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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 418

Cover image of 'Diet and breast cancer'

Diet and breast cancer (January 2020)

Breast Cancer Care

A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.

Cover image of 'Mouth care'

Mouth care (March 2019)

Myeloma UK

People with myeloma can develop sore (mucositis) or dry mouths. This factsheet explains the reasons why this may occur and describes the symptoms of mucositis and oral thrush, prevention and treatment. Includes tips for self-management.

Cover image of 'Sore mouth (oral mucositis)'

Sore mouth (oral mucositis) (June 2019)

Lymphoma Action

Many people experience problems with their mouth following chemotherapy or radiotherapy. This factsheet has tips on oral hygiene and diet.

Cover image of 'Eating – help yourself. A guide for patients and their carers'

Eating – help yourself. A guide for patients and their carers (February 2019)

Christie Hospital NHS Trust

Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.

Cover image of 'Eating well when you have cancer'

Eating well when you have cancer (February 2019)

The Royal Marsden NHS Foundation Trust

Cancer and its treatment can affect appetite and enjoyment of food. This booklet has been written to help people eat well when they have a poor appetite or are losing weight. It suggests foods to eat to maintain a healthy diet, foods to avoid, nourishing and supplementary drinks, and high-energy foods. It also has advice for times when eating is difficult, as a result, for example, of fatigue, nausea, sore mouth, diarrhoea, or constipation. Includes recipes and sources of further information and support.

Cover image of 'Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer'

Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer (October 2018)

Children's Cancer and Leukaemia Group

Children with cancer may experience problems with eating and drinking at some stage. This can be due to the cancer or its treatment. This booklet has ideas on helping children with a poor appetite and other eating problems.

Cover image of 'Eat well during cancer. Helping you cope with common side-effects of cancer and cancer treatment'

Eat well during cancer. Helping you cope with common side-effects of cancer and cancer treatment (2018)

World Cancer Research Fund

This booklet is for people living with cancer and those having cancer treatment, who want to know more about how to cope with the common side-effects, but also want to follow as healthy a diet and lifestyle as possible. It is a general guide and not suitable for people who are eating very little, have lost a lot of weight unintentionally or are receiving palliative care, as they will need specialist information and advice. 

Cover image of 'Common side effects of treatment. A guide for patients'

Common side effects of treatment. A guide for patients (October 2018)

Leukaemia CARE

Cancer treatment can cause side-effects and sometimes these can be more difficult to manage than the illness itself. Some of these are common and experienced by many, some are much rarer and occur in very few patients. This booklet is designed to provide you with information about the common side-effects you may experience, what to expect and how they may be managed. It covers the following side effects: increased chance of infection; fatigue; hair loss; anaemia; gastrointestinal side-effects (nausea and vomiting, appetitie changes, constipation, diarrhoea); mouth changes; cognitive effects; pain and tingling; fertility; cardiac and lung toxicity; and secondary cancer risk. It also includes a glossary and details of useful contacts and further support.

Cover image of 'Anti cancer living. The six-step solution to transform your health'

Anti cancer living. The six-step solution to transform your health (2018)

Vermilion (Random House)

“You have cancer.” These are perhaps the most feared three words that will ever come out of a doctor’s mouth, and more and more people are hearing them. Yet most patients (and some doctors) do not realize that lifestyle changes can dramatically reduce risk, assist treatment and improve chances of surviving and even thriving after a diagnosis. Over the course of a major study Servan-Schreiber designed with Dr Lorenzo Cohen at the MD Anderson Cancer Center, six key areas have emerged: love and social support, stress management, rest, movement, nutrition and avoiding environmental toxins. Each plays a role--but it's the synergies created by this potent "Mix of Six" that can bring about real shifts in health and well-being, significantly improving quality of life and positively supporting conventional cancer treatments. Dr. David Servan-Schreiber's Anticancer introduced a revolutionary way to understand and confront cancer, changing the lives of millions around the world. He laid out the principles of integrative care that had allowed him to live many years beyond expectations for his own cancer, but readers have long requested a specific plan to implement his approach. Anti cancer Living is that book. (Publisher)

Cover image of 'Managing the symptoms of cancer'

Managing the symptoms of cancer (November 2016)

Macmillan Cancer Support

Practical advice on the common and less common symptoms that may occur with cancer, such as fatigue, eating problems, mouth problems, emotional effects, bowel problems, bladder problems, breathing difficulties, and skin problems. It describes the causes of each symptom and the medical and complementary therapies that can help. It has sections on how other people can help, support services, and practical and financial support. Includes a pullout symptom diary and details of useful organisations.

