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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 468

Cover image of 'Neuroblastoma'

Neuroblastoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a neuroblastoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Osteosarcoma'

Osteosarcoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what osteosarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Osteoradionecrosis. The health of your bones after radiotherapy'

Osteoradionecrosis. The health of your bones after radiotherapy (January 2016)

Children's Cancer and Leukaemia Group

Information about osteoradionecrosis and the health of your bones after radiotherapy treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Lucy and the good soldiers. A small person's guide to transplant'

Lucy and the good soldiers. A small person's guide to transplant (August 2016)

Anthony Nolan

Lucy's dad is diagnosed with leukaemia and has a stem cell transplant. Lucy tells you all about it in this colourful, illustrated booklet. 

Cover image of 'Wilms' tumour'

Wilms' tumour (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'Retinoblastoma'

Retinoblastoma (October 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what retinoblastoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Hodgkin lymphoma is, and briefly describes the signs, symptoms, tests and treatment options.

Cover image of 'Posterior fossa syndrome'

Posterior fossa syndrome (May 2016)

Children's Cancer and Leukaemia Group

This factsheet has been written to help parents understand posterior fossa syndrome (PFS), the name given to a collection of symptoms that may occur together following surgery to the back of the brain. PFS is also sometimes known as cerebellar mutism syndrome. 

Cover image of 'Dexamethasone. Information for patients, parents and carers'

Dexamethasone. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet has information on the use of dexamethasone in children and young people with cancer. It also offers help to parents in managing the behaviour of children with cancer that requires regular steroids. 

Cover image of 'Healthy living. Healthy lifestyle advice for childhood cancer survivors'

Healthy living. Healthy lifestyle advice for childhood cancer survivors (June 2016)

Children's Cancer and Leukaemia Group

Healthy lifestyle advice for childhood cancer survivors. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Ewing sarcoma'

Ewing sarcoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Ewing's sarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Germ cell tumours'

Germ cell tumours (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a germ cell tumour is and describes the signs, symptoms, tests and treatment options.

Cover image of 'Safe handling of chemotherapy medicines. Information for patients, parents and carers'

Safe handling of chemotherapy medicines. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the safe handling and storage of chemotherapy medicines at home and the precautions needed for safe disposal of bodily waste.  

Cover image of 'Managing family life and cancer. A practical guide for parents of a child with cancer'

Managing family life and cancer. A practical guide for parents of a child with cancer (December 2016)

Children's Cancer and Leukaemia Group

This booklet, witten by parents for parents, aims to help parents manage and enjoy family life when a child has cancer.

Cover image of 'Non-Hodgkin lymphoma (NHL)'

Non-Hodgkin lymphoma (NHL) (December 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what non-Hodgkin lymphoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Rhabdomyosarcoma'

Rhabdomyosarcoma (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what rhabdomyosarcoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Jamie’s journey. Cancer from the voice of a sibling'

Jamie’s journey. Cancer from the voice of a sibling (2016)

Little Five Star

When a child is diagnosed with cancer, his or her siblings may struggle with complex emotions such as confusion, guilt, and fear. Part story, part journal, Jamie's Journey: Cancer from the Voice of a Sibling helps siblings of pediatric cancer patients cope with those intense feelings. The first half of the book is about 13-year-old Jamie who describes the roller coaster of emotions she experiences when her 10-year-old sister, Jordan, is diagnosed with cancer. Jamie laments the loss of her 'normal' teenage life and describes feeling forgotten as her family focuses on Jordan's medical needs. Jamie finds solace through journaling about her experience, and encourages the reader to write about his or her own journey on the pages provided in the book. Jamie's Journey is unique in that it's designed especially for the siblings of pediatric cancer patients. Author Sharon Wozny draws from her experience volunteering with Children's Cancer Network for the past three years. During the time she's spent with young cancer patients and their families, Wozny has discovered that the patients' siblings face unique challenges. "They endure so much," she said. "They feel so much pain on so many levels and need to know that they are heroes also." Wozny has made the second half of the book an interactive journal, offering siblings of pediatric cancer patients a safe place to share their own journey. (Publisher)

Cover image of 'Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer'

Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer (April 2015)

Children's Cancer and Leukaemia Group

Illustrated booklet for teachers with a child or young person in their class who has been diagnosed with cancer. It provides background information about cancer, the common cancers that affect children and young people, and the type of treatments used. It also contains information on useful organisations and reading materials.

Cover image of 'Acute lymphoblastic leukaemia (ALL) in children and young adults up to 16 years'

Acute lymphoblastic leukaemia (ALL) in children and young adults up to 16 years (September 2015)

Bloodwise

This booklet is for parents/carers of children with acute lymphoblastic leukaemia (ALL). It describes ALL: the causes, signs and symptoms, diagnosis, and treatment and follow-up. 

