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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1717

Cover image of 'The bright hour. A memoir of living and dying'

The bright hour. A memoir of living and dying (2017)

The Text Publishing Company (UK) Ltd

In January 2015 Nina was diagnosed with breast cancer, and it metastasised later that year. She was thirty-eight years old; her mother had died only a few months earlier from multiple myeloma. Nina Riggs grew up in a contemplative family: her great-great-great-grandfather was Ralph Waldo Emerson, and she was raised to turn to his essays for 'guidance, inspiration, and something to push against'. THE BRIGHT HOUR is Nina's intimate, unflinching account of 'living with death in the room'. She tells her story in a series of absurd, poignant and often hilarious vignettes drawn from a life that has 'no real future or arc left to it, yet still goes on as if it does'. This unforgettable memoir leads the reader into the innermost chambers of the writer's life: into the mind and heart, the work and home and family, of a young woman alternately seeking to make peace with and raging against the reality of her approaching death. (Publisher)

Cover image of 'Making peace with the end of life. A clear and comforting guide to help you live well to the last'

Making peace with the end of life. A clear and comforting guide to help you live well to the last (2017)

Creative Pumpkin Publishing

From GP and hospice doctor Patrick Fitzgerald and bestselling author Sarah Rayner (Making Friends with Anxiety, One Moment, One Morning) comes a warm and wise companion to help support you and those caring for you in the last months, weeks and days of life. From the shock of diagnosis, through treatment options and symptom control to the process of dying itself, Making Peace with the End of Life tackles these sensitive issues with compassion and honesty. Full of practical advice and important contact information, it will also help to demystify how the NHS and Social Services work, so you can access the best support more easily. And, drawing on Patrick’s extensive clinical experience, it also looks at how communicating your wishes to those involved in your care can give a feeling of safety and control over whatever happens in the future. There are tips on self-nurturing using diet, light exercise and alternative therapies, plus guidance on how to care for your own mental health – including advice for carers. And for those who are anxious about what lies ahead, patient stories and quotes from those who’ve been there help to explain what to expect, thereby easing worry and panic so you feel less alone. Offset by Sarah’s joyful illustrations, the result is a clear and compassionate guide that aims to make these complex and distressing issues less confusing and overwhelming, so each individual can live the life they have left with a greater sense of comfort and peace. (Publisher)

Cover image of 'The breast reconstruction guidebook'

The breast reconstruction guidebook (2017)

The Johns Hopkins University Press

For a decade The Breast Reconstruction Guidebook has been the best resource on this topic for women who have had a mastectomy. Equal parts science and support, it is filled with stories that illustrate the emotional and physical components of breast reconstruction. Readers will find advice about choosing a doctor and a procedure, insurance and payment issues, how to prepare for surgery, and what to expect during recovery. Expert commentary by physicians and insights from patients inform this book, as does the exhaustive research by the author, a two-time breast cancer survivor who has twice had reconstructive surgery. New in this edition are discussions of: the pros and cons of saline and silicone implants; solutions for post-lumpectomy cosmetic problems; new immediate-delayed reconstruction when post-mastectomy radiation may be required; the benefits and limitations of nipple-sparing mastectomy; considerations for direct-to-implant reconstruction; newly developed tissue flap procedures; who can best apply nipple and areola tattoos and why tattoos may not last; enriching fat with stem cells so it stays in the breast; patient-controlled tissue expansion; how insurance and health care reform affect reconstruction. (Publisher)

Cover image of 'Hair everywhere'

Hair everywhere (2017)

Istros Books

Hair Everywhere is the story of one family and how they manage to cope when the mother is diagnosed with cancer. It is a delicate tale that balances itself between the generations, revealing their strengths and weaknesses in times of trouble. It is also a story about how roles within a family can change when things become challenging, due to sickness or death, allowing some to grow and others to fade. Ultimately, this is a book about life; full of humour and absurdity as well as sadness, and set against an everyday background where the ordinary takes on new significance and colour. Tea Tulic’s debut novel is a brave glance at the human condition. (Publisher)

Cover image of 'Having a bad hair day'

Having a bad hair day (2017)

Clare C Davison

“Tomorrow, you will feel a little bit better.” From a loving childhood, belonging to a large family with no history of breast cancer, Clare was alarmed at age 42 to accidentally discover she had the disease. As a self-employed single mum, Clare documents her memoirs of personal experience and knowledge of the cruel decisions made for the aggressive treatments and hair loss ahead. With an inner strength of humour, Clare’s first book includes her lunch arrangements with Peter Andre, a cake nationally released in her honour, an experience of public speaking, media attention and continued fundraising with a moving excerpt from her son. (Publisher)

Cover image of 'Big tree is sick'

Big tree is sick (2017)

