The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Breast Cancer Care
This leaflet explains why exercise is necessary after breast surgery, when to start exercising, and how long to carry on. It opens out into a poster that demonstrates exercises for the days and weeks after surgery.
Roy Castle Lung Cancer Foundation
This booklet was written with the help of lung cancer experts, people affected by lung cancer, and others who support people with lung cancer to help you make the most of your health and wellbeing.
Adapting to life with a stoma can be challenging and the thought of exercise may well be the last thing on your mind as you recover from surgery. This booklet has advice on exercises to try and how to manage your stoma while exercising or playing sport.
Macmillan Cancer Support
This booklet is for people who have breathlessness due to cancer or its treatment. It includes information about breathing and relaxation exercises, treatments, practical tips for everyday living and a list of useful contacts for further information and support. It also includes a copy of the 'Relax and breathe' CD.
Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer
Penny Brohn UK
This evidence-based information sheet aims to provide clearly sourced and reliable information to help you make informed choices about physical exercise in general and a range of exercises on offer at Penny Brohn UK’s National Centre to support people with cancer.
Macmillan Cancer Support
This booklet is about lymphoedema. It is for anyone who has lymphoedema, or is at risk of developing it. It may also be helpful for family members, friends or carers. The booklet explains the signs and symptoms of lymphoedema and how you may be able to reduce your risk of it developing. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
This leaflet explains why erectile dysfunction may occur following treatment for prostate cancer, how it can be treated and how men can help themselves by making lifestyle changes.
A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)
Prostate Cancer UK
Prostate cancer and its treatment can be a cause of urinary problems. This factsheet describes how different treatments cause these problems and ways to manage them. It includes information on pelvic floor exercises and continence products as well as surgical treatments.