Cover image of 'Dry or sore mouth'

Dry or sore mouth (November 2015)

Wessex Cancer Trust

Brief tips on how to cope with a dry or sore mouth during and after treatment for cancer.

Cover image of 'Where to get help. A guide to services'

Where to get help. A guide to services (November 2019)

Christie Hospital NHS Trust

Although designed primarily for people having treatment at the Christie Hospital, this booklet is relevant to anyone with cancer. It describes the emotional support, palliative care, and financial help available. It has a list of national support groups and also support groups in the northwest.

Cover image of 'Focus on mouth cancer'

Focus on mouth cancer (September 2018)

Cancer Focus Northern Ireland

This leaflet has facts about mouth cancer and describes the symptoms, who is at risk and how to reduce the risk. 

Cover image of 'Eating well when following a low fibre diet. A guide for patients and their carers'

Eating well when following a low fibre diet. A guide for patients and their carers (January 2019)

Christie Hospital NHS Trust

Some people may be advised to follow a low-fibre diet during or after treatment for cancer. This booklet gives ideas of suitable foods and advice for improving the nutritional value of meals; this may be helpful for people who have a poor appetite or who have lost weight.

Cover image of 'Nutritional products. Availability of nutritional drinks, powders and puddings'

Nutritional products. Availability of nutritional drinks, powders and puddings (November 2015)

Christie Hospital NHS Trust

Designed by dieticians for people with eating difficulties, this booklet describes the supplements available, those that are most suitable, and how each product can be used. Indicates those that are approved for kosher or halal diets.

Cover image of 'Financial support - benefits [Urdu]'

Financial support - benefits [Urdu] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Taking care in the sun and hot weather'

Taking care in the sun and hot weather (November 2017)

Cheshire and Wirral Partnership NHS Foundation Trust

Easy read information on taking care in the sun.

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and those who care for a colostomate at home'

Caring for colostomates. A practical guide for staff in nursing and residential homes and those who care for a colostomate at home (March 2016)

Colostomy UK

Guidance on the different types of appliances, changing the appliance, disposing of used appliances, day-to-day life with a colostomy (eating, bathing and showering) and common concerns (sore skin, bleeding, parastomal hernia, leaking, ballooning, pancaking, constipation, diarrhoea, odour, rectal discharge and rectal discomfort).

Cover image of 'Radiotherapy after breast surgery. A guide for patients and their families'

Radiotherapy after breast surgery. A guide for patients and their families (February 2020)

Christie Hospital NHS Trust

This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.

Cover image of 'Coping with advanced cancer [Audio CD]'

Coping with advanced cancer [Audio CD] (2019)

Macmillan Cancer Support

Audio CD of the booklet, with information to help people who have been told their cancer has spread or come back, and for their relatives and friends. It covers issues such as deciding about treatment, sources of emotional help, coping with day-to-day life, and putting affairs in order. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Financial support - benefits [Gujarati]'

Financial support - benefits [Gujarati] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Preparing for your death. A guide for people with learning difficulties and their carers.'

Preparing for your death. A guide for people with learning difficulties and their carers. (2014)

Family Advice and Information Resource

This booklet is for people with learning difficulties. Using illustrations and simple language it looks at topics such as the changes that may happen at the end of life, planning ahead and making funeral arrangements.

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'The little white book. South East Scotland. A directory of resources to help people affected by a brain tumour'

The little white book. South East Scotland. A directory of resources to help people affected by a brain tumour (April 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in South East Scotland.

Cover image of 'The little white book. Sheffield and the surrounding area. A directory of resources to help people affected by a brain tumour'

The little white book. Sheffield and the surrounding area. A directory of resources to help people affected by a brain tumour (November 2014)

Brainstrust

A directory of support services and resources for people with a brain tumour in South East Scotland.

Cover image of 'Financial support - benefits [Arabic]'

Financial support - benefits [Arabic] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Caring for someone with a lung condition. Information for carers, family and friends'

Caring for someone with a lung condition. Information for carers, family and friends (November 2018)

British Lung Foundation

Information and support for those caring for someone with a lung condition (not specifically lung cancer).

