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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 414

Cover image of 'Advice for carers. A practical guide'

Advice for carers. A practical guide (May 2019)

Age UK

This guide looks at the practical and emotional sides of caring. It has information about areas such as benefits and flexible working hours, as well as how a caring role could affect wellbeing and social life. 

Cover image of 'Understanding head and neck cancers'

Understanding head and neck cancers (July 2018)

Macmillan Cancer Support

This booklet is about head and neck cancers. Head and neck cancers include cancers of the mouth and throat, as well as rarer cancers of the nasal cavity (inside the nose), sinuses, salivary glands and middle ear. This booklet is for anyone who has a head and neck cancer. The booklet explains: what head and neck cancer is; the signs and symptoms; the different treatment options; coping with head and neck cancer treatment.

Cover image of 'Targeted therapies for lung cancer'

Targeted therapies for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Personal organiser'

Personal organiser (April 2018)

Breast Cancer Care

This organiser is for anyone with secondary (metastatic) breast cancer to keep a record of symptoms, side effects, and details of appointments. It is part of the Secondary breast cancer information pack.

Cover image of 'Managing pain. A guide for people living with a terminal illness and their carers'

Managing pain. A guide for people living with a terminal illness and their carers (May 2018)

Marie Curie

If you’re living with a terminal illness, or caring for someone who is, you may be worried about pain. This booklet explains what causes pain and how it can be effectively managed. 

Cover image of 'Choosing where to die'

Choosing where to die (2016)

CHANGE

An easy read booklet about the different places you can be looked after in the last few months, weeks or days of your life.  

Cover image of 'How to check your lymph nodes'

How to check your lymph nodes (November 2015)

Wessex Cancer Trust

This leaflet has been written for people who wish to check their lymph nodes between clinic appointments. It describes the lymphatic system and uses illustrations to explain how to check lymph nodes in the head and neck, in the armpit, and in the groin.

Cover image of 'If your prostate cancer comes back. A guide to treatment and support'

If your prostate cancer comes back. A guide to treatment and support (July 2019)

Prostate Cancer UK

This booklet is for men who are worried that their prostate cancer might come back, or whose cancer has recurred after one or more treatments. It describes why prostate cancer might come back, the treatment options, and how to get support. It has space to record the names and contact details of the health professionals involved in ongoing care, details of appointments, and results of PSA tests. Includes a glossary.

Cover image of 'My care, my future. A guide for women living with incurable ovarian cancer'

My care, my future. A guide for women living with incurable ovarian cancer (May 2017)

Target Ovarian Cancer

This guide has been written to help women deal with the challenges of living with ovarian cancer that is terminal.

Cover image of 'Things to do before you die'

Things to do before you die (2020)

Hospice UK|Dying Matters

Things to think through so that you and your loved ones will have fewer things to worry about when you are dying: make a will; make a funeral plan; start planning for your future care and support; kake your thoughts on organ donation known; manage your digital legacy; make sure your loved ones know your plans.

Cover image of 'Primary peritoneal cancer'

Primary peritoneal cancer (December 2018)

Ovacome

This factsheet has information on primary peritoneal cancer, a rare variant of ovarian cancer. It describes what primary peritoneal cancer is, the signs and symptoms, diagnosis, treatment - surgery and chemotherapy - and follow-up care.

Cover image of 'Treating primary breast cancer'

Treating primary breast cancer (December 2018)

Breast Cancer Care

This booklet describes the range of treatments that may be offered to women with newly diagnosed breast cancer.

Cover image of 'Holistic needs assessment. Planning your care and support'

Holistic needs assessment. Planning your care and support (May 2017)

Macmillan Cancer Support

This booklet explains what assessment and care planning is and describes what to expect from the appointment, where and when the appointment may take place, and how to prepare for the appointment.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Understanding lymphoedema'

Understanding lymphoedema (August 2018)

Macmillan Cancer Support

This booklet is about lymphoedema. It is for anyone who has lymphoedema, or is at risk of developing it. It may also be helpful for family members, friends or carers. The booklet explains the signs and symptoms of lymphoedema and how you may be able to reduce your risk of it developing. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Looking after someone. Information and support for carers in England'

Looking after someone. Information and support for carers in England (April 2020)

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available.

Cover image of 'When your partner has breast cancer'

When your partner has breast cancer (June 2018)

Breast Cancer Care

A booklet for anyone in a relationship with someone who has been diagnosed with breast cancer.

