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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 418

Cover image of 'Know your breasts. A guide to breast awareness and screening'

Know your breasts. A guide to breast awareness and screening (July 2019)

Breast Cancer Care

This booklet aims to help women understand more about their breasts, how they develop and age, and the normal changes that can occur before a period, during pregnancy, when breastfeeding, and before, during and after the menopause. It uses illustrations to show women how to check their breasts and advises what to do if a change is noticed. It also describes routine breast screening, what happens at the clinic, and the limitations of screening.

Cover image of 'Invasive ductal breast cancer'

Invasive ductal breast cancer (November 2018)

Breast Cancer Care

This leaflet discusses the main aspects of invasive ductal breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'Living with lymphoedema after breast cancer'

Living with lymphoedema after breast cancer (April 2019)

Breast Cancer Care

This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.

Cover image of 'Patient guide. Treatment'

Patient guide. Treatment (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Know your breasts. A quick guide to being breast aware [Gujarati]'

Know your breasts. A quick guide to being breast aware [Gujarati] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Understanding the decision process. Who is proton beam therapy suitable for?'

Understanding the decision process. Who is proton beam therapy suitable for? (January 2019)

Brainstrust

This leaflet explains who proton beam therapy is suitable for and how the decision is made. Includes Care Pathway and Clinical Dependencies Referral and Care Pathway 1 (NHS and overseas) and Pathway 2 (NHS only).

Cover image of 'The little white book. North West Children’s. A directory of resources to help children affected by a brain tumour'

The little white book. North West Children’s. A directory of resources to help children affected by a brain tumour (October 2016)

Brainstrust

A directory of support services and resources for children with a brain tumour in the North West of England.

Cover image of 'Pertuzumab with Perjeta'

Pertuzumab with Perjeta (April 2019)

Breast Cancer Care

This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.

Cover image of 'I have finished my treatment. What happens next'

I have finished my treatment. What happens next (November 2019)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'Financial support - benefits [Romanian]'

Financial support - benefits [Romanian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Radiotherapy for lung cancer'

Radiotherapy for lung cancer (August 2018)

Roy Castle Lung Cancer Foundation

If you or someone one you care for has a diagnosis of lung cancer and radiotherapy is a possible treatment option, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with expertise from lung oncologists (cancer doctors), radiographers, lung cancer nurse specialists and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'FEC-T chemotherapy'

FEC-T chemotherapy (February 2019)

Breast Cancer Care

This booklet explains what the chemotherapy combination FEC-T is, when it may be prescribed, how it is given and what side effects may occur. FEC-T is a combination of four chemotherapy drugs: 5 fluorouracil (also known as 5FU); epirubicin; cyclophosphamide; docetaxol (also known as Taxotere).

Cover image of 'Financial support - benefits [Chinese, Traditional]'

Financial support - benefits [Chinese, Traditional] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Romanian]'

If you are diagnosed with cancer – a quick guide [Romanian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Primary bone cancer. An overview of the disease, diagnosis and treatment'

Primary bone cancer. An overview of the disease, diagnosis and treatment (February 2017)

Bone Cancer Research Trust

This factsheet describes primary bone caner, the types, who it affects, symptoms, causes and risk factors, diagnosis, treatment, follow-up care, and rehabitation and support.

Cover image of 'Financial support - benefits [Portuguese]'

Financial support - benefits [Portuguese] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Low-grade non-Hodgkin lymphoma'

Low-grade non-Hodgkin lymphoma (September 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of low-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what to expect during and after treatment.

Cover image of 'Mummy's lump'

Mummy's lump (April 2015)

Breast Cancer Care

This book is aimed at children under six and follows Elly and Jack as they learn of their mother's diagnosis and treatment for breast cancer. Also available as a read-aloud iPad, iPhone and iPod Touch download, read by Zoe Wanamaker (free iOS version or download from iTunes).

Cover image of 'Financial support - benefits [Russian]'

Financial support - benefits [Russian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Treating primary breast cancer'

Treating primary breast cancer (December 2018)

Breast Cancer Care

This booklet describes the range of treatments that may be offered to women with newly diagnosed breast cancer.

Cover image of 'Know your breasts. A quick guide to being breast aware [Bengali]'

Know your breasts. A quick guide to being breast aware [Bengali] (January 2020)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Planning ahead. Thinking about your care and wishes ahead of time'

Planning ahead. Thinking about your care and wishes ahead of time (July 2019)

Marie Curie

You may not feel like planning when you’re ill, but thinking about the future now and making your wishes known will help you feel more in control. It can also help those close to you handle your affairs if you aren’t able to. This booklet has information about some of the things you might want to think about, like deciding where and how you want to be cared for, or making a Will. 

Cover image of 'High-dose therapy and autologous stem cell transplantation'

High-dose therapy and autologous stem cell transplantation (November 2018)

Myeloma UK

High-dose therapy and stem cell transplantation is a treatment option for many people who have myeloma. This booklet explains what high-dose therapy and stem cell transplantation is, why it is needed, and the advantages and disadvantages of this treatment. It also discusses what will happen during the procedure, what to do on returning home, and feelings and relationships.

