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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1682

Cover image of 'Your smear test results [Easy read]'

Your smear test results [Easy read] (2018)

NHS Health Scotland

Easy read information for women about what happens after their cervical screening test, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Looking after someone. Information and support for carers in Wales'

Looking after someone. Information and support for carers in Wales (October 2018)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Looking after someone. Information and support for carers in Northern Ireland'

Looking after someone. Information and support for carers in Northern Ireland (October 2018)

Carers Northern Ireland

Guidance and advice for carers in Northern Ireland. This guide is designed to outline the support available and your rights as a carer. 

Cover image of 'Understanding cancer research trials (clinical trials)'

Understanding cancer research trials (clinical trials) (April 2018)

Macmillan Cancer Support

This booklet explains what clinical trials are, and why and how they are carried out. It describes the different types of trials and suggests questions that people might ask before deciding whether to take part in a clinical trial. Includes details of useful organisations and other resources.

Cover image of 'Managing the late effects of head and neck cancer treatment'

Managing the late effects of head and neck cancer treatment (July 2018)

Macmillan Cancer Support

Information for people who have had treatment for head and neck cancer and who are experiencing side-effects after treatment has ended.

Cover image of 'P.S. I have cancer. Wrestling melanoma and falling in love'

P.S. I have cancer. Wrestling melanoma and falling in love (2018)

Poetry Space Ltd

Mark Sims, a young doctor was diagnosed with advanced skin cancer just before his 27th birthday. This is the story of his 23-month wrestle with the disease, his passion to raise awareness and funds for vital research and how he found love quite unexpectedly, while working through his bucket list. Sadly, Mark died on January 19th 2017. His book is being published posthumously. (Publisher)

Cover image of 'Ductal carcinoma in situ (DCIS)'

Ductal carcinoma in situ (DCIS) (March 2018)

Breast Cancer Care

This booklet describes ductal carcinoma in situ (DCIS), the symptoms, how a diagnosis is made, the different types of DCIS, and the treatment options. It also has a short section on coping with breast cancer.

Cover image of 'Barrett's oesophagus'

Barrett's oesophagus (2018)

Guts UK

This leaflet describes Barrett's oesophagus, how it is caused, the symptoms, diagnosis and treatment.

Cover image of 'Having a smear test. What is it about? [Easy read]'

Having a smear test. What is it about? [Easy read] (June 2018)

Jo's Cervical Cancer Trust

An easy read guide for women thinking about having a smear test.

Cover image of 'The unremarkable man. My encounter with cancer'

The unremarkable man. My encounter with cancer (2018)

Self-published using CreateSpace Independent Publishing Platform

In this, his first venture into the literary world, Terry Barry has succeeded in producing a distinctive, perceptive and truly heartwarming story about his battle with life-threatening illness and disease, drawing on medical records and diary entries and written in an engagingly immediate style, skilfully and sympathetically addressing the physical, psychological and emotional turmoil that affected him, his family and friends, prompting him to re-evaluate his recollection of past events and determining his aspirations and goals for the future (Publisher).

Cover image of 'Understanding secondary breast cancer'

Understanding secondary breast cancer (October 2018)

Macmillan Cancer Support

This booklet is about secondary breast cancer. This is breast cancer that has spread to another part of the body. It is for anyone who has been diagnosed with secondary breast cancer and explains the signs and symptoms, the different treatments, how to manage symptoms and ways to cope with some of the feelings you may have.

Cover image of 'The bowel screening test. What you need to know [Arabic]'

The bowel screening test. What you need to know [Arabic] (October 2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Understanding cancer of the vulva'

Understanding cancer of the vulva (February 2018)

Macmillan Cancer Support

This booklet provides information on the causes and symptoms of vulval cancer, diagnosis and staging, and treatment options and their side-effects. It also discusses feelings and has advice on self-help and support (including financial benefits). 

Cover image of 'Working with your medical team'

Working with your medical team (2018)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This booklet explores what the ideal medical team for MEN may look like, how you can tell if you are being cared for by an expert medical centre, and how to become an effective part of the team who are helping to keep you in the best health possible. 

Cover image of 'Understanding cancer'

Understanding cancer (2018)

Booklife Publishing

Cancer is a group of diseases in which abnormal cells divide and spread. There are many different kinds of cancer, and different forms of treatment. Cancer is very scary, and can be very difficult to handle physically, emotionally, and mentally. Learning about how cancer affects the body and how it can be treated can help readers who know someone with cancer, or who have cancer themselves. This book can help readers understand complex medical terms and processes through straightforward text. Full-color photographs and fact boxes highlight important information. (Publisher)

Cover image of 'The Boobies (and that nasty thing called cancer)'

The Boobies (and that nasty thing called cancer) (2018)

A Spark In The Sand

Ceara Hayden's book The Boobies is a lighthearted and informative story about breast cancer. Her quirky and witty rhymes convey this serious disease in a way that is accessible to young adults and grown-ups alike. Based on her own experience of her mother's diagnosis, Ceara's story brings warmth, hope (and a little humour) for those suffering or watching a loved one suffer from this devastating illness. All profits from this book will be donated to the breast cancer awareness charity CoppaFeel. (Publisher)

Cover image of 'The bowel screening test. What you need to know'

The bowel screening test. What you need to know (2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Jess's bone marrow donation. A children's guide to bone marrow donation'

Jess's bone marrow donation. A children's guide to bone marrow donation (January 2018)

Children's Cancer and Leukaemia Group

A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.

