’t a spiritual treatise on how to make you a better person or a scientific argument about why compassion matters. It is a helpful illustrated guide to effective compassion that takes you, step by step by step, past the paralysis of thinking about someone in a difficult time to actually doing something (or nothing) with good judgment instead of fear. There Is No Good Card for This features workbook exercises, sample dialogs, and real-life examples from Dr. Crowe’s research, including her popular "Empathy Bootcamps" that give people tools for building relationships when it really counts. Whether it’s a coworker whose mother has died, a neighbor whose husband has been in a car accident, or a friend who is seriously ill, There Is No Good Card for This teaches you how to be the best friend you can be to someone in need. (Publisher)

Cover image of 'Pink ribbon blues. How breast cancer culture undermines women's health'

Pink ribbon blues. How breast cancer culture undermines women's health (2011)

Oxford University Press

Pink ribbon paraphernalia saturate shopping malls, billboards, magazines, television, and other venues, all in the name of breast cancer awareness. In this compelling and provocative work, Gayle Sulik shows that though this 'pink ribbon culture' has brought breast cancer advocacy much attention, it has not had the desired effect of improving women's health. It may, in fact, have done the opposite. Based on eight years of research, analysis of advertisements and breast cancer awareness campaigns, and hundreds of interviews with those affected by the disease, Pink Ribbon Blues highlights the hidden costs of the pink ribbon as an industry, one in which breast cancer has become merely a brand name with a pink logo. Indeed, while survivors and supporters walk, run, and purchase ribbons for a cure, cancer rates rise, the cancer industry thrives, corporations claim responsible citizenship while profiting from the disease, and breast cancer is stigmatized anew for those who reject the pink ribbon model. But Sulik also outlines alternative organizations that make a real difference, highlights what they do differently, and presents a new agenda for the future. (Publisher)

Cover image of 'Fast facts: Breast cancer'

Fast facts: Breast cancer (2014)

Health Press

Wherever you are in your career, and whatever involvement you have with caring for women with breast cancer, the fifth edition of Fast Facts: Breast Cancer has something for you. The world-class authors of this popular fact-packed handbook provide practical advice on all the key areas of breast cancer management, from risk factors and diagnosis to treatment of all cancer stages. But what really makes it stand out from the crowd is the authors' awareness of the information you need when you talk to a woman concerned about breast cancer. The chapter dedicated to perception of risk will refresh your knowledge and help you talk to your patients about their individual prospects, while the short chapter on clinical trials will help you discuss potential participation in trials and answer common questions. Improvements in the management of breast cancer have followed three major themes in recent years: greater optimization of individualized local treatment, longer duration of therapies, and the use of biological therapies targeted at specific receptors. This colorful up-to-date handbook addresses all these trends, alongside the disturbing issues of overdiagnosis as a result of screening and overtreatment. Given the explosion in information technology, patients and their families have access to much more information on their condition and as a result assume a more active role in their medical management. Health professionals have an important role in helping patients sort the facts from the fallacies, put the risks and benefits into perspective and balance their treatment choices. For this reason alone, Fast Facts: Breast Cancer is an invaluable evidence-based resource for everyone working in breast cancer care in primary and secondary settings, from medical and nursing students, to GPs, specialist nurses and residents. And one for your patients too … The authors encourage you to make your patients well-informed active partners in their breast cancer care by sharing this highly readable book with them. (Publisher)

Cover image of 'Navigating life with a brain tumour'

Navigating life with a brain tumour (2013)

Oxford University Press

Navigating Life with a Brain Tumor is a guide for anyone affected by brain tumors and their associated conditions - patients, family members, friends, and caregivers. Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors and their caregivers, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it also offers practical suggestions on symptom management and lifestyle modification, as well as real-life anecdotes and advice from both patients and family members and friends who are experiencing this diagnosis. Balancing the uncertainties of prognosis with hope, Navigating Life with a Brain Tumor is an authoritative, realistic, yet compassionate guide to living with brain cancer. (Publisher)

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