Cover image of '12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer'

12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer (January 2017)

Cancer Focus Northern Ireland

Information to help you to lower your risk of cancer and improve your health.

Cover image of 'Advanced prostate cancer. Managing symptoms and getting support'

Advanced prostate cancer. Managing symptoms and getting support (March 2017)

Prostate Cancer UK

This booklet is for men who have prostate cancer that has spread to other parts of the body and are experiencing symptoms such as bone pain.

Cover image of 'Expectations of care for patients with a neobladder in the primary care setting'

Expectations of care for patients with a neobladder in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a neobladder in the event of problems with neobladder function, urinary tract infections, or bleeding.

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia Care

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'Looking after someone. Information and support for carers in England [Gujarati]'

Looking after someone. Information and support for carers in England [Gujarati] (October 2018)

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available. Includes the English-language version.

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Your life and your choices: plan ahead (Northern Ireland)'

Your life and your choices: plan ahead (Northern Ireland) (May 2016)

Macmillan Cancer Support and the Public Health Agency

This spiral-bound booklet is about some of the ways that people with cancer in Northern Ireland can plan ahead and make choices about their future care. It is divided into the following sections: Planning ahead; Making a will; Advance care plans; Enduring power of attorney; Advance decisions to refuse treatment; Organ and tissue donation; Your plans for after you die; Managing your care if you haven't planned ahead; Mental capacity; Further information and support.

Cover image of 'Follow-up after prostate cancer treatment. What happens next?'

Follow-up after prostate cancer treatment. What happens next? (July 2019)

Prostate Cancer UK

This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.

Cover image of 'Breast care for women'

Breast care for women (August 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about breast cancer, how to check your breasts, changes to look for and breast screening. 

Cover image of 'Your medical team'

Your medical team (April 2018)

Lymphoma Action

If you have lymphoma, your care and treatment are planned and managed by a team of health professionals, known as a multi-disciplinary team (MDT). This factsheet covers the multi-disciplinary team, key workers, and MDT members.

Cover image of 'Signs and symptoms of cancer and how to reduce your risk'

Signs and symptoms of cancer and how to reduce your risk (March 2017)

Macmillan Cancer Support

This leaflet explains how to recognise the early signs of cancer and how to reduce the risk. It describes the symptoms to look out for (unexplained bleeding, weight loss, lumps, pain) and how to reduce the risk by making lifestyle changes (smoking, diet, exercise, alcohol drinking and taking care in the sun).

Cover image of 'What happens next? A guide for women with a recent diagnosis of ovarian cancer'

What happens next? A guide for women with a recent diagnosis of ovarian cancer (November 2016)

Target Ovarian Cancer

This guide is for women with a recent diagnosis of ovarian cancer. It focuses on the practical and emotional needs in the months following diagnosis and offers advice on where to find support.

Cover image of 'Grief and loss when someone dies'

Grief and loss when someone dies (2016)

CHANGE

An easy read booklet explaining what dying is, how you might feel if someone you love dies and where you can get support.  

Cover image of 'The cancer guide'

The cancer guide (August 2018)

Macmillan Cancer Support

This booklet is for people living with cancer, and their family, friends and carers. It aims to help you understand what cancer means and what to expect. It also explains where you can get more information and support.

Cover image of 'Planning ahead. An infopack for myeloma patients.'

Planning ahead. An infopack for myeloma patients. (February 2018)

Myeloma UK

This pack, produced with support from Marie Curie, covers the key questions and topics that myeloma patients may want to know more about when considering end of life. Topics include: why planning ahead can be beneficial; what to expect when myeloma treatment is no longer an option; what is likely to happen as the end of life draws near; choosing where to be looked after; and getting your affairs in order. 

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia Care

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment'

Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment (September 2019)

Macmillan Cancer Support

This booklet explains how certain cancer treatments can cause changes to your appearance. It is for people who have had changes to their skin, nails and hair because of cancer treatment. It gives advice on how to manage these changes to help you feel more like you again. We hope it helps you deal with some of the questions or feelings you may have. 

Cover image of 'A guide for people with cancer and dementia'

A guide for people with cancer and dementia (September 2017)

Macmillan Cancer Support|Dementia UK

Some people who have cancer also have dementia. Having both conditions can be difficult for you and the people close to you. The number of people living with both cancer and dementia is growing. We have written this booklet to give people information about living with both conditions and tell people where they may be able to get help.

