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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1791

Cover image of 'The cancer roller coaster. How to manage the emotional and mental impact'

The cancer roller coaster. How to manage the emotional and mental impact (2019)

Librotas

Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer

Cover image of 'Photodynamic therapy'

Photodynamic therapy (May 2019)

British Association of Dermatologists

This factsheet aims to help you understand more about photodynamic therapy, which may be used to treat basal cell carcinoma and areas of pre-cancerous skin damage. It explains what it is and what is involved, and describes the potential side effects.

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia CARE

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'Stage 4 melanoma'

Stage 4 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 4 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 3 melanoma'

Stage 3 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 3 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 2 melanoma'

Stage 2 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 2 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 1B melanoma'

Stage 1B melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 1B melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 1A melanoma'

Stage 1A melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 1A melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia CARE

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'When someone dies. Feelings you might have [Easy read]'

When someone dies. Feelings you might have [Easy read] (June 2019)

Marie Curie

This easy read booklet is to help people after someone dies. It tells you about feelings you might have and things that might make you feel better.

Cover image of 'Living with an illness you will probably die from. How to keep comfortable, healthy and happy [Easy read]'

Living with an illness you will probably die from. How to keep comfortable, healthy and happy [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about how to keep comfortable, healthy and happy.

Cover image of 'The HPV vaccine for men who have sex with men [Urdu]'

The HPV vaccine for men who have sex with men [Urdu] (2019)

NHS Health Scotland

This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.

Cover image of '10 top tips for line managers'

10 top tips for line managers (April 2019)

Macmillan Cancer Support

Ten tips to help line managers support an employee through the cancer journey, from diagnosis through treatment and living with cancer.

Cover image of 'Docetaxel (Taxotere®) [Bulgarian]'

Docetaxel (Taxotere®) [Bulgarian] (February 2019)

Macmillan Cancer Support

Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'Docetaxel (Taxotere®) [Spanish]'

Docetaxel (Taxotere®) [Spanish] (February 2019)

Macmillan Cancer Support

Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'Oxaliplatin (Thai)'

Oxaliplatin (Thai) (March 2019)

Macmillan Cancer Support

Oxaliplatin is a chemotherapy drug used to treat bowel, pancreatic, and stomach cancer, cancer and cancer of the oesophagus. It may be used to treat other cancers.

Cover image of 'Docetaxel (Taxotere®) [Filipino]'

Docetaxel (Taxotere®) [Filipino] (February 2019)

Macmillan Cancer Support

Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'Ductal carcinoma in situ (DCIS) [Italian]'

Ductal carcinoma in situ (DCIS) [Italian] (January 2019)

Macmillan Cancer Support

A translation of selected pages from the Macmillan Cancer Support booklet “Understanding ductal carcinoma in situ (MAC12870_E04_N) into Italian, including what it is and surgery.

Cover image of 'Managing breathlessness [Polish]'

Managing breathlessness [Polish] (March 2019)

Macmillan Cancer Support

Polish translation of selected pages from the Macmillan booklet "Managing breathlessness" (MAC12918_E04_N).

Cover image of 'R-CHOP chemotherapy [Slovak]'

R-CHOP chemotherapy [Slovak] (October 2019)

Macmillan Cancer Support

R-CHOP is a combination treatment used to treat non-Hodgkin lymphoma (NHL). This factsheet describes the drugs used, how they are given and the possible side-effects.

Cover image of 'XELOX (or CAPOX) [Lithuanian]'

XELOX (or CAPOX) [Lithuanian] (2019)

Macmillan Cancer Support

XELOX (or CAPOX) may be used to treat advanced bowel cancer. This factsheet describes the drugs used, how they are given and some of the possible side-effects.

Cover image of 'Financial support - benefits [Turkish]'

Financial support - benefits [Turkish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'XELOX (or CAPOX) [Chinese, Traditional]'

XELOX (or CAPOX) [Chinese, Traditional] (2019)

Macmillan Cancer Support

XELOX (or CAPOX) may be used to treat advanced bowel cancer. This factsheet describes the drugs used, how they are given and some of the possible side-effects.

Cover image of 'Book reviews'

Book reviews (December 2019)

Macmillan Cancer Support

Cover image of 'Understanding ductal carcinoma in situ (DCIS)'

Understanding ductal carcinoma in situ (DCIS) (January 2019)

Macmillan Cancer Support

This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.

Cover image of 'What to expect at the end of someone's life. Information for family, friends and carers'

What to expect at the end of someone's life. Information for family, friends and carers (July 2019)

Marie Curie

This leaflet aims to help you prepare for the end of your partner, relative or friend’s life. Knowing what to expect can help you prepare yourself for their last few weeks and days. 

Cover image of 'The HPV vaccine for men who have sex with men [Polish]'

The HPV vaccine for men who have sex with men [Polish] (2019)

NHS Health Scotland

This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.

