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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 12

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'B-cell acute lymphoblastic leukaemia (ALL). A guide for patients'

B-cell acute lymphoblastic leukaemia (ALL). A guide for patients (May 2019)

Leukaemia Care

This booklet explains what B-cell acute lymphoblastic leukaemia is, and describes the causes, who it affects, the symptoms and side-effects and treatment options. It also covers issues such as day-to-day life with B-cell acute lymphoblastic leukaemia, managing your emotions, telling family and friends, survivorship, palliative care, and end-of-life care.

Cover image of 'Acute lymphoblastic leukaemia (ALL) in adults'

Acute lymphoblastic leukaemia (ALL) in adults (February 2019)

Bloodwise

This booklet explains what acute lymphoblastic leukaemia is and describes the causes and symptoms, and how it is diagnosed and treated.

Cover image of 'Childhood acute lymphoblastic leukaemia (ALL). A guide for parents'

Childhood acute lymphoblastic leukaemia (ALL). A guide for parents (March 2019)

Leukaemia Care

Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'Future treatments in acute myeloid leukaemia (AML). A guide for patients'

Future treatments in acute myeloid leukaemia (AML). A guide for patients (October 2018)

Leukaemia Care

The main treatment for acute myeloid leukaemia (AML) is chemotherapy, including targeted therapy. This might be followed by a stem cell transplant, and surgery and radiotherapy may be used in special circumstances. New therapies are being developed and investigated and this booklet describes several of these: clofarabine (DNA synthesis inhibitor); gilteritinib and quizartinib (tyrosine kinase inhibitors); venetoclax (B-cell lymphoma-2 (BCL2) inhibitor); and Vyxeos® (a combination of daunorubicin and cytarabine. 

Cover image of 'Adult acute lymphoblastic leukaemia (ALL). A guide for patients'

Adult acute lymphoblastic leukaemia (ALL). A guide for patients (October 2018)

Leukaemia Care

This booklet explains what acute lymphopblastic leukaemia (ALL) is, and describes the symptoms, diagnosis, and treatment options. It also covers everday life with ALL and how to talk to your haematologist, family and friends. 

Cover image of 'Understanding acute lymphoblastic leukaemia (ALL)'

Understanding acute lymphoblastic leukaemia (ALL) (August 2018)

Macmillan Cancer Support

This booklet describes acute lymphoblastic leukaemia, its causes, symptoms, diagnosis, and treatment options. It also discusses issues such as feelings, talking to children, self-help, and practical and financial support. Includes details of useful organisations and other resources.

Cover image of 'High-grade non-Hodgkin lymphoma'

High-grade non-Hodgkin lymphoma (June 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.

Cover image of 'Naomi's story. Living with leukaemia'

Naomi's story. Living with leukaemia (2017)

Franklin Watts

This picture book uses the first-person testimony of Naomi, a 10-year-old girl with acute lymphoblastic leukaemia. Naomi explains what it was like to find out she had cancer, when she lost all her hair and what it was like spending so much time in hospital. The intimate and direct impact of using Naomi’s real first-person testimony encourages children to empathise with her situation, and to understand how some children’s lives are very different from their own. Naomi talks about school, family, friends and explains the confusion and chaos caused by cancer. This BAFTA award-winning story was originally produced as an animation for the BBC. Aimed at children aged 9 and up. (Publisher)

Cover image of 'Acute lymphoblastic leukaemia (ALL)'

Acute lymphoblastic leukaemia (ALL) (December 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute lymphoblastic leukaemia is, and describes the signs, symptoms, tests and treatment options.

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