Cover image of 'Family history, genes and breast cancer'

Family history, genes and breast cancer (March 2017)

Breast Cancer Care

This booklet explains what a family history of breast cancer is, and what this may mean for you or your family.

Cover image of 'Breast care and self examination'

Breast care and self examination (December 2017)

Women's Health Concern

This factsheet has been designed to help women understand more about their breasts and describes regular self-examination, the breast awareness five point code, breast pain, and nipple changes. It also has brief information on breast lumps, breast cancer, and breast screening.

Cover image of 'Ductal carcinoma in situ (DCIS)'

Ductal carcinoma in situ (DCIS) (March 2018)

Breast Cancer Care

This booklet describes ductal carcinoma in situ (DCIS), the symptoms, how a diagnosis is made, the different types of DCIS, and the treatment options. It also has a short section on coping with breast cancer.

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (February 2018)

Breast Cancer Care

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'Know your breasts. A quick guide to being breast aware [Urdu]'

Know your breasts. A quick guide to being breast aware [Urdu] (January 2020)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Primary breast cancer information pack'

Primary breast cancer information pack (December 2018)

Breast Cancer Care

This pack is for women who have been told they have primary (early) breast cancer. It includes information about breast cancer, its diagnosis and treatments.

Cover image of 'Understanding your pathology results'

Understanding your pathology results (February 2018)

Breast Cancer Care

This booklet explains the information in a pathology report for women who have been diagnosed with breast cancer. It explains the terms used and what the information means, and also suggests questions that women may want to ask their doctor.

Cover image of 'Understanding brain metastasis and lung cancer'

Understanding brain metastasis and lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available. 

Cover image of 'Paclitaxel (Taxol)'

Paclitaxel (Taxol) (November 2017)

Breast Cancer Care

This factsheet explains briefly what Taxol® is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'When your partner has breast cancer'

When your partner has breast cancer (June 2018)

Breast Cancer Care

A booklet for anyone in a relationship with someone who has been diagnosed with breast cancer.

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'Hair loss'

Hair loss (September 2019)

Lymphoma Action

Some lymphoma treatments can cause your hair to thin or fall out. Knowing what to expect and what you can do about it may help you cope with losing your hair. This factsheet has advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the options you may wish to consider until your hair grows back. 

Cover image of 'Breast cancer and hair loss'

Breast cancer and hair loss (January 2018)

Breast Cancer Care

Many people will lose either some or all of their hair as a result of treatment for breast cancer. For some, this is the most distressing side effect of treatment. Some people find that being prepared for hair loss before it occurs helps them cope better when it happens. This booklet explains how you may lose your hair and the effect it can have. It looks at how to care for your hair and scalp during and after treatment and the different headwear you may want to try, including wigs and headscarves. It includes step-by-step guides to tying headscarves and tips on recreating the illusion of eyebrows and eyelashes. The final part of the booklet discusses what usually happens when your hair grows back and how to look after it.

Cover image of 'Patient guide. Follow-up'

Patient guide. Follow-up (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Facing the death of your child. Suggestions and help for families, before and afterwards'

Facing the death of your child. Suggestions and help for families, before and afterwards (April 2015)

Children's Cancer and Leukaemia Group

This booklet is for parents of children who can no longer be cured. It provides suggestions and help for families on all aspects of bereavement.

Cover image of 'Docetaxel (Taxotere)'

Docetaxel (Taxotere) (November 2017)

Breast Cancer Care

This factsheet explains briefly what Taxotere® is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (November 2016)

Lymphoma Action

This comprehensive booklet discusses Hodgkin lymphoma in detail.

Cover image of 'What causes breast cancer? And how can I lower my chances of developing it'

What causes breast cancer? And how can I lower my chances of developing it (November 2018)

Breast Cancer Now

This booklet looks at the causes of breast cancer and lifestyle choices that may help reduce the risk of developing it. 

Cover image of 'Caring for someone with an illness they will probably die from. Looking after yourself [Easy read]'

Caring for someone with an illness they will probably die from. Looking after yourself [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.

Cover image of 'Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer'

Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer (September 2017)

Children's Cancer and Leukaemia Group

Guidance on keeping pets when a child has cancer. Covers issues such as general hygiene, pets to avoid, feeding, bedding and litter trays, pet vaccines and veterinary care, and first aid if a child is bitten by a pet.

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (July 2017)

Breast Cancer Care

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'If you are diagnosed with cancer – a quick guide [Portuguese]'

If you are diagnosed with cancer – a quick guide [Portuguese] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Breast reconstruction'

Breast reconstruction (January 2018)

Breast Cancer Care

This booklet is for women considering breast reconstruction after breast surgery to treat breast cancer.

Cover image of 'Inflammatory breast cancer'

Inflammatory breast cancer (February 2020)

Breast Cancer Care

This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.

Cover image of 'When someone dies. Practical and emotional help at a difficult time'

When someone dies. Practical and emotional help at a difficult time (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Living with an illness that you will probably die from. Who can help? [Easy read]'

Living with an illness that you will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about the different people who can help them and care for them.

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