Jessica Kingsley Publishers

Snibbles and Big Tree are best friends! They have always hung out together, and Snibbles loves Big Tree very much. When Big Tree unexpectedly falls ill with woodworm, Snibbles is very upset and angry. The illness is a very bad one and Big Tree does not feel well and doesn't want to play for a long time. Poor Snibbles! He wants Big Tree to get better, but he feels as if there is nothing he can do. What can Snibbles and his friends do to help Big Tree through his treatment and recovery? This beautifully illustrated storybook describes the anger and emotion that many children encounter when a close relative or friend is diagnosed with a long-term illness, such as cancer. The story of Big Tree depicts how things are often out of your control and sets out effective strategies for dealing with these emotions. This story features loveable characters and vivid illustrations, as well as activities for children aged 5+ to complete with their parents or professionals in times of illness and loss. (Publisher)

Cover image of 'Pampering therapy'

Pampering therapy (March 2017)

Look Good...Feel Better

Cover image of 'Expectations of care for patients with a neobladder in the primary care setting'

Expectations of care for patients with a neobladder in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a neobladder in the event of problems with neobladder function, urinary tract infections, or bleeding.

Cover image of 'Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting'

Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with an ileal conduit (urostomy) in the event of problems such as urinary tract infections, bleeding, discharge, a hernia or sore skin.

Cover image of 'Expectations of care for patients with a continent urinary diversion (eg Mitrofanoff) in the primary care setting'

Expectations of care for patients with a continent urinary diversion (eg Mitrofanoff) in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a continent urinary diversion (Mitrofanoff) in the event of problems with pouch function, urinary tract infections, bleeding or discharge.

Cover image of 'Orthotopic/Neo-bladder/bladder reconstruction. An alternative to a urostomy'

Orthotopic/Neo-bladder/bladder reconstruction. An alternative to a urostomy (November 2017)

Urostomy Association

This leaflet describes bladder reconstruction as an alternative to a urostomy. It explains how the new bladder is made and how it works, and gives advice on preparing for surgery and life afterwards.

Cover image of 'The finch in my brain'

The finch in my brain (2017)

Hodder & Stoughton

When film producer Martino Sclavi began experiencing intense headaches, he attributed them to his frenetic lifestyle. As it turned out, he had grade 4 brain cancer and was given 18 months to live. After undergoing brain surgery - while awake - Martino found he had lost the ability to recognise words. His response was to close his eyes and begin to move his fingers across the keyboard to write this, an account of life before diagnosis and since. Defying all predictions Martino is still very much alive, words read out to him by the monotone of a computerised voice he calls Alex. But he must now live in a new way. This book - that he has written but cannot read - charts the effects of his experience: on his relationship with his young son, his marriage, his work and with himself. In the wake of his illness, everything must be reconfigured and Martino is made to question the habits, dreams and beliefs of his old life and confront the present. What he finds is strange and beautiful. Searching for the words between life and death, Sclavi shows that with determination and a subtle, persistent sense of humour, it is possible to change the story of our lives. (Publisher)

Cover image of 'Breathlessness. What to do if you get out of breath'

Breathlessness. What to do if you get out of breath (November 2017)

British Lung Foundation

This booklet explains what breathlessness is, the causes of acute and chronic breathlessness, the tests that might be necessary and management of breathlessness. It is not cancer specific.

Cover image of 'Sex and breathlessness'

Sex and breathlessness (March 2017)

British Lung Foundation

This illustrated leaflet has guidance for people with lung disease on how to enjoy a fulfilling sex life.

Cover image of 'My brother or sister has cancer. A children's guide to coping with cancer'

My brother or sister has cancer. A children's guide to coping with cancer (August 2016)

Children's Cancer and Leukaemia Group

This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.

Cover image of 'The cancer whisperer. How to let cancer heal your life'

The cancer whisperer. How to let cancer heal your life (2016)

Coronet (Hodder & Stoughton)

This book does not offer a cure for cancer. It offers a cure for your fear of cancer. Both memoir and self-help book, this is the remarkable chronicle of a passage from 'terminal' diagnosis to exuberant wellness in just a few months. The Cancer Whisperer reverses our traditional adversarial relationship with cancer by teaching us how to listen to it; how to be healed by it as well as seek to cure it; and how to be emotionally free of illness even when physically curtailed. Living on the frontier between her fierce will to live and necessary willingness to die, Sophie - now thriving with cancer - shares her journey with searing honesty, unapologetic vulnerability and intelligent pragmatism. Alongside rare insights into a condition now affecting approximately one in three people, she challenges the mental conditioning we need to overcome to redefine our narratives about cancer. As 'the cancer whisperer', she offers a groundbreaking practical guide that will encourage cancer patients to: Direct their own treatment while preserving their personhood in a system that tends to see them as patients more than people. Engage with fear, anger and grief in healthy and healing ways instead of toughing it out, trying to be positive or collapsing into despair. Radically shift from being a cancer victim to a cancer listener-to seeing cancer less as a disease than as a symptom of other underlying causes, and engaging proactively with whatever changes it calls on them to make. Discover what the author calls 'the whispering, the reaching into a well of darkness and finding your hands painted with light'. Inspired, wise and moving, this book is as unflinching as Lisa Lynch's The C Word, as uplifting as Kris Carr's Crazy, Sexy Cancer, and carries us to a new threshold in our relationship with cancer, strengthening our ability to meet it with courage, creativity, gratitude and grace. (Publisher)