Cover image of 'Tamoxifen'

Tamoxifen (February 2018)

Breast Cancer Care

This leaflet explains what tamoxifen is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'The bowel screening test. What you need to know [Large print]'

The bowel screening test. What you need to know [Large print] (November 2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Polyps in the bowel'

Polyps in the bowel (2018)

Guts UK

Polyps are usually benign (non-cancerous) but some may eventually become malignant (cancerous). This leaflet explains what polyps are, what symptoms they may cause, and how they are diagnosed and treated.

Cover image of 'Chemotherapy'

Chemotherapy (May 2018)

Ovacome

This factsheet has information about the chemotherapy drugs commonly used to treat ovarian cancer. It covers: What chemotherapy will I need?; Having treatment; Chemotherapy side effects; Treatment with Carboplatin; Treatment with Taxol; Caelyx; Caring for yourself when you are having chemotherapy.

Cover image of 'Clear cell carcinoma of the ovary'

Clear cell carcinoma of the ovary (May 2018)

Ovacome

This factsheet briefly describes clear cell carcinoma of the ovary: what it is; how it is treated; some side-effects of chemotherapy; and what happens after treatment has finished.

Cover image of 'Borderline ovarian tumours'

Borderline ovarian tumours (May 2018)

Ovacome

This factsheet explains what is meant by borderline ovarian cancer and the three situations that might cause concern or uncertainty: borderline ovarian tumours that have spread beyond the ovary (non-invasive and invasive implants); mucinous borderline tumours; stage-1 borderline ovarian tumours in young women treated with limited surgery.

Cover image of 'Medical terms explained'

Medical terms explained (May 2018)

Ovacome

A glossary of medical terms that women with ovarian cancer may come across.

Cover image of 'Rare ovarian tumours'

Rare ovarian tumours (May 2018)

Ovacome

This factsheet describes some of the rarer ovarian cancers and how they may be treated, namely: germ cell tumours; sex-cord stromal tumours (granulosa cell tumour and Sertoli-Leydig cell tumours); small-cell carcinoma of the ovary; Brenner tumours; and Krukenberg tumours.

Cover image of 'Surgical menopause'

Surgical menopause (May 2018)

Ovacome

This factsheet describes treatment-induced menopause and offers advice about symptoms such as hot flushes, vaginal dryness and osteoporosis.

Cover image of 'Blocked bowel'

Blocked bowel (May 2018)

Ovacome

A blocked bowel (or bowel obstruction) is a possible complication of ovarian cancer. This factsheet describes how a low fibre (fibre-restricted) diet may help.

Cover image of 'What happens if you are diagnosed'

What happens if you are diagnosed (May 2018)

Ovacome

A checklist of questions for women with ovarian cancer to ask their doctor. It is divided into sections such as: What can I expect to happen now?; At your appointment; What if I have ovarian cancer?; My treatment has finished. Now what?. It also has advice on how women can help themselves; for example, talking to others, support groups, and counselling.

Cover image of 'Feeling and being sick'

Feeling and being sick (August 2018)

Pancreatic Cancer UK

This factsheet is for anyone who would like to find out more about feeling and being sick when you have pancreatic cancer. It explains what causes sickness and the treatments available that can help you. 

Cover image of 'Pelvic radiation disease'

Pelvic radiation disease (2018)

Guts UK

Pelvic radiation disease is a term used to describe a collection of symptoms that can arise after radiotherapy treatment to the abdomen or pelvis for cancers such as cervical, prostate, bladder and bowel cancers. This leaflet describes the causes, symptoms, how it is diagnosed, the treatment options, and the impact.

Cover image of 'Looking after someone. Information and support for carers in Scotland'

Looking after someone. Information and support for carers in Scotland (October 2018)

Carers Scotland

Guidance and advice for carers in Scotland. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Breast reconstruction'

Breast reconstruction (January 2018)

Breast Cancer Care

This booklet is for women considering breast reconstruction after breast surgery to treat breast cancer.

Cover image of 'Capecitabine (Xeloda)'

Capecitabine (Xeloda) (March 2018)

Breast Cancer Care

This booklet explains briefly what capecitabine (Xeloda®) is, when it may be prescribed, how it works, and possible side-effects.

