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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1791

Cover image of 'Understanding acute lymphoblastic leukaemia (ALL)'

Understanding acute lymphoblastic leukaemia (ALL) (August 2018)

Macmillan Cancer Support

This booklet describes acute lymphoblastic leukaemia, its causes, symptoms, diagnosis, and treatment options. It also discusses issues such as feelings, talking to children, self-help, and practical and financial support. Includes details of useful organisations and other resources.

Cover image of 'Understanding mesothelioma'

Understanding mesothelioma (March 2018)

Macmillan Cancer Support

This booklet for anyone who is having tests for mesothelioma or has been diagnosed with it. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of pleural and peritoneal mesothelioma. It explains how they are diagnosed and how they may be treated. It also has information about the feelings you might experience, and how your relationships, work and finances might be affected.

Cover image of 'Understanding soft tissue sarcomas'

Understanding soft tissue sarcomas (October 2018)

Macmillan Cancer Support

This booklet has information about soft tissue sarcomas, including the different types, the symptoms, diagnosis, staging and grading, and treatment options. It also discusses feelings and how your relationships, work and finances might be affected.

Cover image of 'Understanding non-Hodgkin lymphoma'

Understanding non-Hodgkin lymphoma (January 2018)

Macmillan Cancer Support

This booklet aims to provide a better understanding of non-Hodgkin lymphomas, their diagnosis and treatment. It also has sections on feelings and sources of practical and financial support. Includes details of useful organisations.

Cover image of '10 top tips'

10 top tips (March 2018)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

Cover image of 'The HPV vaccine for men who have sex with men [Easy read]'

The HPV vaccine for men who have sex with men [Easy read] (2018)

NHS Health Scotland

This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.

Cover image of 'Prostate conditions and erectile dysfunction'

Prostate conditions and erectile dysfunction (March 2018)

Prostate Scotland

This leaflet explains why erectile dysfunction may occur following treatment for prostate cancer, how it can be treated and how men can help themselves by making lifestyle changes.

Cover image of 'Your guide to breast reconstruction'

Your guide to breast reconstruction (2018)

British Association of Plastic Reconstructive and Aesthetic Surgeons|Association of Breast Surgery

Information to help women make the right choice for them when considering breast reconstruction. The booklet describes what breast reconstruction is, what a mastectomy is, when to have breast reconstruction and the different operations that may be used to rebuild the breast. It also has advice about recovery. Includes sources of information and support.

Cover image of 'Understanding cervical screening results and CIN'

Understanding cervical screening results and CIN (March 2018)

Macmillan Cancer Support

This booklet is about cervical screening. It is for anyone who wants information about how screening is used to find and treat abnormal cells to prevent cervical cancer. It explains what cervical screening involves and what your test results mean. It has information about the most common abnormal result, called cervical intra-epithelial neoplasia (CIN).

Cover image of 'Your urgent referral explained'

Your urgent referral explained (October 2018)

Cancer Research UK

This leaflet helps patients who have been urgently referred with suspected cancer to prepare for their appointments and tests. 

Cover image of 'Managing the late effects of pelvic radiotherapy in women'

Managing the late effects of pelvic radiotherapy in women (April 2018)

Macmillan Cancer Support

A booklet for women who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; early menopause; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.

Cover image of 'Understanding risk-reducing breast surgery'

Understanding risk-reducing breast surgery (October 2018)

Macmillan Cancer Support

This booklet is for anyone who is thinking about having risk-reducing breast surgery. You may consider this if you have a high risk of developing breast cancer. This is usually because you have a strong family history of breast cancer. The booklet explains what risk-reducing breast surgery is and what it involves. It talks about the different options for risk-reducing breast surgery. There is information about the benefits, limitations and risks of each type of surgery. We also talk about some physical and emotional issues you may experience, and ways to cope with these. We have included photographs of women who have had breast reconstruction after risk-reducing surgery. This is to help show how a reconstruction may look.

Cover image of 'Getting help at home'

Getting help at home (May 2018)

Age UK

Information on the services available to older people and their carers to enable them to stay in their own home, including local authority social services, voluntary organisations, private care agencies, and the NHS. 

Cover image of 'Understanding radiotherapy'

Understanding radiotherapy (October 2018)

Macmillan Cancer Support

This booklet is about radiotherapy. It is for anyone who is having radiotherapy or has been offered it as part of their cancer treatment. You may find this booklet helpful if you are a carer, family member or friend. The booklet explains: the different types of radiotherapy; what to expect before, during and after radiotherapy; how radiotherapy is planned and given; some of the general side effects of radiotherapy and ways to cope with these effects.

Cover image of 'Understanding breast reconstruction'

Understanding breast reconstruction (October 2018)

Macmillan Cancer Support

This booklet is aimed at women who have undergone, or who are about to undergo, a mastectomy, and who might be considering breast reconstruction. It explains what breast reconstruction is and the possible benefits and problems that might be expected from this type of surgery. Includes photographs, and details of useful organisations.