Cover image of 'Eating well following treatment and recovery from cancer. A guide for patients and carers'

Eating well following treatment and recovery from cancer. A guide for patients and carers (February 2016)

Christie Hospital NHS Trust

Advice about what to eat and what not to eat following treatment. 

Cover image of 'Advanced prostate cancer'

Advanced prostate cancer (November 2016)

Prostate Cancer UK

Factsheet for men who have been diagnosed with advanced (metastatic) prostate cancer. It explains what advanced prostate cancer is, and describes how it is diagnosed, the grading and staging, and the treatment options (hormone therapy).

Cover image of 'Breast cancer. The key facts'

Breast cancer. The key facts (April 2016)

Breast Cancer Now

This small leaflet briefly explains what breast cancer is, what causes it, routine screening, how it is treated, and how to be breast aware.

Cover image of 'The stages of ovarian cancer'

The stages of ovarian cancer (January 2016)

Ovacome

This factsheet describes the four stages of ovarian cancer. Includes a glossary.

Cover image of 'Localised prostate cancer'

Localised prostate cancer (September 2016)

Prostate Cancer UK

This factsheet provides an overview of localised prostate cancer: what it is; what tests are used to diagnose it; grading and staging; treatment options; and choosing treatment.

Cover image of 'Managing family life and cancer. A practical guide for parents of a child with cancer'

Managing family life and cancer. A practical guide for parents of a child with cancer (December 2016)

Children's Cancer and Leukaemia Group

This booklet, witten by parents for parents, aims to help parents manage and enjoy family life when a child has cancer.

Cover image of 'The emotional impact of a blood cancer'

The emotional impact of a blood cancer (April 2016)

Leukaemia CARE

Leaflet for anyone recently diagnosed with a blood or lymphatic cancer, receiving treatment, worried that their cancer might come back, or supporting a family member or friend. It describes where to get information and how to ask. It also discusses feelings and the changes that people experience: daily routine; finances; relationships; roles; physical changes.

Cover image of 'Prostate cancer. Information for black men'

Prostate cancer. Information for black men (November 2016)

Prostate Cancer UK

This pocket guide provides information about black men's risk of prostate cancer and what they can do about it. 

Cover image of 'Screening for pancreatic cancer'

Screening for pancreatic cancer (January 2016)

Pancreatic Cancer UK

This factsheet is for anyone who would like to find out more about screening for pancreatic cancer. It explains what cancer screening is, why there is no screening of the general population for pancreatic cancer, and how people at higher risk of pancreatic cancer may be able to have screening.

Cover image of 'Lung cancer. Answering your questions'

Lung cancer. Answering your questions (2016)

Roy Castle Lung Cancer Foundation

This pack contains booklets on living with lung cancer and managing lung cancer symptoms, along with a DVD (Living with lung cancer).

Cover image of 'Diet, physical activity and your risk of prostate cancer'

Diet, physical activity and your risk of prostate cancer (February 2016)

Prostate Cancer UK

This leaflet is for men who want to eat more healthily and possibly reduce their risk of prostate cancer. It describes a healthy diet and lists the foods that may reduce the risk of prostate cancer and those that may increase it.

Cover image of 'What is pancreatic cancer?'

What is pancreatic cancer? (June 2016)

Pancreatic Cancer UK

This factsheet explains the pancreas and what it does. It also explains what pancreatic cancer is.

Cover image of 'Is there a link between ovarian cancer and talcum powder?'

Is there a link between ovarian cancer and talcum powder? (January 2016)

Ovacome

This factsheet describes the research evidence to date.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (September 2016)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'Treatments for relapsed advanced ovarian cancer - what choices do I have?'

Treatments for relapsed advanced ovarian cancer - what choices do I have? (January 2016)

Ovacome

This factsheet describes how advanced ovarian cancer may be treated, based on the NICE recommendations.

Cover image of 'Locally advanced prostate cancer'

Locally advanced prostate cancer (September 2016)

Prostate Cancer UK

This factsheet provides an overview of locally advanced prostate cancer: what it is; what tests are used to diagnose it; grading and staging; treatment options; and choosing treatment.

Cover image of 'Ovarian cancer and sexuality'

Ovarian cancer and sexuality (January 2016)

Ovacome

This factsheet has information and advice about sexuality during and after treatment for ovarian cancer. It covers topics such as sexual relations, psychological and emotional effects, and the physical effects that can affect sexual response.