Cover image of 'Radiation diaries. Cancer, memory and fragments of a life in words'

Radiation diaries. Cancer, memory and fragments of a life in words (2018)

Fentum Press

After a life of reading and writing, what does it feel like to be deprived of both, to be thrown back only on what’s in your head? The literary snippets that emerge into Todd’s consciousness during a month of radiation are sometimes apt, often ludicrous. They draw her back into childhood in Wales, Bermuda, Ceylon when literature functioned as friend and escape, to her unquiet past in sixties Ghana, then America at the dawn of the rights movements. Her father, nearing 100, is caught in the same ‘hospital-land’: both learn the selfishness of sickness and both respond by telling stories. (Publisher)

Cover image of 'Lymphoma drug development, approval and funding'

Lymphoma drug development, approval and funding (October 2018)

Lymphoma Action

This factsheet explains why drug development takes so long, why drugs are so expensive and how you can find out if a drug might be funded on the NHS. 

Cover image of 'Help with health costs'

Help with health costs (August 2018)

Age UK

Most NHS services are free but there are charges for prescriptions, dental treatment, sight tests, glasses and contact lenses and wigs and fabric supports. This factsheet explains how the NHS Low Income Scheme helps people on a low income with charges and the cost of travelling to receive NHS treatment.  The factsheet explains what you are entitled to if you: are aged 60 and over; receive Pension Credit Guarantee Credit.

Cover image of 'Managing the late effects of bowel cancer treatment'

Managing the late effects of bowel cancer treatment (April 2018)

Macmillan Cancer Support

This booklet has information for people who are still having side-effects six months or more after treatment for bowel cancer. It describes the possible side-effects, how they can be managed and who can help. The side-effects discussed include changes to bowel function, changes to bladder function, tiredness, concentration and memory problems, peripheral neuropathy, sexual difficulties, and feelings and relationships.

Cover image of 'The bowel screening test. What you need to know [Chinese, Simplified]'

The bowel screening test. What you need to know [Chinese, Simplified] (2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Understanding infection'

Understanding infection (May 2018)

Bloodwise

If you have blood cancer or a related blood condition, you could be at greater risk of infection. This factsheet will help you understand infection and know what to do if you have an infection. It explains what infection is, what causes it, the different types and who is at risk, and describes the symptoms, treatments and how to reduce your risk.

Cover image of 'The bowel screening test. What you need to know [Chinese, Traditional]'

The bowel screening test. What you need to know [Chinese, Traditional] (2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Paget's disease of the breast'

Paget's disease of the breast (August 2018)

Breast Cancer Care

This leaflet discusses the main aspects of Paget's disease of the breast, including what it is, the signs and symptoms, how a diagnosis is made, and the treatment options.

Cover image of 'Make time for breast screening [Urdu]'

Make time for breast screening [Urdu] (2018)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Complementary therapies, relaxation and wellbeing'

Complementary therapies, relaxation and wellbeing (February 2018)

Breast Cancer Care

This booklet is about relaxation and wellbeing during and after breast cancer treatment. It looks at complementary therapies such as acupuncture, Reiki and massage. It also describes some popular relaxation techniques, including meditation and mindfulness, and has information on yoga, Thai Chi and Chi Gung. It discusses why people might use these complementary therapies and relaxation techniques after a diagnosis of breast cancer, and what they may need to think about before trying them. It also explains what herbal medicines and homeopathy are. 

Cover image of 'Make time for breast screening [Arabic]'

Make time for breast screening [Arabic] (2018)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Make time for breast screening [Polish]'

Make time for breast screening [Polish] (2018)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Patient guide. End of life care'

Patient guide. End of life care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Breast screening. 10 minutes could save your life [Easy read]'

Breast screening. 10 minutes could save your life [Easy read] (2018)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Understanding advanced (metastatic) prostate cancer'

Understanding advanced (metastatic) prostate cancer (May 2018)

Macmillan Cancer Support

This booklet gives information about advanced or metastatic cancer of the prostate gland, i.e. cancer that has spread beyond the prostate gland to other parts of the body. It describes the prostate gland and advanced prostate cancer, the symptoms, how it is diagnosed, tests, the grading and staging of prostate cancer, and the treatment options. It concludes with guidance on coping with advanced prostate cancer, financial help and benefits, and sources of further information and support.

Cover image of 'Love and remission: my life, my man, my cancer'

Love and remission: my life, my man, my cancer (2018)

Trigger

In her mid-twenties, balancing a stable job and a partying lifestyle, Annie was also on the hunt for a man. She wanted to find Mr Right, get married, buy a house, and live the life she'd always wanted. But then one day, she found a lump ... Breast cancer. The two words that would derail Annie's life. Suddenly she realised how short her life had been, and the very idea of finding love seemed impossible. As her hair fell out, and her social life crumbled, her mental health deteriorated. She began to question if she would actually survive. Struggling with an identity crisis and worryingly low moods, she wondered if she'd ever be able to live the normal life that had been within her reach only months earlier. Love and Remission tells the tale of a young woman in search of love and mental wellbeing. (Publisher)

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