Cover image of 'Coping with fatigue (tiredness)'

Coping with fatigue (tiredness) (September 2018)

Macmillan Cancer Support

Fatigue is very common during cancer and its treatment. This booklet discusses the causes and effects and suggests how to manage fatigue. It also has advice on planning your life around fatigue, talking to your doctor or nurse, caring for someone who has fatigue, and other sources of help.

Cover image of 'Pelvic radiotherapy in men - managing side effects during treatment'

Pelvic radiotherapy in men - managing side effects during treatment (September 2018)

Macmillan Cancer Support

This booklet has information about the side effects of pelvic radiotherapy during treatment. There is a separate booklet for men experiencing late effects (Managing the late effects of pelvic radiotherapy in men).

Cover image of 'Preparing a child for loss'

Preparing a child for loss (April 2018)

Macmillan Cancer Support|Winston's Wish

This booklet is written with the childhood bereavement charity, Winston’s Wish. It’s for parents or guardians who are near the end of life and aims to help you prepare and talk to a child or children about your death. Partners, grandparents and close family members may find it useful, too. It may also help you talk to children who are already dealing with the death of a family member. 

Cover image of 'Understanding chemotherapy'

Understanding chemotherapy (September 2018)

Macmillan Cancer Support

This booklet is about chemotherapy. It is for anyone who is having chemotherapy treatment for cancer. There is also information for carers, family members and friends. It explains how chemotherapy works and how it is given. There is also information about common side effects, how they can be treated and what you can do to manage them.

Cover image of 'Things that are important to me. Sharing what is important to my healthcare team [Easy read]'

Things that are important to me. Sharing what is important to my healthcare team [Easy read] (June 2018)

Macmillan Cancer Support|ENABLE Scotland|CHANGE

It is helpful to tell your doctors and nurses what is important to you. This will help them give you the best care. You can use this book to write about what is important to you.

Cover image of 'Understanding myeloma'

Understanding myeloma (July 2018)

Macmillan Cancer Support

This booklet describes the symptoms, diagnosis and treatment (including side-effects) of myeloma. It also covers issues such as feelings, and practical and financial help. Includes details of useful support organisations and other resources.

Cover image of 'Understanding the PSA test'

Understanding the PSA test (May 2018)

Macmillan Cancer Support

This booklet has been written to help men decide whether to have the PSA blood test. It describes the prostate gland, the causes and symptoms of prostate cancer, and explains the PSA test in detail, including the advantages and disadvantages. Treatment options for prostate cancer are briefly explained. Includes details of useful organisations and other resources, such as websites.

Cover image of 'After someone dies - coping with bereavement'

After someone dies - coping with bereavement (March 2018)

Macmillan Cancer Support

Coping with the death of someone close to you involves dealing with difficult feelings and emotions, as well as practical tasks that have to be done. This booklet is for the relatives and friends of anyone who has died from cancer. It gives you some practical information about what to do and what to expect when someone dies. It also looks at some of the emotions you may have, and the support that can help. 

Cover image of 'Making treatment decisions'

Making treatment decisions (June 2018)

Macmillan Cancer Support

This booklet outlines some of the ways that people with cancer can find out about treatment options and discusses some of the things that may help them make decisions.

Cover image of 'Understanding head and neck cancers'

Understanding head and neck cancers (July 2018)

Macmillan Cancer Support

This booklet is about head and neck cancers. Head and neck cancers include cancers of the mouth and throat, as well as rarer cancers of the nasal cavity (inside the nose), sinuses, salivary glands and middle ear. This booklet is for anyone who has a head and neck cancer. The booklet explains: what head and neck cancer is; the signs and symptoms; the different treatment options; coping with head and neck cancer treatment.

Cover image of 'Your urgent referral explained'

Your urgent referral explained (October 2018)

Cancer Research UK

This leaflet helps patients who have been urgently referred with suspected cancer to prepare for their appointments and tests. 

Cover image of 'Have you seen blood in your pee, even once? Then it is time to tell your doctor [Easy read]'

Have you seen blood in your pee, even once? Then it is time to tell your doctor [Easy read] (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'If you notice blood in your pee, even if it's 'just the once', tell your doctor [Large print]'

If you notice blood in your pee, even if it's 'just the once', tell your doctor [Large print] (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'Understanding acute myeloid leukaemia (AML)'

Understanding acute myeloid leukaemia (AML) (August 2018)

Macmillan Cancer Support

This booklet is about a type of leukaemia called acute myeloid leukaemia (AML). It is for anyone who has been diagnosed with AML, or who wants to know more about it. It also has information for carers, family members and friends. The booklet covers: what AML is; symptoms and how AML is diagnosed; how AML is treated; coping with AML.

Cover image of 'Having a CT colonography (CTC) scan'

Having a CT colonography (CTC) scan (November 2018)

Public Health England

Information on the computed tomography colonography (CTC) scan, following an abnormal result from NHS bowel cancer screening. 