Cover image of 'Breast cancer treatments and osteoporosis'

Breast cancer treatments and osteoporosis (January 2016)

National Osteoporosis Society

This factsheet describes what osteoporosis is, and considers the link between breast cancer treatments and the risk of developing osteoporosis.

Cover image of 'Signs and symptoms of ovarian cancer'

Signs and symptoms of ovarian cancer (January 2016)

Ovacome

This factsheet briefly describes the most common symptoms of ovarian cancer, as well as other symptoms that may be experienced.

Cover image of 'How prostate cancer is diagnosed'

How prostate cancer is diagnosed (July 2016)

Prostate Cancer UK

This factsheet describes the tests used to diagnose prostate cancer and explains what the results might show. The tests include the PSA test, digital rectal examination, TRUS (trans-rectal ultra sound) guided biopsy, CT scan, MRI scan and a bone scan. It also explain s the staging and grading of prostate cancer.

Cover image of 'Types of pancreatic cancer'

Types of pancreatic cancer (August 2016)

Pancreatic Cancer UK

There are different types of pancreatic cancer. This factsheet explains the different types, including the most common type, pancreatic ductal adenocarcinoma, neuroendocrine tumours, and rarer types of pancreatic cancer. 

Cover image of 'PSA testing and prostate cancer: advice for well men aged 50 and over'

PSA testing and prostate cancer: advice for well men aged 50 and over (2016)

Public Health England

This information sheet aims to give men balanced information so that they can decide whether to have the PSA test.

Cover image of 'Screening for ovarian cancer'

Screening for ovarian cancer (January 2016)

Ovacome

This factsheet describes the tests that could be carried out to screen for ovarian cancer (internal examination; CA125 blood test; and ultrasound), their effectiveness, the problems of screening for ovarian cancer, and the studies that are in progress. It also provides broad guidelines for women at low and high risk of developing ovarian cancer.

Cover image of 'How prostate cancer is diagnosed [large print]'

How prostate cancer is diagnosed [large print] (July 2016)

Prostate Cancer UK

This factsheet describes the tests used to diagnose prostate cancer and explains what the results might show. The tests include the PSA test, digital rectal examination, TRUS (trans-rectal ultra sound) guided biopsy, CT scan, MRI scan and a bone scan. It also explains the staging and grading of prostate cancer.

Cover image of 'An easy guide to bowel cancer screening'

An easy guide to bowel cancer screening (June 2016)

NHS Cancer Screening Programmes

This leaflet uses illustrations to explain the bowel screening test.

Cover image of 'The essential work and cancer toolkit'

The essential work and cancer toolkit (2016)

Macmillan Cancer Support

Toolkit for HR and occupational health employers. Employers can order up to 5 copies of the toolkit by registering for Macmillan at Work.

Cover image of 'About ovarian cancer'

About ovarian cancer (January 2016)

Ovacome

This factsheet describes how ovarian cancer is diagnosed, the different types of ovarian cancer, and the treatment options.

Cover image of 'Understanding the PSA test. A guide for men concerned about prostate cancer'

Understanding the PSA test. A guide for men concerned about prostate cancer (November 2016)

Prostate Cancer UK

A booklet for men who are considering having a PSA test or who want to know more about PSA. It describes the different problems that affect the prostate gland, the risk factors for prostate cancer, the factors that can affect PSA levels, the tests that the GP can do and what the results may show, and what may happen if the GP refers you to a specialist. The final section lists the advantages and disadvantages of having a PSA test and suggests some questions to ask the doctor.

Cover image of 'Clinical trials for pancreatic cancer'

Clinical trials for pancreatic cancer (April 2016)

Pancreatic Cancer UK

This factsheet is for anyone who would like to find out more about clinical trials for pancreatic cancer. Clinical trials can be an important treatment option for people with pancreatic cancer. The factsheet explains what clinical trials are, what they involve and why they are important.

Cover image of 'Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial'

Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial (April 2016)

Children's Cancer and Leukaemia Group

Information for teenagers and young adults about research and clinical trials.

Cover image of 'Helping brothers and sisters. A guide for adults supporting siblings of children with cancer'

Helping brothers and sisters. A guide for adults supporting siblings of children with cancer (February 2016)

Children's Cancer and Leukaemia Group

This illustrated leaflet is designed to help adults who come into contact with the siblings of children with cancer. It explains the problems that siblings may have and how adults can best help them cope.

Cover image of 'Early prostate cancer explained'

Early prostate cancer explained (July 2016)

Prostate Scotland

This booklet has detailed information about early prostate cancer, and is aimed at helping men, their partners and families understand about prostate cancer, the tests, investigations and treatment options and help them decide on the treatment that suits them best.

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