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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1717

Cover image of 'Living with an illness that you will probably die from. Who can help? [Easy read]'

Living with an illness that you will probably die from. Who can help? [Easy read] (June 2017)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about the different people who can help them and care for them.

Cover image of 'Make time for breast screening [Chinese, Traditional]'

Make time for breast screening [Chinese, Traditional] (2017)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Looking after someone. Information for carers 2018'

Looking after someone. Information for carers 2018 (October 2017)

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available.

Cover image of 'A smear test could save your life. Don't ignore your invitation [Chinese, Traditional]'

A smear test could save your life. Don't ignore your invitation [Chinese, Traditional] (2017)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'Our list'

Our list (2017)

Independently published

This booklet for children and young people illustrates how one family coped with a cancer diagnosis by drawing up a list of things to things to do that might help to cheer them up.

Cover image of 'Bowel scope screening. An easy guide'

Bowel scope screening. An easy guide (October 2017)

Public Health England

Easy read booklet about bowel scope screening.

Cover image of 'Caring for someone with an illness they will probably die from. Who can help? [Easy read]'

Caring for someone with an illness they will probably die from. Who can help? [Easy read] (June 2017)

Marie Curie

Marie Curie has written this Easy Read booklet to tell you about the different people who can help if you are caring for someone with an illness they will probably die from.

Cover image of 'Breast awareness and screening'

Breast awareness and screening (May 2017)

Action Cancer

This leaflet describes when and how to check the breasts for changes and what to look for. It briefly explains what a mammogram is. Contains information on local services and describes the work of Action Cancer in Northern Ireland.

Cover image of 'Phyllodes tumours: malignant and borderline malignant'

Phyllodes tumours: malignant and borderline malignant (August 2017)

Breast Cancer Care

This leaflet describes what malignant and borderline malignant phyllodes tumours are, the symptoms, how they are diagnosed, and the treatment options.

Cover image of 'Caring for someone with an illness they will probably die from. Money and work [Easy read]'

Caring for someone with an illness they will probably die from. Money and work [Easy read] (June 2017)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about money and work if you are caring for someone with an illness they will probably die from.

Cover image of 'Abdominal and pelvic ultrasound scans of your ovaries'

Abdominal and pelvic ultrasound scans of your ovaries (June 2017)

Target Ovarian Cancer

Information about abdominal and pelvic ultrasound scans for women whose GP has referred them for these tests.

Cover image of 'Living with an illness that you will probably die from. Your family and friends [Easy read]'

Living with an illness that you will probably die from. Your family and friends [Easy read] (June 2017)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about talking to family and friends.

Cover image of 'Caring for a person with a stoma and dementia'

Caring for a person with a stoma and dementia (December 2017)

Colostomy UK

Teaching a person with dementia how to care for their stoma is not possible in all cases, but where it is possible, attempts should be made to encourage them. The level of independence achievable will vary. A person with dementia may benefit from extra time and repetition of the tips in this booklet, which were suggested by healthcare professionals who have been actively involved in the care of ostomates with dementia.

Cover image of 'Large granular lymphocytic leukaemia'

Large granular lymphocytic leukaemia (July 2017)

Bloodwise

Large granular lymphocytic leukaemia (LGLL) is a type of blood cancer and a rare form of leukaemia. This factsheet describes the causes, risk factors, diagnosis and treatment. 

Cover image of 'Vinorelbine and cisplatin chemotherapy [Traditional Chinese]'

Vinorelbine and cisplatin chemotherapy [Traditional Chinese] (November 2017)

Macmillan Cancer Support

Vinorelbine and cisplatin may be used to treat non-small-cell lung cancer. This factsheet describes what it is, how the drugs are given and the possible side-effects.

Cover image of 'CA125 blood test'

CA125 blood test (June 2017)

Target Ovarian Cancer

This factsheet describes the CA125 blood test: what it is; why it is being carried out; what the results mean.