Cover image of 'Acute myeloid leukaemia (AML) in children and young adults up to 16 years'

Acute myeloid leukaemia (AML) in children and young adults up to 16 years (September 2015)

Bloodwise

This booklet describes acute myeloid leukaemia: the causes, signs and symptoms, diagnosis, and treatment and follow-up.

Cover image of 'Aftercure. A guide for teenage and young adult survivors of cancer'

Aftercure. A guide for teenage and young adult survivors of cancer (March 2015)

Children's Cancer and Leukaemia Group

This illustrated booklet has been written for young adults (16+) who have survived cancer. Please note: this booklet was reviewed in March 2017 but no changes were made so versions dated 2015 are still current.

Cover image of 'Neuroblastoma. Information and support for parents'

Neuroblastoma. Information and support for parents (November 2015)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Treatment options for relapsed or refractory high risk neuroblastoma. A guide for parents'

Treatment options for relapsed or refractory high risk neuroblastoma. A guide for parents (November 2015)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This information leaflet describes the treatment opportunities available in the UK for treating children with relapsed or refractory (disease that isn’t responding to treatment) neuroblastoma. 

Cover image of 'Radiotherapy. A guide for teenagers and young people who are undergoing radiotherapy treatment for cancer'

Radiotherapy. A guide for teenagers and young people who are undergoing radiotherapy treatment for cancer (September 2015)

Children's Cancer and Leukaemia Group

This leaflet explains what radiotherapy is, why it is being used, how it works, the possible side effects, and what happens during the planning appointment and during treatment. Includes a glossary of medical terms.

Cover image of 'Facing the death of your child. Suggestions and help for families, before and afterwards'

Facing the death of your child. Suggestions and help for families, before and afterwards (April 2015)

Children's Cancer and Leukaemia Group

This booklet is for parents of children who can no longer be cured. It provides suggestions and help for families on all aspects of bereavement.

Cover image of 'Bereavement. Sources of help and support'

Bereavement. Sources of help and support (April 2015)

Children's Cancer and Leukaemia Group

Sources of support for families who have lost a child from cancer. Includes details of organisations, bereavement centres, books for parents, and books for children.

Cover image of 'Facing death and talking about it. A booklet to help young adults'

Facing death and talking about it. A booklet to help young adults (September 2015)

CLIC Sargent

Advice and support for young adults (aged over 17) facing death to help them talk to their family, partner and friends.

Cover image of 'Chemotherapy, cakes and cancer. An A-Z survival guide for living with childhood cancer'

Chemotherapy, cakes and cancer. An A-Z survival guide for living with childhood cancer (February 2015)

CLIC Sargent

The author was diagnosed with osteosarcoma when she was 12. She wrote this booklet two years later when she had finished treatment because there was nothing for people her age about what it was like to be in hospital and how to handle it. There are tips for surviving long stays in hospital and keeping positive, and explanations of medical terms.

Cover image of 'We beat leukaemia. My family's journey with childhood cancer'

We beat leukaemia. My family's journey with childhood cancer (2015)

Self-published using I_AM Self-Publishing

My son Andrew was only three years old when he was diagnosed with Leukaemia. Now he’s a healthy, happy six-year-old. We Beat Leukemia is my honest account of chemo, childhood and being a mummy to cancer – written over 1235 days from diagnosis to remission. I started writing daily posts to record the highs and lows, frustrations and elations of his childhood cancer treatment. My posts and photos form this book. I’m sharing my family’s experience to raise awareness of childhood cancer (and the UK charities who can offer so much), but also to offer support to families facing the challenges that any child cancer diagnosis brings. I hope to make a difference in the cancer community. (Publisher)

Cover image of 'I have a friend who has cancer'

I have a friend who has cancer (March 2014)

Children's Cancer and Leukaemia Group

This illustrated leaflet for children has a list of things that the child with cancer may want their friends to know.

Cover image of 'The diary of a mother, her son and his monster'

The diary of a mother, her son and his monster (2014)

Empire Publications

Caroline Burch experienced every parent's worst nightmare when her son Elliot was diagnosed with cancer when he was just six months old. To document her experiences she kept a diary detailing the ups and downs of her son's treatment and the emotional anguish of their situation from diagnosis to remission. Ten years later, and with Elliot happily recovered from the condition that threatened his life, Caroline looks back at the traumatic months when there appeared to be no end in sight to the misery. Caroline's story is proof that there is life after cancer and this book is a tribute to the tireless work of the individuals who help parents and their children emerge from their nightmare. (Publisher)

Cover image of 'Anthem for Jackson Dawes'

Anthem for Jackson Dawes (2013)