Cover image of 'NHS bowel scope screening: using the enema [Urdu]'

NHS bowel scope screening: using the enema [Urdu] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Farsi]'

NHS bowel scope screening: using the enema [Farsi] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Hindi]'

NHS bowel scope screening: using the enema [Hindi] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Polish]'

NHS bowel scope screening: using the enema [Polish] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Nepali]'

NHS bowel scope screening: using the enema [Nepali] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Gujarati]'

NHS bowel scope screening: using the enema [Gujarati] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [French]'

NHS bowel scope screening: using the enema [French] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Arabic]'

NHS bowel scope screening: using the enema [Arabic] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Punjabi]'

NHS bowel scope screening: using the enema [Punjabi] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Bengali]'

NHS bowel scope screening: using the enema [Bengali] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'What now? A practical guide for parents and carers'

What now? A practical guide for parents and carers (February 2018)

CLIC Sargent

A booklet for parents of children diagnosed with cancer.

Cover image of 'NHS bowel scope screening: using the enema [Chinese, Traditional]'

NHS bowel scope screening: using the enema [Chinese, Traditional] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Chinese, Simplified]'

NHS bowel scope screening: using the enema [Chinese, Simplified] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'Bowel scope screening. Having a colonoscopy'

Bowel scope screening. Having a colonoscopy (March 2018)

Public Health England

Information for people who have been called for a colonoscopy because polyps were found when they had bowel scope screening: What is bowel cancer?; What is a colonoscopy? What does a colonoscopy involve?; Does colonoscopy have risks?; What are the possible results of colonoscopy?; Outcomes for 100 people who have a colonoscopy after bowel scope screening; What are the symptoms of bowel cancer; What can I do lower my chances of getting bowel cancer?; Who can I contact if I have a question? 

Cover image of 'Only one of me. A love letter from mum'

Only one of me. A love letter from mum (2018)

Graffeg Limited

'There's only one mum quite like me. I wish that there were two. I'd have more time to spend And I would spend it all with you.' Most of us can't imagine having the time we spend with our children or loved ones cut short, but this is the reality being faced by mother of two Lisa Wells, who was diagnosed with terminal bowel and liver cancer in December 2017 at the age of 31. The Only One of Me project grew from Lisa's determination to leave a lasting legacy for her daughters and her desire to help other families rally against the difficulties of loss. Only One of Me is the product of Lisa's lifelong love of writing and a newfound friendship with award-winning children's author Michelle Robinson. The two collaborated on this tender and moving rhyming poem, with charming illustrations by Catalina Echeverri, which is both a love letter to Lisa's own daughters and a testament to the unwavering strength of parental love, a timeless message for families facing the challenges of bereavement. (Publisher)

Cover image of 'Pensions'

Pensions (July 2018)

Macmillan Cancer Support

This booklet will help people affected by cancer to review their pension arrangements (state, occupational, personal). It covers protecting pension rights, taking pension income, and protecting survivors.

Cover image of 'If you notice blood in your pee, even if it's 'just the once', tell your doctor'

If you notice blood in your pee, even if it's 'just the once', tell your doctor (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'Activity book'

Activity book (2018)

BUPA

An activity booklet to help occupy children at home or in hospital when someone they know has cancer.

Cover image of 'All the time we thought we had'

All the time we thought we had (2018)

Polygon (Birlinn Imprint)

How do you start a new life when the person you love is about to die? At the age of thirty-six, Gordon Darroch's wife was diagnosed with breast cancer. It was a devastating blow just as he, and their two children with autism, were preparing to move to her native Holland. Eighteen months later, as their plans seemed to be back on course, came the second blow: Magteld was terminally ill and possibly had only a few months to live. As her health rapidly deteriorated, they became caught up in a race against time to get a dying mother home and give their children a future in a country they hardly knew. How could they build a new life in the midst of grief and loss? How would their two sons adjust to such enormous changes? And what would remain of Magteld once she was gone? All the Time We Thought We Had is a story of love and loss and a meditation on grief and memory. It's about how events shape our lives and how we cope with them. And it raises important questions about what we value in life and the legacies we leave behind. (Publisher)

Cover image of 'Only one of me. A love letter from dad'

Only one of me. A love letter from dad (2018)

Graffeg Limited

There's only one dad quite like me. I wish that there were two. I'd have more time to spend And I would spend it all with you. Most of us can't imagine having the time we spend with our children or loved ones cut short, but this is the reality being faced by mother of two Lisa Wells, who was diagnosed with terminal bowel and liver cancer in December 2017, at the age of 31. The Only One of Me project grew from Lisa's determination to leave a lasting legacy for her daughters and her desire to help other families rally against the difficulties of loss. Only One of Me is the product of Lisa's lifelong love of writing and a newfound friendship with award-winning children's author Michelle Robinson. The two collaborated on this tender and moving rhyming poem, with charming illustrations by Tim Budgen, which is both a love letter to Lisa's own daughters and a testament to the unwavering strength of parental love, a timeless message for families facing the challenges of bereavement. (Publisher)

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