Cover image of 'Monoclonal gammopathy of unknown significance (MGUS)'

Monoclonal gammopathy of unknown significance (MGUS) (July 2017)

Bloodwise

Monoclonal gammopathy of undetermined significance (MGUS) is a condition that occurs when your plasma cells develop in an unusual way in your bone marrow. MGUS itself is generally a harmless blood condition, however a small number of people with MGUS go on to develop blood cancer. 

Cover image of 'Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis'

Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis (2017)

The Johns Hopkins University Press

The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)

Cover image of 'Caring for someone with an illness they will probably die from. Looking after yourself [Easy read]'

Caring for someone with an illness they will probably die from. Looking after yourself [Easy read] (June 2017)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.

Cover image of 'Hug everyone you know: a year of community, courage, and cancer'

Hug everyone you know: a year of community, courage, and cancer (2017)

She Writes Press

Antoinette Martin believed herself to be a healthy and sturdy woman--that is, until she received a Stage 1 breast cancer diagnosis. Cancer is scary enough for the brave, but for a wimp like Martin, it was downright terrifying. Martin had to swallow waves of nausea at the thought of her body being poisoned, and frequently fainted during blood draws and infusions. To add to her terror, cancer suddenly seemed to be all around her. In the months following her diagnosis, a colleague succumbed to cancer, and five of her friends were also diagnosed. Though tempted, Martin knew she could not hide in bed for ten months. She had a devoted husband, daughters, and a tribe of friends and relations. Along with work responsibilities, there were graduations, anniversaries, and roller derby bouts to attend, not to mention a house to sell and a summer of beach-bumming to enjoy. In order to harness support without scaring herself or anyone else, she journaled her experiences and began to e-mail the people who loved her--the people she called My Everyone. She kept them informed and reminded all to 'hug everyone you know' at every opportunity. Reading the responses became her calming strategy. Ultimately, with the help of her community, Martin found the courage within herself to face cancer with perseverance and humor. (Publisher)

Cover image of 'Interferon alpha [Arabic]'

Interferon alpha [Arabic] (March 2017)

Macmillan Cancer Support

Interferon alpha is a biological therapy that may be used to treat kidney cancer, melanoma, carcinoid tumours, and some types of lymphoma and leukaemia. This factsheet describes how it works, how it is given, and some of the possible side-effects. Includes the English-language version.

Cover image of 'Understanding Hodgkin lymphoma'

Understanding Hodgkin lymphoma (December 2017)

Macmillan Cancer Support

This booklet explains what Hodgkin lymphoma is, and provides information on symptoms, diagnosis, the stages, and treatment options. It also covers issues such as fertility, feelings, and practical and financial support. 

Cover image of 'Tommy v cancer.  One man's battle against the big C'

Tommy v cancer. One man's battle against the big C (2017)

Independently published

On Thursday, 10th of March 2016, I returned home from a hospital appointment and broke the news to my wife and children. I had throat cancer. Stage four. Inoperable. Desperately needing some way to make sense of my situation, I set up a blog to chart my battle against the disease. I hoped it would allow me to understand more about this thing inside me, and what I would have to go through in terms of treatment to try to eradicate it. I also thought it might help other people who found themselves in similar circumstances. I made a promise to my readers to be open and honest all the way. I wouldn't hold anything back, no matter how unpleasant. Now, over a year later, I have adapted that blog into this book. It details my journey from when I first realised that something was wrong, through the intense courses of chemotherapy and radiotherapy, to where I am today. To say that journey was difficult is a vast understatement. The side effects of my treatment utterly kicked my arse, causing me to lose over half my bodyweight and fall seriously ill with double pneumonia and sepsis. Totally unresponsive, I was rushed into intensive care where the doctors told my family that, if they couldn't stabilise me, I had approximately two hours left to live. One option was to put me into a medically induced coma, although the chances were high that I would never emerge from it. Imagine someone telling you that about your loved one as they lie there, unconscious and struggling to breathe. Cancer is an invader that affects more than just the patient. Everyone suffers - spouses, siblings, children, extended family, friends. Even, as I was to discover, strangers from all over the world. I was overwhelmed with the love and kindness of almost everyone who contacted me, but I also suffered terrible abuse at the hands of online trolls. I should warn you that parts of this book do not make for easy reading. I kept my promise to be honest, and wrote many of the blog entries when I was depressed and scared, certain I wouldn't live to see another dawn. I convinced myself that I would quickly perish, leaving my wife and two sons - then aged 9 and 17 - alone, and with no-one to protect them or provide for them. I wouldn't get to see them grow up, develop into young men, and eventually have children of their own. The prospect terrified me. For those of you who followed my blog and read the posts as I uploaded them, you haven't seen everything. This book c