Bloomsbury Children's Books

Megan Bright and Jackson Dawes are two teenagers who first meet each other on the hospital ward where they are both being treated for cancer. Megan is scared and worried about her illness, but Jackson seems to be an old hand, having been on the ward for ages. And everybody loves Jackson! He is a whirlwind of life and energy, warmth and sparkle. Megan will need to borrow some of Jackson's extraordinary optimism to face her and Jackson's future. A moving story of first love and a remarkably powerful debut novel. (Publisher)

Cover image of 'The hare who lost her hair'

The hare who lost her hair (2013)

Self-published using CreateSpace Independent Publishing Platform

This one-of-a-kind story is a message of hope for young children and families who are undergoing chemotherapy or any difficult struggle. Without words like cancer and chemo, the kid-friendly tale follows a brave hare on her courageous journey to overcome illness. A mysterious, healing stream offers the potential to get well, but there are surprising side effects that will challenge the hare's strength and determination. This book is about believing wishes can come true even in the most extreme circumstances. Ideal for early stage cancers due to the message of survival. Perfect for pairing with honest discussions about your personal situation. (Publisher)

Cover image of 'The dog, the chick and the reindeer. The story of a family living with cancer'

The dog, the chick and the reindeer. The story of a family living with cancer (2013)

Apollo Publishing

In 2004 my mother asked us to donate to the Macmillan team in lieu of a present. It is ironic that she then developed and survived endometrial cancer in 2006 and was diagnosed with and died from ovarian cancer in 2012, especially as the Macmillan team supported us to keep her in the home she loved right to the end. The story tells of the effects of both cancers on Mum and the rest of the family. Naturally there were sad times and some excruciatingly painful and stressful times but there were also some funny and touching moments. Audrey, Mum's sister was coincidentally diagnosed with oesophageal cancer and at one point they were in different wards at opposite ends of the same hospital. The day we were told of Mum’s diagnosis, we wheeled her down to sit with Audrey and they held hands and hugged, one in a wheelchair and the other hooked up to all kinds of machinery. Audrey died thirteen days after mum. There is no doubt that my mother loved her family - she had nearly ninety children, grandchildren, great grandchildren and great, great grandchildren, both biological and adopted; whilst the story is written from my perspective, I wasn't the only one to suffer and it could easily have been written by thirty or forty other people. When I found out mum had a terminal illness I made up my mind to take her back to her home, which is the only place she wanted to be; some people thought I was mad but we had a dedicated team of family and were lucky to be further supported by her GP, the DN’s and Macmillan team. I organised weekly rotas to ensure 24 hour care: The book tells how we coped with this and of my panic the day I found out the Macmillan support team didn’t have any sitters for the following week. It also portrays the “normal” things we did along as we rode our six year emotional roller coaster, such as going on holidays and dealing with other family crises. The last twelve months before her death were intolerable. The last six months a nightmare, and the ten weeks between diagnosis and her passing were hell on earth but we had some laughs, we cried and we sang songs. A few weeks before she died, as my daughter entered the room Mum was playing a game with my younger grandchildren, throwing the tiny purple chick to each of them in turn and giggling along with them, its tail flashing as though it too was enjoying the fun. I initially wrote the book to help me deal with my own grief, stress and feelings of guilt that I was glad she had finally let g

Cover image of 'Jack's radio mission'

Jack's radio mission (2011)

Lulu.com

Jack is a little boy who is having radiotherapy. With the help of Lucy, the radiographer, Jack pretends his treatment is a space mission.

Cover image of 'The fault in our stars'

The fault in our stars (2011)

Penguin

Despite the tumor-shrinking medical miracle that has bought her a few years, Hazel has never been anything but terminal, her final chapter inscribed upon diagnosis. But when a gorgeous plot twist named Augustus Waters suddenly appears at Cancer Kid Support Group, Hazel's story is about to be completely rewritten. Insightful, bold, irreverent, and raw, The Fault in Our Stars is award-winning author John Green's most ambitious and heartbreaking work yet, brilliantly exploring the funny, thrilling, and tragic business of being alive and in love. (Publisher)

Cover image of 'Kiss from a rose'

Kiss from a rose (2011)

Self-published using AuthorHouse

Kiss From A Rose is a novel about my battle with cancer. It depicts my journey from being diagnosed at 16, and reflects on four subsequent relapses. Using the stunning rose as a metaphor for life, it is aimed at teenagers who have just been diagnosed with Cancer, and are about to begin their battle. I hope it is both comforting and informative, but also very honest as it describes my darkest moments, and deepest fears. It illustrates that although the Thorns on my Rose prick and sting with each hurdle I approach in my battle to fight this disease, they don't make the flower any less exquisite. (Publisher)

Cover image of 'Katie's garden. A little girl's experiences of cancer'

Katie's garden. A little girl's experiences of cancer (January 2010)

Fiona Adams

In this illustrated booklet Katie tells how she is diagnosed with Wilm's tumour and describes her stay in hospital for treatment.

