The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Bladder and Bowel Foundation
Urinary incontinence may be a complication of prostate surgery. This factsheet describes what happens after surgery and how to cope at home. It explains the five types of incontinence and how they can be treated. It also describes pelvic floor exercises and includes a bladder training chart.
Prostate Cancer UK
A folder of factsheets for men who have been diagnosed with prostate cancer. It contains factsheets on how prostate cancer is diagnosed, how it is treated and lifestyle issues. The Tool Kit is individually tailored in response to requests from men diagnosed with prostate cancer, but additional factsheets can be requested or downloaded from the website.
This booklet has been written to help teenagers and young people (13+) understand more about cancer, its treatment, how it may affect them, and how to look after themselves while having treatment. It briefly describes cancer, diagnosis and tests, treatment options (surgery, chemotherapy, radiotherapy, steroids, stem cell treatment), the care team, and bone marrow, and neutropaenia and infection. It also has advice on handling side effects and what happens after treatment ends.
This booklet has advice and information for men who have continence problems due to a problem with their prostate or treatment for prostate disease.
This factsheet explains what neutropaenia is and why it occurs in people with lymphoma. It describes the symptoms of an infection and how to deal with it and has tips to help reduce the risk of infection.
This leaflet has information about continent urinary diversion, which avoids the need to wear a urostomy pouch over the stoma to collect urine. It describes pre-operative and post-operative care, and care of the new reservoir.
Guidelines for people with a continent urinary diversion (Mitrofanoff) in the event of problems with pouch function, urinary tract infections, bleeding or discharge.
This guide has been written for people who have been diagnosed with myeloma, and for their families and friends. While it explains what myeloma is and briefly describes treatment options, the focus of the booklet is the emotional response to a diagnosis, with advice on self-care (diet, exercise, coping with pain and fatigue, avoiding infections) finance and travel, and the concerns of carers. Includes a self-help checklist, a list of questions to ask, and details of useful organisations.
Piatkus (Little, Brown Book Group)
Six million people in the UK provide unpaid care for disabled or elderly relatives or neighbours, often unnoticed. Their job is long, lonely and hard, yet there is limited support and no formal training. As a result, carers suffer frequent damage to physical and mental health and are liable to feelings of guilt brought on by fatigue and isolation. Hugh Marriott, a carer himself, has written this book for them - and also for the rest of us who hadn't realised what went on behind those closed doors. The Selfish Pig's Guide to Caring airs topics such as sex, thoughts of murder, coping with incontinence and dealing with friends and officials who fail to understand. It's a must-read for anyone involved with caring. (Publisher)
Guidelines for people with an ileal conduit (urostomy) in the event of problems such as urinary tract infections, bleeding, discharge, a hernia or sore skin.