Cover image of 'The HPV vaccine for men who have sex with men'

The HPV vaccine for men who have sex with men (2019)

NHS Health Scotland

This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.

Cover image of 'Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends'

Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends (November 2019)

Marie Curie

Living with a terminal illness and getting the best care and support can be challenging for everyone. We all have individual needs and will have different experiences. Being LGBTQ+ may mean that you have specific concerns or questions about getting the care and support you need. In this booklet, we explain the care and support that’s available. We also answer questions you might have, such as how you can plan ahead and make decisions for the future.

Cover image of 'Living with a terminal illness. Support for you and those close to you [Welsh]'

Living with a terminal illness. Support for you and those close to you [Welsh] (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Be breast aware'

Be breast aware (May 2019)

Breast Test Wales

This illustrated leaflet tells women how to be breast aware, how to check their breasts and what to look out for.

Cover image of 'A-Z of leukaemia. A guide for patients'

A-Z of leukaemia. A guide for patients (September 2019)

Leukaemia CARE

This booklet helps to define some of the terms that people may come across when they are diagnosed and treated for a blood cancer. 

Cover image of 'Bowel screening test kit instructions [Welsh]'

Bowel screening test kit instructions [Welsh] (January 2019)

Bowel Screening Wales

Instructions on how to use the bowel screening test kit.

Cover image of 'This free NHS test kit could save your life [Welsh]'

This free NHS test kit could save your life [Welsh] (January 2019)

Bowel Screening Wales

This leaflet describes the benefits of the bowel screening test kit, what the kit looks for, and what happens if blood is found in your sample. It also has information on how to reduce your risk of bowel cancer and the symptoms to look out for.

Cover image of 'Living with a terminal illness. Support for you and those close to you'

Living with a terminal illness. Support for you and those close to you (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'The HPV vaccine for men who have sex with men [Chinese, Simplified]'

The HPV vaccine for men who have sex with men [Chinese, Simplified] (2019)

NHS Health Scotland

This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.

Cover image of 'Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

Cover image of 'Be breast aware [Welsh]'

Be breast aware [Welsh] (May 2019)

Breast Test Wales

This illustrated leaflet tells women how to be breast aware, how to check their breasts and what to look out for.

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Bowel screening test kit instructions'

Bowel screening test kit instructions (January 2019)

Bowel Screening Wales

Instructions on how to use the bowel screening test kit.

Cover image of 'This free NHS test kit could save your life'

This free NHS test kit could save your life (January 2019)

Bowel Screening Wales

This leaflet describes the benefits of the bowel screening test kit, what the kit looks for, and what happens if blood is found in your sample. It also has information on how to reduce your risk of bowel cancer and the symptoms to look out for.

Cover image of 'About your bowel test kit [Easy read]'

About your bowel test kit [Easy read] (August 2019)

Bowel Screening Wales

Easy read information on the bowel screening test.

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'What happens if blood is found in your poo? [Easy read]'

What happens if blood is found in your poo? [Easy read] (August 2019)

Bowel Screening Wales

Easy read information on having a colonoscopy.

Cover image of 'About your bowel test kit [Easy read] [Welsh]'

About your bowel test kit [Easy read] [Welsh] (August 2019)

Bowel Screening Wales

Easy read information on the bowel screening test.

Cover image of 'Planning ahead for the end of life (Scotland) [in press]'

Planning ahead for the end of life (Scotland) [in press] (November 2019)

Macmillan Cancer Support and the Public Health Agency

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in Scotland. It is for anyone who wants to plan ahead, whether they have a serious illness or not. Planning for your future care is also called advance care planning. It is important in case you ever become unable to make choices yourself. The booklet talks about the ways you can plan ahead, for example writing a will, or making a power of attorney or an advance directive. It also tells you how to talk about planning ahead with your family, friends and health and social care professionals.

Cover image of 'Your step by step guide to making a will'

Your step by step guide to making a will (November 2019)

Macmillan Cancer Support

This leaflet is a guide to making or updating your will. It is for anyone affected by cancer. It also explains how inheritance tax works, and who to contact for more information and support. 

Cover image of 'Planning ahead for the end of life. England and Wales [in press]'

Planning ahead for the end of life. England and Wales [in press] (November 2019)

Macmillan Cancer Support

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in England or Wales. It is for anyone who wants to plan ahead, whether they have a serious illness or not. 

Cover image of 'What happens if blood is found in your poo? [Easy read] [Welsh]'

What happens if blood is found in your poo? [Easy read] [Welsh] (August 2019)

Bowel Screening Wales

Easy read information on having a colonoscopy.

Cover image of 'Managing breathlessness'

Managing breathlessness (March 2019)

Macmillan Cancer Support

This booklet is for people who have breathlessness due to cancer or its treatment. It includes information about breathing and relaxation exercises, treatments, practical tips for everyday living and a list of useful contacts for further information and support. It also includes a copy of the 'Relax and breathe' CD.

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