Cover image of 'The famous hat'

The famous hat (2008)

Special Stories Publishing

Illustrated story about Harry who is five years old and having treatment for leukaemia. The book has been designed to help children with leukaemia (or other forms of cancer) to prepare for treatment, namely chemotherapy and a stay in hospital.

Cover image of 'Ways to live forever'

Ways to live forever (2008)

Marion Lloyd Books (Scholastic Ltd)

My name is Sam. I am eleven years old. I collect stories and fantastic facts. By the time you read this, I will probably be dead. Sam loves facts. He wants to know about UFOs and horror movies and airships and ghosts and scientists, and how it feels to kiss a girl. And because he has leukaemia he wants to know the facts about dying. Sam needs answers to the questions nobody will answer. WAYS TO LIVE FOREVER is the award-winning novel from an extraordinarily talented young writer. Funny and honest, it is one of the most powerful and uplifting books you will ever read. (Publisher)

Cover image of 'Before I die'

Before I die (2008)

Definitions (Random House)

Tessa has just a few months to live. Fighting back against hospital visits, endless tests, drugs with excruciating side-effects, Tessa compiles a list. It's her To Do Before I Die list. And number one is sex. Released from the constraints of 'normal' life, Tessa tastes new experiences to make her feel alive while her failing body struggles to keep up. Tessa's feelings, her relationships with her father and brother, her estranged mother, her best friend, her new boyfriend, all are painfully crystallized in the precious weeks before Tessa's time finally runs out. BEFORE I DIE is a brilliantly-crafted novel, heartbreaking yet astonishingly life-affirming. It will take you to the very edge. (Publisher)

Cover image of 'Ollie'

Ollie (2007)

Arrow Books Limited

Like the swallows, our son Ollie came in the spring and left in the autumn. Dancing, singing, swooping - there was something birdlike about his energy, joy and laughter - but also the fleeting, enigmatic quality of his life. When he was two he lost all his speech, as autism turned his life - and ours - into a baffling challenge. Then at four he had to face a new challenge when he almost died from leukaemia. But chemotherapy worked its magic and he made a full recovery. He was a tough survivor and nothing seemed to dim his spirit: he could light up a room and energize everyone around him. So it was a huge shock, after several cancer-free years, when a fatal brain tumour was discovered. This time his body had had enough and he died very suddenly. He was twelve. Ollie had extraordinary courage and endurance. Time after time he bounced back, determined to enjoy life. He was obstinate, mischievous, playful, flirtatious, quixotic, funny. He generated - and continues to generate - huge amounts of laughter. And he was very beautiful. We always felt that if autism had not unravelled the wiring of his neural pathways, he would have achieved extraordinary things. This is the story of the journey we made with Ollie. Unlike a mountaineer, pursuing extreme experiences out of choice, he had difficulty thrust upon him: he was forced to be brave. For me, too, the journey was far more compelling than any expedition. (Publisher)

Cover image of 'Gentle willow. A story for children about dying'

Gentle willow. A story for children about dying (2003)

Magination Press

Written for children who may not survive their illness or for the children who know them, the second edition of this tender and touching tale helps address feelings of disbelief, anger, and sadness, along with love and compassion. (Publishers)

Cover image of 'The silver bead'

The silver bead (2003)

Scholastic Press

Katie and Zillah are looking forward to the Cornish summer that stretches ahead of them, all swimming and surfing and long, lazy hot days. Then travellers arrive at Zillah's dad's campsite and soon tensions develop. Katie makes friends with Rose, one of the travellers, and suddenly there's a chill between her and Zillah. It leads Katie to wonder about their friendship, until something happens that puts everything in perspective, something that could threaten their friendship for ever. (Publisher) 

Cover image of 'Talking about dying with children'

Talking about dying with children (2020)

Hospice UK|Dying Matters

Guidance on talking to children about death.

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (March 2020)

Breast Cancer Care

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'Spotting cancer early saves lives'

Spotting cancer early saves lives (January 2020)

Cancer Research UK

This leaflet highlights the early signs and symptoms of cancer. It explains what to look out for and why it is important to get any symptoms checked out. 

Cover image of 'Spotting cancer early saves lives. Information for men'

Spotting cancer early saves lives. Information for men (January 2020)

Cancer Research UK

This leaflet for men highlights the early signs and symptoms of cancer. It explains what to look out for and why it is important to get any symptoms checked out. 

Cover image of 'Signs and symptoms of cancer'

Signs and symptoms of cancer (February 2020)

Macmillan Cancer Support

This z-card gives the signs and symptoms of the main cancers for men and women and advice on cancer prevention for anyone worried about their cancer risk.

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