Cover image of 'Patient charter. The care you should expect and receive'

Patient charter. The care you should expect and receive (September 2018)

Pancreatic Cancer UK

This booklet explains the standards of care everybody with pancreatic cancer should have while they are being diagnosed and treated for pancreatic cancer. You can use it as a guide to what you should expect. It can also help you talk to your doctors and nurses about the care you should receive.

Cover image of 'Financial support - benefits [Polish]'

Financial support - benefits [Polish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Anastrazole'

Anastrazole (February 2019)

Breast Cancer Care

This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.

Cover image of 'Tamoxifen'

Tamoxifen (February 2018)

Breast Cancer Care

This leaflet explains what tamoxifen is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of '7 steps to equal healthcare. Your guide to getting good health care if you have a learning disability [Easy read]'

7 steps to equal healthcare. Your guide to getting good health care if you have a learning disability [Easy read] (June 2018)

ENABLE Scotland|Macmillan Cancer Support|CHANGE

This booklet is about getting good health care if you have cancer and a learning disability.

Cover image of 'Palliative care'

Palliative care (September 2019)

Lymphoma Action

This factsheet is about palliative care at the end of life. It covers: What is palliative care?; Who provides palliative care?; Frequently asked questions about palliative care at the end of life.

Cover image of 'Diet and nutrition for pancreatic cancer'

Diet and nutrition for pancreatic cancer (June 2015)

Pancreatic Cancer Action

This booklet for patients and carers contains information about how pancreatic cancer can affect diet and nutrition. It covers managing dietary symptoms such as poor appetite, weight loss and diarrhoea, dietary supplements and diabetes and diet. Contains dietary advice for patients undergoing surgery and for patients undergoing treatments such as chemotherapy.

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'End of life: a guide. A booklet for people in the final stages of life, and their carers [Audio CD]'

End of life: a guide. A booklet for people in the final stages of life, and their carers [Audio CD] (2015)

Macmillan Cancer Support

This audiobook explains what happens at the end of life and how to plan for it. It gives information about issues such as choosing where to be looked after, sorting out unfinished business, getting financial help, who can help if you’re being cared for at home and what to expect in the last few days of life. It also includes information for your relatives and close friends who may be involved in your care. 

Cover image of 'Skin care'

Skin care (May 2017)

Colostomy UK

Details of companies that supply skin products to help people with a stoma manage their condition.

Cover image of 'Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet'

Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet (March 2019)

Christie Hospital NHS Trust

Some illnesses or treatments may make swallowing difficult. This booklet has ideas on how to prepare soft or liquidised foods and how to make food more nourishing by enriching it with dairy produce, fats, sugars and fortified milk. Includes meal suggestions.

Cover image of 'Taking care of your breasts [English/Hindi]'

Taking care of your breasts [English/Hindi] (September 2016)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Eating well following treatment and recovery from cancer. A guide for patients and carers'

Eating well following treatment and recovery from cancer. A guide for patients and carers (February 2016)

Christie Hospital NHS Trust

Advice about what to eat and what not to eat following treatment. 

Cover image of 'The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people  affected by a brain tumour'

The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people affected by a brain tumour (January 2017)

Brainstrust

A directory of support services and resources for people with a brain tumour in Aberdeen, The Highlands and surrounding areas.

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'Dry, sore and itchy skin'

Dry, sore and itchy skin (June 2019)

Lymphoma Action

Skin problems can be a symptom of lymphoma. They can also be a side effect of some treatments. This factsheet has suggestions to help you manage dry, sore and itchy skin. Contents: Skin problems as a symptom of lymphoma; Skin problems as a side effect of treatment; Managing sore, dry and itchy skin.

Cover image of 'The little white book. Greater Manchester. A directory of resources to help people  affected by a brain tumour'

The little white book. Greater Manchester. A directory of resources to help people affected by a brain tumour (October 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Greater Manchester.

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Russian]'

If you are diagnosed with cancer – a quick guide [Russian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Sodium clodronate for primary breast cancer'

Sodium clodronate for primary breast cancer (April 2019)

Breast Cancer Care

This booklet is about the bisphosphonate sodium clodronate given to reduce the risk of breast cancer spreading to the bones and other parts of the body. IIt explains what it is, who might be offered it and the side effects it can cause. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Polish]'

If you are diagnosed with cancer – a quick guide [Polish] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Patient guide. Palliative care'

Patient guide. Palliative care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'My lung surgery'

My lung surgery (August 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and surgery is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment. It discusses the types of surgery, what happens before, during and after surgery, and returning home.

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