Cover image of 'Going into hospital? A guide for patients, carers and families'

Going into hospital? A guide for patients, carers and families (2015)

Eastdown Publishing

Hospitals are a constant presence in the lives of many people. Almost everyone will visit or go into hospital at some point in their life. This can be a confusing experience: the environment is strange, the daily routine is unfamiliar and it is hard to understand the medical language. Going into hospital is, in many ways, like visiting a foreign country. This book is your guide to the foreign land of the hospital. It provides clear, practical information about how hospitals work, who the staff are and the investigations and treatments you may receive. The book helps you understand hospital-speak by translating it into straightforward English. The book has been written by a consultant surgeon, a pharmacist and a psychologist who have all worked in hospitals for many years. If you are better informed and can understand concepts like choice, risk and benefit, you can work more effectively with your healthcare team to make the right decisions, and you will be better equipped to help yourself and your family. You will find this book an invaluable guide to a journey through the hospital. (Publisher)

Cover image of 'The emotional impact of a blood cancer. A guide for patients'

The emotional impact of a blood cancer. A guide for patients (October 2018)

Leukaemia Care

This booklet describes some of the more challenging emotional responses you may experience as you adjust to life following a diagnosis of blood cancer. It must be noted that this information is mainly written in the context of acute leukaemia and is for those who are receiving intensive treatment. However, anyone with a blood cancer diagnosis may find this information useful.

Cover image of 'Looking after someone. Information and support for carers in Wales [Welsh]'

Looking after someone. Information and support for carers in Wales [Welsh] (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family'

A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family (July 2019)

Advanced Cancers Coalition

This short guide has been designed to support conversations in advanced cancer. It explains why good communication matters and has tips to support productive conversations. It can be used on an ongoing basis to support you in either living with or knowing someone with advanced cancer. [The ACC is a coalition of UK cancer patient groups with a shared interest in delivering improvements in care and treatments for people with advanced cancer. The activity of the ACC is funded by Roche Products Limited.]

Cover image of 'A-Z of leukaemia. A guide for patients'

A-Z of leukaemia. A guide for patients (September 2019)

Leukaemia Care

This booklet helps to define some of the terms that people may come across when they are diagnosed and treated for a blood cancer. 

Cover image of 'Aplastic anaemia. A guide for patients'

Aplastic anaemia. A guide for patients (October 2018)

Leukaemia Care

This booklet describes aplastic anaemia, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Living with a terminal illness. Support for you and those close to you [Welsh]'

Living with a terminal illness. Support for you and those close to you [Welsh] (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Living with a terminal illness. Support for you and those close to you'

Living with a terminal illness. Support for you and those close to you (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Acute promyelocytic leukaemia (APL). A guide for patients'

Acute promyelocytic leukaemia (APL). A guide for patients (January 2020)

Leukaemia Care

Acute promyelocytic leukaemia (APL) is a rare sub-type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, and treatment options. It also covers practical issues of living with APL and how to talk to your haematologist, family and friends.

Cover image of 'Hairy cell leukaemia. A guide for patients'

Hairy cell leukaemia. A guide for patients (April 2018)

Leukaemia Care

Hairy cell leukaemia (HCL) is a blood cancer that affects the lymphocytic (antibody producing) white blood cells produced by the bone marrow. This booklet describes what causes it, who it affects, how it affects your body, the symptoms and diagnosis, and treatment options. It also covers everyday life and HCL and talking about HCL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'Living well. After bowel cancer treatment'

Living well. After bowel cancer treatment (August 2019)

Bowel Cancer UK

The information in this booklet is for anyone who has had treatment for bowel cancer. It may also be helpful for family and friends. It describes follow-up care, possible side effects from treatment, and some of the feelings people might have after finishing treatment. It also explains how a healthy lifestyle can help and your rights are work. 

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Getting ready to die'

Getting ready to die (2016)

CHANGE

An easy read booklet about things you might want to think if you will not get better from cancer. For example, things you want to do before you die, people you want to see and things you want to remember and think about.  

Cover image of 'The end of life'

The end of life (2016)

CHANGE

An easy read booklet about what happens to your body and how you might feel during the last few days of life. 

Cover image of 'Living with an illness you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness you will probably die from. Work, money and getting the best out of life [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

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