Cover image of 'Interferon alpha (IntronA®, Roferon-A®) [French]'

Interferon alpha (IntronA®, Roferon-A®) [French] (February 2017)

Macmillan Cancer Support

Interferon alpha is a biological therapy that may be used to treat kidney cancer, melanoma, carcinoid tumours, and some types of lymphoma and leukaemia. This factsheet describes how it works, how it is given, and some of the possible side-effects.

Cover image of 'Pazopanib (Votrient®) [Slovak]'

Pazopanib (Votrient®) [Slovak] (June 2017)

Macmillan Cancer Support

Pazopanib is a targeted therapy drug used to treat a type of kidney cancer called renal cell carcinoma. It can also treat some soft tissue sarcomas. This factsheet describes how it works, how it is given, and the possible side-effects.

Cover image of 'Capecitabine (Xeloda®) [Polish]'

Capecitabine (Xeloda®) [Polish] (June 2017)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and describes some of the possible side-effects.

Cover image of 'Trastuzumab (Herceptin®) [Portuguese]'

Trastuzumab (Herceptin®) [Portuguese] (May 2017)

Macmillan Cancer Support

Trastuzumab (Herceptin®) may be used to treat breast cancer and stomach cancer. It may also be used to treat other cancers as part of a research trial. This factsheet explains how it works, how it is given, and possible side-effects.

Cover image of 'Paclitaxel [Portuguese]'

Paclitaxel [Portuguese] (October 2017)

Macmillan Cancer Support

Paclitaxel is most commonly used to treat breast, ovarian and non-small-cell lung cancer. This factsheet describes how it is given and the possible side-effects.

Cover image of 'FEC chemotherapy [Portuguese]'

FEC chemotherapy [Portuguese] (September 2017)

Macmillan Cancer Support

FEC is a combination chemotherapy treatment for breast cancer. This factsheet describes the drugs, how they are given and some of the possible side-effects.

Cover image of 'Ipilimumab [Bulgarian]'

Ipilimumab [Bulgarian] (March 2017)

Macmillan Cancer Support

Ipilimumab is a targeted therapy drug used to treat advanced melanoma. This describes how it works, how it is given, and some of the possible side-effects.

Cover image of 'Imatinib [Czech]'

Imatinib [Czech] (2017)

Macmillan Cancer Support

Imatinib is a cancer growth inhibitor. This factsheet describes how it works, how it is given, and possible side-effects.

Cover image of 'FEC-T chemotherapy [Romanian]'

FEC-T chemotherapy [Romanian] (September 2017)

Macmillan Cancer Support

This information describes the FEC-T chemotherapy regimen, which is used to treat breast cancer. It describes the drugs used, how treatment is given, and some of the possible side-effects.

Cover image of 'Understanding Hodgkin lymphoma [Polish]'

Understanding Hodgkin lymphoma [Polish] (2017)

Macmillan Cancer Support

A translation of the pages on chemotherapy from the Macmillan Cancer Support booklet “Understanding Hodgkin lymphoma”.

Cover image of 'Capecitabine (Xeloda®) [Turkish]'

Capecitabine (Xeloda®) [Turkish] (2017)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and describes some of the possible side-effects.

Cover image of 'Paclitaxel [French]'

Paclitaxel [French] (October 2017)

Macmillan Cancer Support

Paclitaxel is most commonly used to treat breast, ovarian and non-small-cell lung cancer. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Gemcitabine (Gemzar®) [Bulgarian]'

Gemcitabine (Gemzar®) [Bulgarian] (September 2017)

Macmillan Cancer Support

Gemcitabine is most commonly used to treat non-small-cell lung cancer, pancreatic, bladder and breast cancer. This factsheet describes how it is given and the possible side-effects.

Cover image of 'FEC-T chemotherapy [Polish]'

FEC-T chemotherapy [Polish] (2017)

Macmillan Cancer Support

This information describes the FEC-T chemotherapy regimen, which is used to treat breast cancer. It describes the drugs used, how treatment is given, and some of the possible side-effects.

Cover image of 'FEC chemotherapy [Arabic]'

FEC chemotherapy [Arabic] (2017)

Macmillan Cancer Support

FEC is a combination chemotherapy treatment for breast cancer. This factsheet describes the drugs, how they are given and some of the possible side-effects.

Cover image of 'Capecitabine (Xeloda®) [Urdu]'

Capecitabine (Xeloda®) [Urdu] (2017)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and describes some of the possible side-effects.

Cover image of 'Paclitaxel [Arabic]'

Paclitaxel [Arabic] (October 2017)

Macmillan Cancer Support

Paclitaxel is most commonly used to treat breast, ovarian and non-small-cell lung cancer. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Breast screening [Thai]'

Breast screening [Thai] (March 2017)

Macmillan Cancer Support

This factsheet explains what breast screening is, including its advantages and disadvantages, and describes what happens during a mammogram.

Cover image of 'Sorafenib (Nexavar®) [Arabic]'

Sorafenib (Nexavar®) [Arabic] (March 2017)

Macmillan Cancer Support

Sorafenib is a multi-targeted kinase inhibitor that is used to treat people with kidney, liver, or differentiated thyroid cancer. This factsheet describes how it works, how it is given, and the possible side-effects. Includes the English-language version.

Cover image of 'Paclitaxel and carboplatin (Taxol/Carbo) chemotherapy [Polish]'

Paclitaxel and carboplatin (Taxol/Carbo) chemotherapy [Polish] (2017)

Macmillan Cancer Support

Paclitaxel (Taxol®) and carboplatin is a combination chemotherapy regime used to treat cancer of the ovary and cancer of the lung. This factsheet describes the drugs, how they are given and the possible side-effects.

Cover image of 'Understanding chronic myeloid leukaemia'

Understanding chronic myeloid leukaemia (July 2017)

Macmillan Cancer Support

This booklet has detailed information about chronic myeloid leukaemia, its symptoms, diagnosis, and treatments. It also covers issues such as fertility and feelings, and includes details of useful organisations, and websites.

Cover image of 'A guide for people with dementia'

A guide for people with dementia (September 2017)

Macmillan Cancer Support|Dementia UK

Some people who have cancer also have dementia. Having both conditions can be difficult for you and the people close to you. The number of people living with both cancer and dementia is growing. We have written this booklet to give people information about living with both conditions and tell people where they may be able to get help.

Cover image of 'Living with an illness that you will probably die from. How to keep comfortable, healthy and happy [Easy read]'

Living with an illness that you will probably die from. How to keep comfortable, healthy and happy [Easy read] (June 2017)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about how to keep comfortable, healthy and happy.

Cover image of 'Bowel health and screening: carers guide. A booklet for carers of people who use easy read materials [England]'

Bowel health and screening: carers guide. A booklet for carers of people who use easy read materials [England] (January 2017)

Bowel Cancer UK

Carers can play an important role in helping people make the best choices about their health. This booklet will help you talk with the person or people you support, about keeping their bowel healthy and getting their bowel checked. 

Cover image of 'Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read] (June 2017)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

Cover image of 'Checking your bowel is healthy. The NHS bowel scope test for people who are 55 years old [Easy read]'

Checking your bowel is healthy. The NHS bowel scope test for people who are 55 years old [Easy read] (January 2017)

Bowel Cancer UK

This easy read booklet tells you how to keep your bowel healthy and decide whether to have the NHS bowel scope test.

Cover image of 'Understanding breast screening'

Understanding breast screening (March 2017)

Macmillan Cancer Support

This booklet aims to help women understand why breast screening is carried out, the methods used, and what happens if an abnormality is detected. The advantages of screening as well as the difficulties are described. Includes details of useful organisations and other resources such as books and websites.

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